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Version of 27.04.2024. Last major change:

Nr.	Dataset	Item	Description	Type	Min	Max	Unknown	Start	End	Export	Export
1	fu2	FU2_Files	Test upload	text / static_text			unknown		3000	no
2	fu2	FU2_Test_Upload	Upload parental assessment form in lieu of recording clinical consultation	boolean	0 = no, 1 = yes			2019	3000	yes	2836
3	fu2	FU2_Dev_test_age_text		text / text_field					3000	no
4	fu2	FU2_MDI_index	BSID II MDI index	integer	49	151	999		3000	no
5	fu2	FU2_MDI_diff_calc		text / text_field					3000	no
6	fu2	FU2_PDI_index	BSID II PDI index	integer	49	151	999		3000	no
7	fu2	FU2_PDI_diff_calc		text / text_field					3000	no
8	fu2	FU2_B3_cog_scaled	Bayley III Cog scaled score	integer	0	0		2010	3000	no
9	fu2	FU2_B3_cog_comp	Bayley III Cog composit score	integer	0	0		2010	3000	no
10	fu2	FU2_B3_rc_scaled	Bayley III RC scaled	integer	0	0		2010	3000	no
11	fu2	FU2_B3_ec_scaled	Bayley III EC scaled	integer	0	0		2010	3000	no
12	fu2	FU2_B3_lang_comp	Bayley III Lang composite score	integer	0	0		2010	3000	no
13	fu2	FU2_B3_fm_scaled	Bayley III FM scaled	integer	0	0		2010	3000	no
14	fu2	FU2_B3_gm_scaled	Bayley III GM scaled	integer	0	0		2010	3000	no
15	fu2	FU2_B3_mot_comp	Bayley III Mot composite score	integer	0	0		2010	3000	no
16	fu2	FU2_B3_cog_scaled_ref	Bayley III cognitive scaled score	integer	1	38		2010	3000	yes	3040
17	fu2	FU2_B3_rc_scaled_ref	Bayley III RC scaled	decimal	1	38		2010	3000	yes	3045
18	fu2	FU2_B3_ec_scaled_ref	Bayley III EC scaled	integer	1	38		2010	3000	yes	3050
19	fu2	FU2_B3_fm_scaled_ref	Bayley III FM scaled	integer	1	38		2010	3000	yes	3055
20	fu2	FU2_B3_gm_scaled_ref	Bayley III GM scaled	integer	1	38		2010	3000	yes	3060
21	fu2	FU2_B3_lang_scaled	Bayley III Lang composite score	integer	0	0		2010	3000	no
22	fu2	FU2_B3_mot_scaled	Bayley III motor scaled	decimal	0	0		2010	3000	no
23	fu2	FU2_B3_cog_comp_ref	Bayley III cognitive composite	decimal	40	155		2010	3000	yes	3075
24	fu2	FU2_B3_lang_comp_ref	Bayley III language composite	decimal	40	155		2010	3000	yes	3080
25	fu2	FU2_B3_mot_comp_ref	Bayley III motor composite	decimal	40	155		2010	3000	yes	3085
26	fu2	FU2_GQ_nomotor_calc	Griffiths quotient w/o motor component	decimal	5	151			3000	yes	3145
27	fu2	FU2_Spastic_CP	Spastic CP	ordinal / choice_radio	1	6			2013	yes	3155
28	fu2	FU2_Ataxic_CP	Ataxic CP	ordinal / choice_radio	1 = Ataxia, 2 = Hemitaxia				2013	yes	3165
29	fu2	FU2_Monoplegia_LR	Monoplegia left or right	integer	1	2			2013	yes	3170
30	fu2	FU2_Hemiplegia_LR	Hemiplegia left or right	integer	1	2			2013	yes	3175
31	fu2	FU2_Visual_problems_glasses	Visual problems	integer	0	0			3000	no
32	fu2	FU2_Visus_E_Haken_R	E-Haken: right	decimal	0	0			3000	no
33	fu2	FU2_Visus_E_Haken_L	E-Haken: left	decimal	0	0			3000	no
34	fu2	FU2_Visus_Stycar_R	Stycar: right	decimal	0	0			3000	no
35	fu2	FU2_Visus_Stycar_L	Stycar: left	decimal	0	0			3000	no
36	fu2	FU2_Audiometry	lang test	integer	0	0			3000	yes	3370
37	fu2	FU2_Audiometry_specific	hearing problems	integer	0	0			3000	yes	3375
38	fu2	FU2_ENT_txt	result of specialist exam	text / text_field					3000	yes	3385
39	fu2	FU2_ENT_date	date of specialist exam	date	0	0			3000	no
40	fu2	FU2_NDI	Neurodevelopmental impairment score	ordinal / choice_radio	0 = no, 1 = moderate, 2 = severe				3000	yes	3415
41	fu2	FU2_Last_change		date	0	0			3000	no
42	fu2	FU2_DS_status		integer	0	0			3000	no
43	fu2	FU2_Error_report		fu2ErrorReport /	0	0			3000	no
44	fu2	FU2_Errors		integer	0	0			3000	no
45	fu2	FU2_Errorlist_ignore		integer	0	0			3000	no
46	fu2	FU2_Check		integer	0	2	9		3000	no
47	fu2	FU2_Date		date				2000	3000	no
48	fu2	FU2_Age_calc	Corrected age at FU	decimal	0	96			3000	yes	3471
49	fu2	FU2_Examiner1	Examiner: Physician	boolean	0 = no, 1 = yes				3000	yes	3472
50	fu2	FU2_Examiner2	Examiner: Psychologist	boolean	0 = no, 1 = yes				3000	yes	3473
51	fu2	FU2_Examiner3	Examiner: Physiotherapist	boolean	0 = no, 1 = yes				3000	yes	3474
52	fu2	FU2_Examiner4	Examiner: Pediatrician in private practice	boolean	0 = no, 1 = yes				3000	yes	3475
53	fu2	FU2_Examiner5	Examiner: Other	boolean	0 = no, 1 = yes				3000	yes	3476
54	fu2	FU2_Examiner5_specific	Examiner: Specifics of other	text / text_field					3000	yes	3477
55	fu2	FU2_Examiner_name	Name of examiner	text / text_field					3000	yes	3478
56	fu2	SES_Education_mother2	Highest education mother	text / choice_select			unknown	2000	3000	no
57	fu2	SES_Occupation_mother2	Current occupation mother	text / text_field			unknown	2000	3000	no
58	fu2	SES_Score_mother2	SES Score of mother	integer	1	6	9	2000	3000	no
59	fu2	SES_Education_father2	Training basis for current occupation father	text / choice_select			unknown	2000	3000	no
60	fu2	SES_Occupation_father2	Current occupation father	text / text_field			unknown	2000	3000	no
61	fu2	SES_Score_father2	SES Score of father	text / integer			9	2000	3000	no
62	fu2	FU2_Weight	Weight	decimal	4	25	99		3000	yes	3485
63	fu2	FU2_Weight_zscore	Weight z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3486
64	fu2	FU2_Length	Length	decimal	50	110	999		3000	yes	3487
65	fu2	FU2_Length_zscore	length z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3488
66	fu2	FU2_Dev_test	Development test	ordinal / choice_select	0	4			3000	yes	3488
67	fu2	FU2_Head_circ	Head circumference	decimal	40	60	99		3000	yes	3489
68	fu2	FU2_poorComp	Poor complience	boolean	0 = no, 1 = yes				3000	yes	3489
69	fu2	FU2_Head_circ_zscore	head circumference z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	3490
70	fu2	FU2_Dev_test_date	Development test date	date	0	0			3000	yes	3490
71	fu2	FU2_Dev_test_age	Age at developmental test	decimal	0	96			3000	yes	3491
72	fu2	FU2_MDI_raw	BSID II MDI raw	integer	0	200	999		3000	yes	3492
73	fu2	FU2_PDI_raw	BSID II PDI raw	integer	0	200	999		3000	yes	3493
74	fu2	FU2_MDI_index_ref	BSID II MDI index	integer	49	151	999		3000	yes	3494
75	fu2	FU2_PDI_index_ref	BSID II PDI index	integer	49	151	999		3000	yes	3495
76	fu2	FU2_B3_cog_raw	Bayley III Cog. raw	integer	1	91	999	2010	3000	yes	3496
77	fu2	FU2_B3_rc_raw	Bayley III RC raw	integer	1	91	999	2010	3000	yes	3497
78	fu2	FU2_B3_ec_raw	Bayley III EC raw	integer	1	91	999	2010	3000	yes	3498
79	fu2	FU2_B3_fm_raw	Bayley III FM raw	integer	1	91	999	2010	3000	yes	3499
80	fu2	FU2_B3_gm_raw	Bayley III GM raw	integer	1	91	999	2010	3000	yes	3500
81	fu2	FU2_Griffith_motor_raw	Griffiths raw: motor	decimal	0	200	999		3000	yes	3501
82	fu2	FU2_Griffith_social_raw	Griffiths raw: social	decimal	0	200	999		3000	yes	3502
83	fu2	FU2_Griffith_hearing_raw	Griffiths raw: hearing	decimal	0	200	999		3000	yes	3503
84	fu2	FU2_Griffith_eye_raw	Griffiths raw: eye	decimal	0	200	999		3000	yes	3504
85	fu2	FU2_Griffith_cognition_raw	Griffiths raw: cognition	decimal	0	200	999		3000	yes	3505
86	fu2	FU2_Griffith_motor_index	Griffiths index: motor	decimal	0	200	999		3000	yes	3506
87	fu2	FU2_Griffith_social_index	Griffiths index: social	decimal	0	200	999		3000	yes	3507
88	fu2	FU2_Griffith_hearing_index	Griffiths index: hearing	decimal	0	200	999		3000	yes	3508
89	fu2	FU2_Griffith_eye_index	Griffiths index: eye	decimal	0	200	999		3000	yes	3509
90	fu2	FU2_Griffith_cognition_index	Griffiths index: cognition	decimal	0	200	999		3000	yes	3510
91	fu2	FU2_GQ_tot	Griffiths quotient	decimal	5	151	999		3000	yes	3511
92	fu2	FU2_Dev_test_comments	Comments	text / text_area					3000	yes	3512
93	fu2	FU2_SM_findings	Sensory motor findings	ordinal / choice_select	0	3			3000	yes	3513
94	fu2	FU2_CP_suspect	CP suspect	boolean	0 = no, 1 = yes				3000	yes	3514
95	fu2	FU2_CP_Degree	Palisano score	integer / choice_radio	1	5	9		3000	yes	3515
96	fu2	FU2_Kindof_CP	Type of CP	integer / choice_radio	0	4			3000	yes	3516
97	fu2	FU2_Spastic_CP_2020	Spastic CP (as of 2020)	ordinal / choice_radio	0 = Unilateral, 1 = Bilateral			2014	3000	yes	3517
98	fu2	FU2_CP_Spastic_Unilateral_LR	Unilateral Spastic CP left or right	integer / choice_radio	1 = L, 2 = R			2014	3000	yes	3518
99	fu2	FU2_Dyskinetic_CP	Dyskinetic CP	ordinal / choice_radio	1	3			3000	yes	3519
100	fu2	FU2_Non_CP_abn1	Non-CP abnormality: tone or reflexes	boolean	0 = no, 1 = yes				3000	yes	3520
101	fu2	FU2_Non_CP_abn2	Non-CP abnormality: tone and reflexes, but not CP	boolean	0 = no, 1 = yes				3000	yes	3521
102	fu2	FU2_Non_CP_abn3	Non-CP abnormality: Clumsy fine motor performance	boolean	0 = no, 1 = yes				3000	yes	3522
103	fu2	FU2_Non_CP_abn4	Non-CP abnormality: Clumsy gross motor performance	boolean	0 = no, 1 = yes				3000	yes	3523
104	fu2	FU2_Neurodev	Other neurodev. abnormalities	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3525
105	fu2	FU2_Neurodev_specific	Specifics of other	text / text_area					3000	yes	3525
106	fu2	FU2_Therapy	Therapy	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3527
107	fu2	FU2_Therapy1	Physical therapy	boolean	0 = no, 1 = yes				3000	yes	3528
108	fu2	FU2_Therapy1_age	Physical therapy-age	integer	0	36	999		3000	yes	3529
109	fu2	FU2_Therapy1_ongoing	Physical therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3530
110	fu2	FU2_Therapy1_duration	Physical therapy-Duration	integer	0	24	999		3000	yes	3531
111	fu2	FU2_Therapy2	Early intervention	boolean	0 = no, 1 = yes				3000	yes	3532
112	fu2	FU2_Therapy2_age	Early intervention-age	integer	0	36	999		3000	yes	3533
113	fu2	FU2_Therapy2_ongoing	Early intervention ongoing	boolean	0 = no, 1 = yes				3000	yes	3534
114	fu2	FU2_Therapy2_duration	Early intervention-Duration	integer	0	24	999		3000	yes	3535
115	fu2	FU2_Therapy3	Occupational therapy	boolean	0 = no, 1 = yes				3000	yes	3536
116	fu2	FU2_Therapy3_age	Occupational therapy-age	integer	0	36	999		3000	yes	3537
117	fu2	FU2_Therapy3_ongoing	Occupational therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3538
118	fu2	FU2_Therapy3_duration	Occupational therapy-Duration	integer	0	24	999		3000	yes	3539
119	fu2	FU2_Therapy6	Child psychiatry therapy	boolean	0 = no, 1 = yes				3000	yes	3540
120	fu2	FU2_Therapy6_age	Child psychiatry therapy-age	integer	0	36	999		3000	yes	3541
121	fu2	FU2_Therapy6_ongoing	Child psychiatry therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3542
122	fu2	FU2_Therapy6_duration	Child psychiatry therapy-Duration	integer	0	24	999		3000	yes	3543
123	fu2	FU2_Therapy7	Other therapy	boolean	0 = no, 1 = yes				3000	yes	3544
124	fu2	FU2_Therapy7_specific	Specifics of other therapy	text / text_field					3000	yes	3545
125	fu2	FU2_Therapy7_age	Other therapy-age	integer	0	36	999		3000	yes	3546
126	fu2	FU2_Therapy7_ongoing	Other therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	3547
127	fu2	FU2_Therapy7_duration	Other therapy-Duration	integer	0	24	999		3000	yes	3548
128	fu2	FU2_Visual_problems	Visual problems	ordinal / choice_radio	0 = none, 1 = moderate, 2 = severe				3000	yes	3549
129	fu2	FU2_Lang_test	Lang test	ordinal / choice_radio	0	2	9		3000	yes	3550
130	fu2	FU2_Hearing_problems	Hearing problems	ordinal / choice_radio	0 = none, 1 = moderate, 2 = severe				3000	yes	3551
131	fu2	FU2_Rehosp	Rehospitalization	ordinal / choice_radio	0 = never, 1 = once, 2 = several times				3000	yes	3552
132	fu2	FU2_Rehosp_specific	Specifics to rehospitalization	text / text_area					3000	yes	3553
133	fu2	FU2_Ropsurg	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3554
134	fu2	FU2_VPshunt	VP shunt	boolean / choice_radio	0 = no, 1 = yes				3000	yes	3555
135	fu2	FU2_Comment	Comments	text / text_area					3000	yes	3556
136	fu2	FU2_Email	E-mail of examiner	text / text_field					3000	no
137	fu2	FU2_DS_lockdate		date	0	0			3000	no
138	fu2	FU2_NDI_manual	Neurodevelopmental impairment	ordinal / choice_radio	0	2	9		3000	no
139	fu2	FU2_NDI_comment	Comment to neurodevelopmental impairment classification	text / text_area			unknown		3000	no
140	fu2	FU2_Repeat_surgery	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
141	fu2	FU2_Catheter_intervention	Catheter Intervention	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
142	fu2	FU2_Treat_cardio_name	Name of Treating cardiologist	text / text_field				2019	3000	no
143	fu2	FU2_Treat_cardio_email	E-mail of cardiologist	text / text_field				2019	3000	no
144	fu2	FU2_Cardiac_medication_none	Cardiac Medication: None	boolean	0 = no, 1 = yes				3000	no
145	fu2	FU2_Cardiac_medication_diuretics	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	no
146	fu2	FU2_Cardiac_medication_sildenafil	Cardiac Medication: Sildenafil	boolean	0 = no, 1 = yes				3000	no
147	fu2	FU2_Cardiac_medication_ace_inhibitor	Cardiac Medication: ACE Inhibitor	boolean	0 = no, 1 = yes				3000	no
148	fu2	FU2_Cardiac_medication_digoxin	Cardiac Medication: Digoxin	boolean	0 = no, 1 = yes				3000	no
149	fu2	FU2_Cardiac_medication_beta_blocker	Cardiac Medication: Beta-Blocker	boolean	0 = no, 1 = yes				3000	no
150	fu2	FU2_Cardiac_medication_other	Cardiac Medication: Other	boolean	0 = no, 1 = yes				3000	no
151	fu2	FU2_Cardiac_medication_other_specific	Cardiac Medication: Specifics of other	text / text_field					3000	no
152	fu2	FU2_Gi_tube_feeding	Gastrointestinal tube feeding	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no

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