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Version of 27.04.2024. Last major change:

Nr.	Dataset	Item	Description	Type	Min	Max	Unknown	Start	End	Export	Export
1	fu1	FU1_Test_Upload	Upload parental assessment form in lieu of recording clinical consultation	boolean	0 = no, 1 = yes			2019	3000	yes	2216
2	fu1	FU1_Dev_test_age_text		text / text_field					3000	no
3	fu1	FU1_MDI_index	BSID II MDI index	integer	49	151	999		3000	no
4	fu1	FU1_MDI_diff_calc		text / text_field					3000	no
5	fu1	FU1_PDI_index	BSID II PDI index	integer	49	151	999		3000	no
6	fu1	FU1_PDI_diff_calc		text / text_field					3000	no
7	fu1	FU1_B3_cog_scaled	Bayley III Cog scaled score	integer	0	0			3000	no
8	fu1	FU1_B3_cog_comp	Bayley III Cog composit score	integer	0	0			3000	no
9	fu1	FU1_B3_rc_scaled	Bayley III RC scaled	integer	0	0			3000	no
10	fu1	FU1_B3_ec_scaled	Bayley III EC scaled	integer	0	0			3000	no
11	fu1	FU1_B3_lang_comp	Bayley III Lang composite score	integer	0	0			3000	no
12	fu1	FU1_B3_fm_scaled	Bayley III FM scaled	integer	0	0			3000	no
13	fu1	FU1_B3_gm_scaled	Bayley III GM scaled	integer	0	0			3000	no
14	fu1	FU1_B3_mot_comp	Bayley III Mot composite score	integer	0	0			3000	no
15	fu1	FU1_B3_cog_scaled_ref	Bayley III cognitive scaled score	integer	0	0			3000	yes	2405
16	fu1	FU1_B3_rc_scaled_ref	Bayley III RC scaled	decimal	0	0			3000	yes	2410
17	fu1	FU1_B3_ec_scaled_ref	Bayley III EC scaled	integer	0	0			3000	yes	2415
18	fu1	FU1_B3_fm_scaled_ref	Bayley III FM scaled	integer	0	0			3000	yes	2420
19	fu1	FU1_B3_gm_scaled_ref	Bayley III GM scaled	integer	0	0			3000	yes	2425
20	fu1	FU1_B3_lang_scaled	Bayley III Lang composite score	integer	0	0			3000	no
21	fu1	FU1_B3_mot_scaled	Bayley III motor scaled	decimal	0	0			3000	no
22	fu1	FU1_B3_cog_comp_ref	Bayley III cognitive composite	decimal	0	0			3000	yes	2440
23	fu1	FU1_B3_lang_comp_ref	Bayley III language composite	decimal	0	0			3000	yes	2445
24	fu1	FU1_B3_mot_comp_ref	Bayley III motor composite	decimal	0	0			3000	yes	2450
25	fu1	FU1_GQ_nomotor_calc	Griffiths quotient w/o motor component	decimal	2	0			3000	yes	2510
26	fu1	FU1_Spastic_CP	Spastic CP	ordinal / choice_radio	1	6			2013	yes	2520
27	fu1	FU1_Ataxic_CP	Ataxic CP	ordinal / choice_radio	1 = Ataxia, 2 = Hemitaxia				3000	yes	2530
28	fu1	FU1_Monoplegia_LR	Monoplegia left or right	integer	1	2			2013	yes	2535
29	fu1	FU1_Hemiplegia_LR	Hemiplegia left or right	integer	1	2			2013	yes	2540
30	fu1	FU1_Visual_problems_glasses	Visual problems	integer	0	0			3000	no
31	fu1	FU1_Visus_E_Haken_R	E-Haken: right	decimal	0	0			3000	no
32	fu1	FU1_Visus_E_Haken_L	E-Haken: left	decimal	0	0			3000	no
33	fu1	FU1_Visus_Stycar_R	Stycar: right	decimal	0	0			3000	no
34	fu1	FU1_Visus_Stycar_L	Stycar: left	decimal	0	0			3000	no
35	fu1	FU1_Audiometry	lang test	integer	0	0			3000	yes	2735
36	fu1	FU1_Audiometry_specific	hearing problems	integer	0	0			3000	yes	2740
37	fu1	FU1_ENT_txt	result of specialist exam	text / text_field					3000	yes	2750
38	fu1	FU1_ENT_date	date of specialist exam	date	0	0			3000	no
39	fu1	FU1_NDI	Neurodevelopmental impairment score	ordinal / choice_radio	0 = no, 1 = moderate, 2 = severe				3000	yes	2780
40	fu1	FU1_Last_change		date	0	0			3000	no
41	fu1	FU1_DS_status		integer	0	0			3000	no
42	fu1	FU1_DS_lockdate		date	0	0			3000	no
43	fu1	FU1_Error_report		fu1ErrorReport /	0	0			3000	no
44	fu1	FU1_Errors		integer	0	0			3000	no
45	fu1	FU1_Errorlist_ignore		integer	0	0			3000	no
46	fu1	FU1_Check		integer	0	2	9		3000	no
47	fu1	FU1_NDI_manual	Neurodevelopmental impairment	ordinal / choice_radio	0	2	9		3000	no
48	fu1	FU1_NDI_comment	Comment to neurodevelopmental impairment classification	text / text_area			unknown		3000	no
49	fu1	FU1_Date		date				2000	3000	no
50	fu1	FU1_Age_calc	Corrected age at FU	decimal	0	48			3000	yes	5501
51	fu1	FU1_Examiner1	Examiner: Physician	boolean	0 = no, 1 = yes				3000	yes	5502
52	fu1	FU1_Examiner2	Examiner: Psychologist	boolean	0 = no, 1 = yes				3000	yes	5503
53	fu1	FU1_Examiner3	Examiner: Physiotherapist	boolean	0 = no, 1 = yes				3000	yes	5504
54	fu1	FU1_Examiner4	Examiner: Pediatrician in private practice	boolean	0 = no, 1 = yes				3000	yes	5505
55	fu1	FU1_Examiner5	Examiner: Other	boolean	0 = no, 1 = yes				3000	yes	5506
56	fu1	FU1_Examiner5_specific	Examiner: Specifics of other	text / text_field					3000	yes	5507
57	fu1	FU1_Examiner_name	Name of examiner	text / text_field					3000	yes	5508
58	fu1	SES_Education_mother1	Highest education mother	text / choice_select			unknown	2000	3000	no
59	fu1	SES_Occupation_mother1	Current occupation mother	text / text_field			unknown	2000	3000	no
60	fu1	SES_Score_mother1	SES Score of mother	integer	1	6	9	2000	3000	no
61	fu1	SES_Education_father1	Training basis for current occupation father	text / choice_select			unknown	2000	3000	no
62	fu1	SES_Occupation_father1	Current occupation father	text / text_field			unknown	2000	3000	no
63	fu1	SES_Score_father1	SES Score of father	integer	1	6	9	2000	3000	no
64	fu1	FU1_Weight	Weight	decimal	4	25	99		3000	yes	5515
65	fu1	FU1_Weight_zscore	Weight z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5516
66	fu1	FU1_Length	Length	decimal	50	110	999		3000	yes	5517
67	fu1	FU1_Length_zscore	length z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5518
68	fu1	FU1_Dev_test	Development test	ordinal / choice_select	0	4			3000	yes	5518
69	fu1	FU1_Head_circ	Head circumference	decimal	40	60	99		3000	yes	5519
70	fu1	FU1_poorComp	Poor complience	boolean	0 = no, 1 = yes				3000	yes	5519
71	fu1	FU1_Head_circ_zscore	head circumference z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5520
72	fu1	FU1_Dev_test_date	Development test date	date	0	0			3000	yes	5520
73	fu1	FU1_Dev_test_age	Age at developmental test	decimal	0	0			3000	yes	5521
74	fu1	FU1_MDI_raw	BSID II MDI raw	integer	0	200	999		3000	yes	5522
75	fu1	FU1_PDI_raw	BSID II PDI raw	integer	0	200	999		3000	yes	5523
76	fu1	FU1_MDI_index_ref	BSID II MDI index	integer	49	151	999		3000	yes	5524
77	fu1	FU1_PDI_index_ref	BSID II PDI index	integer	49	151	999		3000	yes	5525
78	fu1	FU1_Treat_cardio_name	Name of Treating cardiologist	text / text_field				2019	3000	no
79	fu1	FU1_B3_cog_raw	Bayley III Cog. raw	integer	1	91	999		3000	yes	5526
80	fu1	FU1_B3_rc_raw	Bayley III RC raw	integer	1	91	999		3000	yes	5527
81	fu1	FU1_B3_ec_raw	Bayley III EC raw	integer	1	91	999		3000	yes	5528
82	fu1	FU1_B3_fm_raw	Bayley III FM raw	integer	1	91	999		3000	yes	5529
83	fu1	FU1_B3_gm_raw	Bayley III GM raw	integer	1	91	999		3000	yes	5530
84	fu1	FU1_Treat_cardio_email	E-mail of cardiologist	text / text_field				2019	3000	no
85	fu1	FU1_Griffith_motor_raw	Griffiths raw: motor	decimal	0	200	999		3000	yes	5531
86	fu1	FU1_Griffith_social_raw	Griffiths raw: social	decimal	0	200	999		3000	yes	5532
87	fu1	FU1_Griffith_hearing_raw	Griffiths raw: hearing	decimal	0	200	999		3000	yes	5533
88	fu1	FU1_Griffith_eye_raw	Griffiths raw: eye	decimal	0	200	999		3000	yes	5534
89	fu1	FU1_Griffith_cognition_raw	Griffiths raw: cognition	decimal	0	200	999		3000	yes	5535
90	fu1	FU1_Griffith_motor_index	Griffiths index: motor	decimal	0	200	999		3000	yes	5536
91	fu1	FU1_Griffith_social_index	Griffiths index: social	decimal	0	200	999		3000	yes	5537
92	fu1	FU1_Griffith_hearing_index	Griffiths index: hearing	decimal	0	200	999		3000	yes	5538
93	fu1	FU1_Griffith_eye_index	Griffiths index: eye	decimal	0	200	999		3000	yes	5539
94	fu1	FU1_Griffith_cognition_index	Griffiths index: cognition	decimal	0	200	999		3000	yes	5540
95	fu1	FU1_GQ_tot	Griffiths quotient	decimal	0	0			3000	yes	5541
96	fu1	FU1_Dev_test_comments	Comments	text / text_area					3000	yes	5542
97	fu1	FU1_SM_findings	Sensory motor findings	ordinal / choice_select	0	3			3000	yes	5543
98	fu1	FU1_CP_suspect	CP suspect	boolean	0 = no, 1 = yes				3000	yes	5544
99	fu1	FU1_CP_Degree	Palisano score	integer / choice_radio	0	5			3000	yes	5545
100	fu1	FU1_Kindof_CP	Type of CP	integer / choice_radio	0	4			3000	yes	5546
101	fu1	FU1_Spastic_CP_2020	Spastic CP (as of 2020)	ordinal / choice_radio	0 = Unilateral, 1 = Bilateral			2014	3000	yes	5547
102	fu1	FU1_CP_Spastic_Unilateral_LR	Unilateral Spastic CP left or right	integer / choice_radio	1 = L, 2 = R			2014	3000	yes	5548
103	fu1	FU1_Dyskinetic_CP	Dyskinetic CP	ordinal / choice_radio	1	3			3000	yes	5549
104	fu1	FU1_Non_CP_abn1	Non-CP abnormality: tone or reflexes	boolean	0 = no, 1 = yes				3000	yes	5550
105	fu1	FU1_Non_CP_abn2	Non-CP abnormality: tone and reflexes, but not CP	boolean	0 = no, 1 = yes				3000	yes	5551
106	fu1	FU1_Non_CP_abn3	Non-CP abnormality: Clumsy fine motor performance	boolean	0 = no, 1 = yes				3000	yes	5552
107	fu1	FU1_Non_CP_abn4	Non-CP abnormality: Clumsy gross motor performance	boolean	0 = no, 1 = yes				3000	yes	5553
108	fu1	FU1_Neurodev	Other neurodev. abnormalities	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5555
109	fu1	FU1_Neurodev_specific	Specifics of other	text / text_area					3000	yes	5556
110	fu1	FU1_Therapy	Therapy	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5557
111	fu1	FU1_Therapy1	Physical therapy	boolean	0 = no, 1 = yes				3000	yes	5558
112	fu1	FU1_Therapy1_age	Physical therapy-age	integer	0	36	999		3000	yes	5559
113	fu1	FU1_Therapy1_ongoing	Physical therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5560
114	fu1	FU1_Therapy1_duration	Physical therapy-Duration	integer	0	24	999		3000	yes	5561
115	fu1	FU1_Therapy2	Early intervention	boolean	0 = no, 1 = yes				3000	yes	5562
116	fu1	FU1_Therapy2_age	Early intervention-age	integer	0	36	999		3000	yes	5563
117	fu1	FU1_Therapy2_ongoing	Early intervention ongoing	boolean	0 = no, 1 = yes				3000	yes	5564
118	fu1	FU1_Therapy2_duration	Early intervention-Duration	integer	0	24	999		3000	yes	5565
119	fu1	FU1_Therapy3	Occupational therapy	boolean	0 = no, 1 = yes				3000	yes	5566
120	fu1	FU1_Therapy3_age	Occupational therapy-age	integer	0	36	999		3000	yes	5567
121	fu1	FU1_Therapy3_ongoing	Occupational therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5568
122	fu1	FU1_Therapy3_duration	Occupational therapy-Duration	integer	0	24	999		3000	yes	5569
123	fu1	FU1_Therapy6	Child psychiatry therapy	boolean	0 = no, 1 = yes				3000	yes	5570
124	fu1	FU1_Therapy6_age	Child psychiatry therapy-age	integer	0	36	999		3000	yes	5571
125	fu1	FU1_Therapy6_ongoing	Child psychiatry therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5572
126	fu1	FU1_Therapy6_duration	Child psychiatry therapy-Duration	integer	0	24	999		3000	yes	5573
127	fu1	FU1_Therapy7	Other therapy	boolean	0 = no, 1 = yes				3000	yes	5574
128	fu1	FU1_Therapy7_specific	Specifics of other therapy	text / text_field					3000	yes	5575
129	fu1	FU1_Therapy7_age	Other therapy-age	integer	0	36	999		3000	yes	5576
130	fu1	FU1_Therapy7_ongoing	Other therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5577
131	fu1	FU1_Therapy7_duration	Other therapy-Duration	integer	0	24	999		3000	yes	5578
132	fu1	FU1_Visual_problems	Visual problems	ordinal / choice_radio	0	2	9		3000	yes	5579
133	fu1	FU1_Lang_test	Lang test	ordinal / choice_radio	0	2	9		3000	yes	5580
134	fu1	FU1_Hearing_problems	Hearing problems	ordinal / choice_radio	0	2	9		3000	yes	5581
135	fu1	FU1_Rehosp	Rehospitalization	ordinal / choice_radio	0 = never, 1 = once, 2 = several times				3000	yes	5582
136	fu1	FU1_Rehosp_specific	specifics to rehospitalization	text / text_area					3000	yes	5583
137	fu1	FU1_Repeat_surgery	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
138	fu1	FU1_Catheter_intervention	Catheter Intervention	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
139	fu1	FU1_Cardiac_medication_none	Cardiac Medication: None	boolean	0 = no, 1 = yes				3000	no
140	fu1	FU1_Cardiac_medication_diuretics	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	no
141	fu1	FU1_Cardiac_medication_sildenafil	Cardiac Medication: Sildenafil	boolean	0 = no, 1 = yes				3000	no
142	fu1	FU1_Cardiac_medication_ace_inhibitor	Cardiac Medication: ACE Inhibitor	boolean	0 = no, 1 = yes				3000	no
143	fu1	FU1_Cardiac_medication_digoxin	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	no
144	fu1	FU1_Cardiac_medication_beta_blocker	Cardiac Medication: Beta-Blocker	boolean	0 = no, 1 = yes				3000	no
145	fu1	FU1_Cardiac_medication_other	Cardiac Medication: Other	boolean	0 = no, 1 = yes				3000	no
146	fu1	FU1_Gi_tube_feeding	Gastrointestinal tube feeding	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
147	fu1	FU1_Ropsurg	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5620
148	fu1	FU1_Cardiac_medication_other_specific	Cardiac Medication: Specifics of other	text / text_field					3000	no
149	fu1	FU1_VPshunt	VP shunt	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5621
150	fu1	FU1_Comment	Comments	text / text_area					3000	yes	5622
151	fu1	FU1_Email	E-mail of examiner	text / text_field					3000	no
152	fu1	FU1_Files	Test upload	text / static_text			unknown		3000	no

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