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Version of 22.11.2024. Last major change:

Nr.	Dataset	Item	Description	Type	Min	Max	Unknown	Start	End	Export	Export
1	patient	P_Data_source	Data source marker	ordinal / choice_radio	0 = mnds, 1 = b, 2 = bExtra			2000	3000	no
2	fu2	FU2_Files	Test upload	text / static_text			unknown		3000	no
3	patient	__P_kp_PatientID	DB primary key	integer	1	0		2000	3000	yes	5
4	patient	P_Neo_Dataset	Describes dataset ("mnds", "asp", "fu1", etc.)	text / choice_radio				2000	3000	no
5	patient	P_SNNID	SNN-ID (leave empty if new dataset!)	text / text_field				2000	3000	yes	10
6	patient	P_MNDS_type	MNDS type	ordinal / choice_radio	1	4		2000	2016	no
7	patient	P_Informed_consent	Informed consent given	ordinal / choice_radio	1	4		2015	3000	yes	15
8	patient	P_Date_of_birth	Date of birth	date	0	0		2000	3000	yes	20
9	patient	P_Month_of_birth	Month of birth	integer	1	12		2000	3000	yes	20
10	patient	P_Center_Nr	Preset center nr	text / text_field				2000	3000	yes	22
11	patient	P_Register	Register	ordinal / choice_radio	1 = mnds, 2 = asp, 3 = mndsb34, 4 = orchid			2000	3000	yes	22
12	patient	P_Center_Nr_anonym	Encrypted center number	integer	1	15		2000	3000	yes	23
13	patient	P_Outcome_study	Study group selector	boolean	0 = no, 1 = yes			2000	3000	no
14	patient	P_Year_of_birth	Year of birth	integer	2000	2030		2000	3000	yes	25
15	patient	P_MNDS_exclude	Exclude from overnight evaluation	boolean	0 = no, 1 = yes			2000	3000	yes	32
16	patient	P_Asp_Exclude	Exclude from evaluation	boolean	0 = no, 1 = yes			2011	3000	no
17	patient	P_Patient_no	Patient number	text / text_field				2000	3000	yes	35
18	patient	P_Ahv_Number	AHV Number (Orchid registry only)	regex / text_field			999.9999.9999.99	2019	3000	no
19	patient	P_Day_of_admission	Day of admission	integer	1	365	999	2000	3000	yes	50
20	patient	P_Place_of_birth	Place of birth	text / text_field				2000	3000	yes	51
21	patient	P_Time_of_birth	Time at birth (only ASP)	time	0	23		2012	3000	yes	52
22	patient	P_Birth_location	Birth location	ordinal / choice_radio	1 = inborn, 2 = outborn			2001	3000	yes	55
23	patient	P_Study	RCT study coding	ordinal / choice_radio	1 = epo, 2 = albino, 3 = copca, 4 = music			2000	3000	yes	56
24	patient	P_FUx_Location		text / choice_select					3000	no
25	patient	P_GA_weeks	Weeks of gestation	integer	22	42		2000	3000	yes	60
26	patient	P_GA_days	Days after weeks	integer	0	6		2000	3000	yes	65
27	patient	P_Birth_weight	Birth weight in g	integer	100	8000		2000	3000	yes	70
28	patient	P_Sex	Sex	ordinal / choice_radio	1	2	9	2000	3000	yes	71
29	patient	P_Died_in_del		ordinal / choice_radio					3000	no
30	patient	P_Number_of_infants	Number of infants in this birth	integer	1	6		2000	3000	yes	75
31	patient	P_Rank	Order of births	text / text_field				2000	3000	yes	80
32	patient	P_Hospital_ID	Preset hospital ID	text / choice_select				2000	3000	yes	81
33	patient	P_Identifier_mother	ID text/number for mother dataset (not in use)	text / text_field				2020	3000	no
34	patient	P_FU1_location	Location of follow-up 1	text / text_field				2000	3000	yes	85
35	patient	P_FU2_location	Location of follow-up 2	text / text_field				2000	3000	yes	90
36	patient	P_FU5_location	Location of follow-up 5	text / text_field				2000	3000	yes	95
37	patient	P_FU1_performed	Follow-up 1 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	100
38	patient	P_FU2_performed	Follow-up 2 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	105
39	patient	P_FU5_performed	Follow-up 5 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	110
40	patient	P_SDQ_performed	SDQ has taken place	boolean	0 = no, 1 = yes			2000	3000	no
41	patient	P_FUp_performed	Parental form filled in	boolean	0 = no, 1 = yes			2000	3000	no
42	patient	F_FU1_status	Recruitment status	text / text_field				2000	3000	no
43	patient	F_FU2_status	Recruitment status	text / text_field				2000	3000	no
44	patient	F_FU5_status	Recruitment status	text / text_field				2000	3000	no
45	patient	P_Bw_Zscore	Birth weight z-score (Voigt 2006)	decimal	-6	6		2000	3000	yes	115
46	patient	P_SGA	Birth weight < 10th percentile (Voigt 2006)	boolean	0 = no, 1 = yes			2000	3000	yes	115
47	patient	P_Died	Child died at any time	boolean	0 = no, 1 = yes			2000	3000	yes	116
48	patient	SES_Score_total	Total of all available SES scores	integer	2	12		2000	3000	yes	139
49	patient	P_DS_duplicate	Original kP	integer				2000	3000	yes	615
50	patient	P_DS_lockdate		date					3000	no
51	fu2	FU2_Test_Upload	Upload parental assessment form in lieu of recording clinical consultation	boolean	0 = no, 1 = yes			2019	3000	yes	2836
52	fu2	FU2_Dev_test_age_text		text / text_field					3000	no
53	fu2	FU2_MDI_index	BSID II MDI index	integer	49	151	999		3000	no
54	fu2	FU2_MDI_diff_calc		text / text_field					3000	no
55	fu2	FU2_PDI_index	BSID II PDI index	integer	49	151	999		3000	no
56	fu2	FU2_PDI_diff_calc		text / text_field					3000	no
57	fu2	FU2_B3_cog_scaled	Bayley III Cog scaled score	integer	0	0		2010	3000	no
58	fu2	FU2_B3_cog_comp	Bayley III Cog composit score	integer	0	0		2010	3000	no
59	fu2	FU2_B3_rc_scaled	Bayley III RC scaled	integer	0	0		2010	3000	no
60	fu2	FU2_B3_ec_scaled	Bayley III EC scaled	integer	0	0		2010	3000	no
61	fu2	FU2_B3_lang_comp	Bayley III Lang composite score	integer	0	0		2010	3000	no
62	fu2	FU2_B3_fm_scaled	Bayley III FM scaled	integer	0	0		2010	3000	no
63	fu2	FU2_B3_gm_scaled	Bayley III GM scaled	integer	0	0		2010	3000	no
64	fu2	FU2_B3_mot_comp	Bayley III Mot composite score	integer	0	0		2010	3000	no
65	fu2	FU2_B3_cog_scaled_ref	Bayley III cognitive scaled score	integer	1	38		2010	3000	yes	3040
66	fu2	FU2_B3_rc_scaled_ref	Bayley III RC scaled	decimal	1	38		2010	3000	yes	3045
67	fu2	FU2_B3_ec_scaled_ref	Bayley III EC scaled	integer	1	38		2010	3000	yes	3050
68	fu2	FU2_B3_fm_scaled_ref	Bayley III FM scaled	integer	1	38		2010	3000	yes	3055
69	fu2	FU2_B3_gm_scaled_ref	Bayley III GM scaled	integer	1	38		2010	3000	yes	3060
70	fu2	FU2_B3_lang_scaled	Bayley III Lang composite score	integer	0	0		2010	3000	no
71	fu2	FU2_B3_mot_scaled	Bayley III motor scaled	decimal	0	0		2010	3000	no
72	fu2	FU2_B3_cog_comp_ref	Bayley III cognitive composite	decimal	40	155		2010	3000	yes	3075
73	fu2	FU2_B3_lang_comp_ref	Bayley III language composite	decimal	40	155		2010	3000	yes	3080
74	fu2	FU2_B3_mot_comp_ref	Bayley III motor composite	decimal	40	155		2010	3000	yes	3085
75	fu2	FU2_GQ_nomotor_calc	Griffiths quotient w/o motor component	decimal	5	151			3000	yes	3145
76	fu2	FU2_Spastic_CP	Spastic CP	ordinal / choice_radio	1	6			2013	yes	3155
77	fu2	FU2_Ataxic_CP	Ataxic CP	ordinal / choice_radio	1 = Ataxia, 2 = Hemitaxia				2013	yes	3165
78	fu2	FU2_Monoplegia_LR	Monoplegia left or right	integer	1	2			2013	yes	3170
79	fu2	FU2_Hemiplegia_LR	Hemiplegia left or right	integer	1	2			2013	yes	3175
80	fu2	FU2_Visual_problems_glasses	Visual problems	integer	0	0			3000	no
81	fu2	FU2_Visus_E_Haken_R	E-Haken: right	decimal	0	0			3000	no
82	fu2	FU2_Visus_E_Haken_L	E-Haken: left	decimal	0	0			3000	no
83	fu2	FU2_Visus_Stycar_R	Stycar: right	decimal	0	0			3000	no
84	fu2	FU2_Visus_Stycar_L	Stycar: left	decimal	0	0			3000	no
85	fu2	FU2_Audiometry	lang test	integer	0	0			3000	yes	3370
86	fu2	FU2_Audiometry_specific	hearing problems	integer	0	0			3000	yes	3375
87	fu2	FU2_ENT_txt	result of specialist exam	text / text_field					3000	yes	3385
88	fu2	FU2_ENT_date	date of specialist exam	date	0	0			3000	no
89	fu2	FU2_NDI	Neurodevelopmental impairment score	ordinal / choice_radio	0 = no, 1 = moderate, 2 = severe				3000	yes	3415
90	fu2	FU2_Last_change		date	0	0			3000	no
91	fu2	FU2_DS_status		integer	0	0			3000	no
92	fu2	FU2_Error_report		fu2ErrorReport /	0	0			3000	no
93	fu2	FU2_Errors		integer	0	0			3000	no
94	fu2	FU2_Errorlist_ignore		integer	0	0			3000	no
95	fu2	FU2_Check		integer	0	2	9		3000	no
96	fu2	FU2_Date		date				2000	3000	no
97	fu2	FU2_Age_calc	Corrected age at FU	decimal	0	96			3000	yes	3471
98	fu2	FU2_Examiner1	Examiner: Physician	boolean	0 = no, 1 = yes				3000	yes	3472
99	fu2	FU2_Examiner2	Examiner: Psychologist	boolean	0 = no, 1 = yes				3000	yes	3473
100	fu2	FU2_Examiner3	Examiner: Physiotherapist	boolean	0 = no, 1 = yes				3000	yes	3474
101	fu2	FU2_Examiner4	Examiner: Pediatrician in private practice	boolean	0 = no, 1 = yes				3000	yes	3475
102	fu2	FU2_Examiner5	Examiner: Other	boolean	0 = no, 1 = yes				3000	yes	3476
103	fu2	FU2_Examiner5_specific	Examiner: Specifics of other	text / text_field					3000	yes	3477
104	fu2	FU2_Examiner_name	Name of examiner	text / text_field					3000	yes	3478
105	fu2	SES_Education_mother2	Highest education mother	text / choice_select			unknown	2000	3000	no
106	fu2	SES_Occupation_mother2	Current occupation mother	text / text_field			unknown	2000	3000	no
107	fu2	SES_Score_mother2	SES Score of mother	integer	1	6	9	2000	3000	no
108	fu2	SES_Education_father2	Training basis for current occupation father	text / choice_select			unknown	2000	3000	no
109	fu2	SES_Occupation_father2	Current occupation father	text / text_field			unknown	2000	3000	no
110	fu2	SES_Score_father2	SES Score of father	text / integer			9	2000	3000	no
111	fu2	FU2_Weight	Weight	decimal	4	25	99		3000	yes	3485
112	fu2	FU2_Weight_zscore	Weight z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3486
113	fu2	FU2_Length	Length	decimal	50	110	999		3000	yes	3487
114	fu2	FU2_Length_zscore	length z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3488
115	fu2	FU2_Dev_test	Development test	ordinal / choice_select	0	4			3000	yes	3488
116	fu2	FU2_Head_circ	Head circumference	decimal	40	60	99		3000	yes	3489
117	fu2	FU2_poorComp	Poor complience	boolean	0 = no, 1 = yes				3000	yes	3489
118	fu2	FU2_Head_circ_zscore	head circumference z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3490
119	fu2	FU2_Dev_test_date	Development test date	date	0	0			3000	yes	3490
120	fu2	FU2_Dev_test_age	Age at developmental test	decimal	0	96			3000	yes	3491
121	fu2	FU2_MDI_raw	BSID II MDI raw	integer	0	200	999		3000	yes	3492
122	fu2	FU2_PDI_raw	BSID II PDI raw	integer	0	200	999		3000	yes	3493
123	fu2	FU2_MDI_index_ref	BSID II MDI index	integer	49	151	999		3000	yes	3494
124	fu2	FU2_PDI_index_ref	BSID II PDI index	integer	49	151	999		3000	yes	3495
125	fu2	FU2_B3_cog_raw	Bayley III Cog. raw	integer	1	91	999	2010	3000	yes	3496
126	fu2	FU2_B3_rc_raw	Bayley III RC raw	integer	1	91	999	2010	3000	yes	3497
127	fu2	FU2_B3_ec_raw	Bayley III EC raw	integer	1	91	999	2010	3000	yes	3498
128	fu2	FU2_B3_fm_raw	Bayley III FM raw	integer	1	91	999	2010	3000	yes	3499
129	fu2	FU2_B3_gm_raw	Bayley III GM raw	integer	1	91	999	2010	3000	yes	3500
130	fu2	FU2_Griffith_motor_raw	Griffiths raw: motor	decimal	0	200	999		3000	yes	3501
131	fu2	FU2_Griffith_social_raw	Griffiths raw: social	decimal	0	200	999		3000	yes	3502
132	fu2	FU2_Griffith_hearing_raw	Griffiths raw: hearing	decimal	0	200	999		3000	yes	3503
133	fu2	FU2_Griffith_eye_raw	Griffiths raw: eye	decimal	0	200	999		3000	yes	3504
134	fu2	FU2_Griffith_cognition_raw	Griffiths raw: cognition	decimal	0	200	999		3000	yes	3505
135	fu2	FU2_Griffith_motor_index	Griffiths index: motor	decimal	0	200	999		3000	yes	3506
136	fu2	FU2_Griffith_social_index	Griffiths index: social	decimal	0	200	999		3000	yes	3507
137	fu2	FU2_Griffith_hearing_index	Griffiths index: hearing	decimal	0	200	999		3000	yes	3508
138	fu2	FU2_Griffith_eye_index	Griffiths index: eye	decimal	0	200	999		3000	yes	3509
139	fu2	FU2_Griffith_cognition_index	Griffiths index: cognition	decimal	0	200	999		3000	yes	3510
140	fu2	FU2_GQ_tot	Griffiths quotient	decimal	5	151	999		3000	yes	3511
141	fu2	FU2_Dev_test_comments	Comments	text / text_area					3000	yes	3512
142	fu2	FU2_SM_findings	Sensory motor findings	ordinal / choice_select	0	3			3000	yes	3513
143	fu2	FU2_CP_suspect	CP suspect	boolean	0 = no, 1 = yes				3000	yes	3514
144	fu2	FU2_CP_Degree	Palisano score	integer / choice_radio	1	5	9		3000	yes	3515
145	fu2	FU2_Kindof_CP	Type of CP	integer / choice_radio	0	4			3000	yes	3516
146	fu2	FU2_Spastic_CP_2020	Spastic CP (as of 2020)	ordinal / choice_radio	0 = Unilateral, 1 = Bilateral			2014	3000	yes	3517
147	fu2	FU2_CP_Spastic_Unilateral_LR	Unilateral Spastic CP left or right	integer / choice_radio	1 = L, 2 = R			2014	3000	yes	3518
148	fu2	FU2_Dyskinetic_CP	Dyskinetic CP	ordinal / choice_radio	1	3			3000	yes	3519
149	fu2	FU2_Non_CP_abn1	Non-CP abnormality: tone or reflexes	boolean	0 = no, 1 = yes				3000	yes	3520
150	fu2	FU2_Non_CP_abn2	Non-CP abnormality: tone and reflexes, but not CP	boolean	0 = no, 1 = yes				3000	yes	3521
151	fu2	FU2_Non_CP_abn3	Non-CP abnormality: Clumsy fine motor performance	boolean	0 = no, 1 = yes				3000	yes	3522
152	fu2	FU2_Non_CP_abn4	Non-CP abnormality: Clumsy gross motor performance	boolean	0 = no, 1 = yes				3000	yes	3523
153	fu2	FU2_Neurodev	Other neurodev. abnormalities	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3525
154	fu2	FU2_Neurodev_specific	Specifics of other	text / text_area					3000	yes	3525
155	fu2	FU2_Therapy	Therapy	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3527
156	fu2	FU2_Therapy1	Physical therapy	boolean	0 = no, 1 = yes				3000	yes	3528
157	fu2	FU2_Therapy1_age	Physical therapy-age	integer	0	36	999		3000	yes	3529
158	fu2	FU2_Therapy1_ongoing	Physical therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3530
159	fu2	FU2_Therapy1_duration	Physical therapy-Duration	integer	0	24	999		3000	yes	3531
160	fu2	FU2_Therapy2	Early intervention	boolean	0 = no, 1 = yes				3000	yes	3532
161	fu2	FU2_Therapy2_age	Early intervention-age	integer	0	36	999		3000	yes	3533
162	fu2	FU2_Therapy2_ongoing	Early intervention ongoing	boolean	0 = no, 1 = yes				3000	yes	3534
163	fu2	FU2_Therapy2_duration	Early intervention-Duration	integer	0	24	999		3000	yes	3535
164	fu2	FU2_Therapy3	Occupational therapy	boolean	0 = no, 1 = yes				3000	yes	3536
165	fu2	FU2_Therapy3_age	Occupational therapy-age	integer	0	36	999		3000	yes	3537
166	fu2	FU2_Therapy3_ongoing	Occupational therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3538
167	fu2	FU2_Therapy3_duration	Occupational therapy-Duration	integer	0	24	999		3000	yes	3539
168	fu2	FU2_Therapy6	Child psychiatry therapy	boolean	0 = no, 1 = yes				3000	yes	3540
169	fu2	FU2_Therapy6_age	Child psychiatry therapy-age	integer	0	36	999		3000	yes	3541
170	fu2	FU2_Therapy6_ongoing	Child psychiatry therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3542
171	fu2	FU2_Therapy6_duration	Child psychiatry therapy-Duration	integer	0	24	999		3000	yes	3543
172	fu2	FU2_Therapy7	Other therapy	boolean	0 = no, 1 = yes				3000	yes	3544
173	fu2	FU2_Therapy7_specific	Specifics of other therapy	text / text_field					3000	yes	3545
174	fu2	FU2_Therapy7_age	Other therapy-age	integer	0	36	999		3000	yes	3546
175	fu2	FU2_Therapy7_ongoing	Other therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3547
176	fu2	FU2_Therapy7_duration	Other therapy-Duration	integer	0	24	999		3000	yes	3548
177	fu2	FU2_Visual_problems	Visual problems	ordinal / choice_radio	0 = none, 1 = moderate, 2 = severe				3000	yes	3549
178	fu2	FU2_Lang_test	Lang test	ordinal / choice_radio	0	2	9		3000	yes	3550
179	fu2	FU2_Hearing_problems	Hearing problems	ordinal / choice_radio	0 = none, 1 = moderate, 2 = severe				3000	yes	3551
180	fu2	FU2_Rehosp	Rehospitalization	ordinal / choice_radio	0 = never, 1 = once, 2 = several times				3000	yes	3552
181	fu2	FU2_Rehosp_specific	Specifics to rehospitalization	text / text_area					3000	yes	3553
182	fu2	FU2_Ropsurg	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3554
183	fu2	FU2_VPshunt	VP shunt	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3555
184	fu2	FU2_Comment	Comments	text / text_area					3000	yes	3556
185	fu2	FU2_Email	E-mail of examiner	text / text_field					3000	no
186	fu2	FU2_DS_lockdate		date	0	0			3000	no
187	fu2	FU2_NDI_manual	Neurodevelopmental impairment	ordinal / choice_radio	0	2	9		3000	no
188	fu2	FU2_NDI_comment	Comment to neurodevelopmental impairment classification	text / text_area			unknown		3000	no
189	fu2	FU2_Repeat_surgery	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
190	fu2	FU2_Catheter_intervention	Catheter Intervention	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
191	fu2	FU2_Treat_cardio_name	Name of Treating cardiologist	text / text_field				2019	3000	yes	5580
192	fu2	FU2_Treat_cardio_email	E-mail of cardiologist	text / text_field				2019	3000	yes	5585
193	fu2	FU2_Cardiac_medication_none	Cardiac Medication: None	boolean	0 = no, 1 = yes				3000	yes	5589
194	fu2	FU2_Cardiac_medication_diuretics	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	yes	5590
195	fu2	FU2_Cardiac_medication_sildenafil	Cardiac Medication: Sildenafil	boolean	0 = no, 1 = yes				3000	yes	5595
196	fu2	FU2_Cardiac_medication_ace_inhibitor	Cardiac Medication: ACE Inhibitor	boolean	0 = no, 1 = yes				3000	yes	5600
197	fu2	FU2_Cardiac_medication_digoxin	Cardiac Medication: Digoxin	boolean	0 = no, 1 = yes				3000	yes	5605
198	fu2	FU2_Cardiac_medication_beta_blocker	Cardiac Medication: Beta-Blocker	boolean	0 = no, 1 = yes				3000	yes	5610
199	fu2	FU2_Cardiac_medication_other	Cardiac Medication: Other	boolean	0 = no, 1 = yes				3000	yes	5615
200	fu2	FU2_Cardiac_medication_other_specific	Cardiac Medication: Specifics of other	text / text_field					3000	yes	5625
201	fu2	FU2_Gi_tube_feeding	Gastrointestinal tube feeding	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no

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