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Version of 22.12.2024. Last major change:

Nr.	Dataset	Item	Description	Type	Min	Max	Unknown	Start	End	Export	Export
1	patient	P_Data_source	Data source marker	ordinal / choice_radio	0 = mnds, 1 = b, 2 = bExtra			2000	3000	no
2	patient	__P_kp_PatientID	DB primary key	integer	1	0		2000	3000	yes	5
3	patient	P_Neo_Dataset	Describes dataset ("mnds", "asp", "fu1", etc.)	text / choice_radio				2000	3000	no
4	patient	P_SNNID	SNN-ID (leave empty if new dataset!)	text / text_field				2000	3000	yes	10
5	patient	P_MNDS_type	MNDS type	ordinal / choice_radio	1	4		2000	2016	no
6	patient	P_Informed_consent	Informed consent given	ordinal / choice_radio	1	4		2015	3000	yes	15
7	patient	P_Date_of_birth	Date of birth	date	0	0		2000	3000	yes	20
8	patient	P_Month_of_birth	Month of birth	integer	1	12		2000	3000	yes	20
9	patient	P_Center_Nr	Preset center nr	text / text_field				2000	3000	yes	22
10	patient	P_Register	Register	ordinal / choice_radio	1 = mnds, 2 = asp, 3 = mndsb34, 4 = orchid			2000	3000	yes	22
11	patient	P_Center_Nr_anonym	Encrypted center number	integer	1	15		2000	3000	yes	23
12	patient	P_Outcome_study	Study group selector	boolean	0 = no, 1 = yes			2000	3000	no
13	patient	P_Year_of_birth	Year of birth	integer	2000	2030		2000	3000	yes	25
14	patient	P_MNDS_exclude	Exclude from overnight evaluation	boolean	0 = no, 1 = yes			2000	3000	yes	32
15	patient	P_Asp_Exclude	Exclude from evaluation	boolean	0 = no, 1 = yes			2011	3000	no
16	patient	P_Patient_no	Patient number	text / text_field				2000	3000	yes	35
17	patient	P_Ahv_Number	AHV Number (Orchid registry only)	regex / text_field			999.9999.9999.99	2019	3000	no
18	patient	P_Day_of_admission	Day of admission	integer	1	365	999	2000	3000	yes	50
19	patient	P_Place_of_birth	Place of birth	text / text_field				2000	3000	yes	51
20	patient	P_Time_of_birth	Time at birth (only ASP)	time	0	23		2012	3000	yes	52
21	patient	P_Birth_location	Birth location	ordinal / choice_radio	1 = inborn, 2 = outborn			2001	3000	yes	55
22	patient	P_Study	RCT study coding	ordinal / choice_radio	1 = epo, 2 = albino, 3 = copca, 4 = music			2000	3000	yes	56
23	patient	P_FUx_Location		text / choice_select					3000	no
24	patient	P_GA_weeks	Weeks of gestation	integer	22	42		2000	3000	yes	60
25	patient	P_GA_days	Days after weeks	integer	0	6		2000	3000	yes	65
26	patient	P_Birth_weight	Birth weight in g	integer	100	8000		2000	3000	yes	70
27	patient	P_Sex	Sex	ordinal / choice_radio	1	2	9	2000	3000	yes	71
28	patient	P_Died_in_del		ordinal / choice_radio					3000	no
29	patient	P_Number_of_infants	Number of infants in this birth	integer	1	6		2000	3000	yes	75
30	patient	P_Rank	Order of births	text / text_field				2000	3000	yes	80
31	patient	P_Hospital_ID	Preset hospital ID	text / choice_select				2000	3000	yes	81
32	patient	P_Identifier_mother	ID text/number for mother dataset (not in use)	text / text_field				2020	3000	no
33	patient	P_FU1_location	Location of follow-up 1	text / text_field				2000	3000	yes	85
34	patient	P_FU2_location	Location of follow-up 2	text / text_field				2000	3000	yes	90
35	patient	P_FU5_location	Location of follow-up 5	text / text_field				2000	3000	yes	95
36	patient	P_FU1_performed	Follow-up 1 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	100
37	patient	P_FU2_performed	Follow-up 2 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	105
38	patient	P_FU5_performed	Follow-up 5 has taken place	boolean	0 = no, 1 = yes			2000	3000	yes	110
39	patient	P_SDQ_performed	SDQ has taken place	boolean	0 = no, 1 = yes			2000	3000	no
40	patient	P_FUp_performed	Parental form filled in	boolean	0 = no, 1 = yes			2000	3000	no
41	patient	F_FU1_status	Recruitment status	text / text_field				2000	3000	no
42	patient	F_FU2_status	Recruitment status	text / text_field				2000	3000	no
43	patient	F_FU5_status	Recruitment status	text / text_field				2000	3000	no
44	patient	P_Bw_Zscore	Birth weight z-score (Voigt 2006)	decimal	-6	6		2000	3000	yes	115
45	patient	P_SGA	Birth weight < 10th percentile (Voigt 2006)	boolean	0 = no, 1 = yes			2000	3000	yes	115
46	patient	P_Died	Child died at any time	boolean	0 = no, 1 = yes			2000	3000	yes	116
47	patient	SES_Score_total	Total of all available SES scores	integer	2	12		2000	3000	yes	139
48	patient	P_DS_duplicate	Original kP	integer				2000	3000	yes	615
49	patient	P_DS_lockdate		date					3000	no
50	fu1	FU1_Test_Upload	Upload parental assessment form in lieu of recording clinical consultation	boolean	0 = no, 1 = yes			2019	3000	yes	2216
51	fu1	FU1_Dev_test_age_text		text / text_field					3000	no
52	fu1	FU1_MDI_index	BSID II MDI index	integer	49	151	999		3000	no
53	fu1	FU1_MDI_diff_calc		text / text_field					3000	no
54	fu1	FU1_PDI_index	BSID II PDI index	integer	49	151	999		3000	no
55	fu1	FU1_PDI_diff_calc		text / text_field					3000	no
56	fu1	FU1_B3_cog_scaled	Bayley III Cog scaled score	integer	0	0			3000	no
57	fu1	FU1_B3_cog_comp	Bayley III Cog composit score	integer	0	0			3000	no
58	fu1	FU1_B3_rc_scaled	Bayley III RC scaled	integer	0	0			3000	no
59	fu1	FU1_B3_ec_scaled	Bayley III EC scaled	integer	0	0			3000	no
60	fu1	FU1_B3_lang_comp	Bayley III Lang composite score	integer	0	0			3000	no
61	fu1	FU1_B3_fm_scaled	Bayley III FM scaled	integer	0	0			3000	no
62	fu1	FU1_B3_gm_scaled	Bayley III GM scaled	integer	0	0			3000	no
63	fu1	FU1_B3_mot_comp	Bayley III Mot composite score	integer	0	0			3000	no
64	fu1	FU1_B3_cog_scaled_ref	Bayley III cognitive scaled score	integer	0	0			3000	yes	2405
65	fu1	FU1_B3_rc_scaled_ref	Bayley III RC scaled	decimal	0	0			3000	yes	2410
66	fu1	FU1_B3_ec_scaled_ref	Bayley III EC scaled	integer	0	0			3000	yes	2415
67	fu1	FU1_B3_fm_scaled_ref	Bayley III FM scaled	integer	0	0			3000	yes	2420
68	fu1	FU1_B3_gm_scaled_ref	Bayley III GM scaled	integer	0	0			3000	yes	2425
69	fu1	FU1_B3_lang_scaled	Bayley III Lang composite score	integer	0	0			3000	no
70	fu1	FU1_B3_mot_scaled	Bayley III motor scaled	decimal	0	0			3000	no
71	fu1	FU1_B3_cog_comp_ref	Bayley III cognitive composite	decimal	0	0			3000	yes	2440
72	fu1	FU1_B3_lang_comp_ref	Bayley III language composite	decimal	0	0			3000	yes	2445
73	fu1	FU1_B3_mot_comp_ref	Bayley III motor composite	decimal	0	0			3000	yes	2450
74	fu1	FU1_GQ_nomotor_calc	Griffiths quotient w/o motor component	decimal	2	0			3000	yes	2510
75	fu1	FU1_Spastic_CP	Spastic CP	ordinal / choice_radio	1	6			2013	yes	2520
76	fu1	FU1_Ataxic_CP	Ataxic CP	ordinal / choice_radio	1 = Ataxia, 2 = Hemitaxia				3000	yes	2530
77	fu1	FU1_Monoplegia_LR	Monoplegia left or right	integer	1	2			2013	yes	2535
78	fu1	FU1_Hemiplegia_LR	Hemiplegia left or right	integer	1	2			2013	yes	2540
79	fu1	FU1_Visual_problems_glasses	Visual problems	integer	0	0			3000	no
80	fu1	FU1_Visus_E_Haken_R	E-Haken: right	decimal	0	0			3000	no
81	fu1	FU1_Visus_E_Haken_L	E-Haken: left	decimal	0	0			3000	no
82	fu1	FU1_Visus_Stycar_R	Stycar: right	decimal	0	0			3000	no
83	fu1	FU1_Visus_Stycar_L	Stycar: left	decimal	0	0			3000	no
84	fu1	FU1_Audiometry	lang test	integer	0	0			3000	yes	2735
85	fu1	FU1_Audiometry_specific	hearing problems	integer	0	0			3000	yes	2740
86	fu1	FU1_ENT_txt	result of specialist exam	text / text_field					3000	yes	2750
87	fu1	FU1_ENT_date	date of specialist exam	date	0	0			3000	no
88	fu1	FU1_NDI	Neurodevelopmental impairment score	ordinal / choice_radio	0 = no, 1 = moderate, 2 = severe				3000	yes	2780
89	fu1	FU1_Last_change		date	0	0			3000	no
90	fu1	FU1_DS_status		integer	0	0			3000	no
91	fu1	FU1_DS_lockdate		date	0	0			3000	no
92	fu1	FU1_Error_report		fu1ErrorReport /	0	0			3000	no
93	fu1	FU1_Errors		integer	0	0			3000	no
94	fu1	FU1_Errorlist_ignore		integer	0	0			3000	no
95	fu1	FU1_Check		integer	0	2	9		3000	no
96	fu1	FU1_NDI_manual	Neurodevelopmental impairment	ordinal / choice_radio	0	2	9		3000	no
97	fu1	FU1_NDI_comment	Comment to neurodevelopmental impairment classification	text / text_area			unknown		3000	no
98	fu1	FU1_Date		date				2000	3000	no
99	fu1	FU1_Age_calc	Corrected age at FU	decimal	0	48			3000	yes	5501
100	fu1	FU1_Examiner1	Examiner: Physician	boolean	0 = no, 1 = yes				3000	yes	5502
101	fu1	FU1_Examiner2	Examiner: Psychologist	boolean	0 = no, 1 = yes				3000	yes	5503
102	fu1	FU1_Examiner3	Examiner: Physiotherapist	boolean	0 = no, 1 = yes				3000	yes	5504
103	fu1	FU1_Examiner4	Examiner: Pediatrician in private practice	boolean	0 = no, 1 = yes				3000	yes	5505
104	fu1	FU1_Examiner5	Examiner: Other	boolean	0 = no, 1 = yes				3000	yes	5506
105	fu1	FU1_Examiner5_specific	Examiner: Specifics of other	text / text_field					3000	yes	5507
106	fu1	FU1_Examiner_name	Name of examiner	text / text_field					3000	yes	5508
107	fu1	SES_Education_mother1	Highest education mother	text / choice_select			unknown	2000	3000	no
108	fu1	SES_Occupation_mother1	Current occupation mother	text / text_field			unknown	2000	3000	no
109	fu1	SES_Score_mother1	SES Score of mother	integer	1	6	9	2000	3000	no
110	fu1	SES_Education_father1	Training basis for current occupation father	text / choice_select			unknown	2000	3000	no
111	fu1	SES_Occupation_father1	Current occupation father	text / text_field			unknown	2000	3000	no
112	fu1	SES_Score_father1	SES Score of father	integer	1	6	9	2000	3000	no
113	fu1	FU1_Weight	Weight	decimal	4	25	99		3000	yes	5515
114	fu1	FU1_Weight_zscore	Weight z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5516
115	fu1	FU1_Length	Length	decimal	50	110	999		3000	yes	5517
116	fu1	FU1_Length_zscore	length z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5518
117	fu1	FU1_Dev_test	Development test	ordinal / choice_select	0	4			3000	yes	5518
118	fu1	FU1_Head_circ	Head circumference	decimal	40	60	99		3000	yes	5519
119	fu1	FU1_poorComp	Poor complience	boolean	0 = no, 1 = yes				3000	yes	5519
120	fu1	FU1_Head_circ_zscore	head circumference z-score Braegger et al. 2011	decimal / static_text	-10	10			3000	yes	5520
121	fu1	FU1_Dev_test_date	Development test date	date	0	0			3000	yes	5520
122	fu1	FU1_Dev_test_age	Age at developmental test	decimal	0	0			3000	yes	5521
123	fu1	FU1_MDI_raw	BSID II MDI raw	integer	0	200	999		3000	yes	5522
124	fu1	FU1_PDI_raw	BSID II PDI raw	integer	0	200	999		3000	yes	5523
125	fu1	FU1_MDI_index_ref	BSID II MDI index	integer	49	151	999		3000	yes	5524
126	fu1	FU1_PDI_index_ref	BSID II PDI index	integer	49	151	999		3000	yes	5525
127	fu1	FU1_Treat_cardio_name	Name of Treating cardiologist	text / text_field				2019	3000	yes	5525
128	fu1	FU1_B3_cog_raw	Bayley III Cog. raw	integer	1	91	999		3000	yes	5526
129	fu1	FU1_B3_rc_raw	Bayley III RC raw	integer	1	91	999		3000	yes	5527
130	fu1	FU1_B3_ec_raw	Bayley III EC raw	integer	1	91	999		3000	yes	5528
131	fu1	FU1_B3_fm_raw	Bayley III FM raw	integer	1	91	999		3000	yes	5529
132	fu1	FU1_B3_gm_raw	Bayley III GM raw	integer	1	91	999		3000	yes	5530
133	fu1	FU1_Treat_cardio_email	E-mail of cardiologist	text / text_field				2019	3000	yes	5530
134	fu1	FU1_Griffith_motor_raw	Griffiths raw: motor	decimal	0	200	999		3000	yes	5531
135	fu1	FU1_Griffith_social_raw	Griffiths raw: social	decimal	0	200	999		3000	yes	5532
136	fu1	FU1_Griffith_hearing_raw	Griffiths raw: hearing	decimal	0	200	999		3000	yes	5533
137	fu1	FU1_Griffith_eye_raw	Griffiths raw: eye	decimal	0	200	999		3000	yes	5534
138	fu1	FU1_Griffith_cognition_raw	Griffiths raw: cognition	decimal	0	200	999		3000	yes	5535
139	fu1	FU1_Griffith_motor_index	Griffiths index: motor	decimal	0	200	999		3000	yes	5536
140	fu1	FU1_Griffith_social_index	Griffiths index: social	decimal	0	200	999		3000	yes	5537
141	fu1	FU1_Griffith_hearing_index	Griffiths index: hearing	decimal	0	200	999		3000	yes	5538
142	fu1	FU1_Griffith_eye_index	Griffiths index: eye	decimal	0	200	999		3000	yes	5539
143	fu1	FU1_Griffith_cognition_index	Griffiths index: cognition	decimal	0	200	999		3000	yes	5540
144	fu1	FU1_GQ_tot	Griffiths quotient	decimal	0	0			3000	yes	5541
145	fu1	FU1_Dev_test_comments	Comments	text / text_area					3000	yes	5542
146	fu1	FU1_SM_findings	Sensory motor findings	ordinal / choice_select	0	3			3000	yes	5543
147	fu1	FU1_CP_suspect	CP suspect	boolean	0 = no, 1 = yes				3000	yes	5544
148	fu1	FU1_CP_Degree	Palisano score	integer / choice_radio	0	5			3000	yes	5545
149	fu1	FU1_Kindof_CP	Type of CP	integer / choice_radio	0	4			3000	yes	5546
150	fu1	FU1_Spastic_CP_2020	Spastic CP (as of 2020)	ordinal / choice_radio	0 = Unilateral, 1 = Bilateral			2014	3000	yes	5547
151	fu1	FU1_CP_Spastic_Unilateral_LR	Unilateral Spastic CP left or right	integer / choice_radio	1 = L, 2 = R			2014	3000	yes	5548
152	fu1	FU1_Dyskinetic_CP	Dyskinetic CP	ordinal / choice_radio	1	3			3000	yes	5549
153	fu1	FU1_Non_CP_abn1	Non-CP abnormality: tone or reflexes	boolean	0 = no, 1 = yes				3000	yes	5550
154	fu1	FU1_Non_CP_abn2	Non-CP abnormality: tone and reflexes, but not CP	boolean	0 = no, 1 = yes				3000	yes	5551
155	fu1	FU1_Non_CP_abn3	Non-CP abnormality: Clumsy fine motor performance	boolean	0 = no, 1 = yes				3000	yes	5552
156	fu1	FU1_Non_CP_abn4	Non-CP abnormality: Clumsy gross motor performance	boolean	0 = no, 1 = yes				3000	yes	5553
157	fu1	FU1_Neurodev	Other neurodev. abnormalities	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5555
158	fu1	FU1_Neurodev_specific	Specifics of other	text / text_area					3000	yes	5556
159	fu1	FU1_Therapy	Therapy	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5557
160	fu1	FU1_Therapy1	Physical therapy	boolean	0 = no, 1 = yes				3000	yes	5558
161	fu1	FU1_Therapy1_age	Physical therapy-age	integer	0	36	999		3000	yes	5559
162	fu1	FU1_Therapy1_ongoing	Physical therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5560
163	fu1	FU1_Therapy1_duration	Physical therapy-Duration	integer	0	24	999		3000	yes	5561
164	fu1	FU1_Therapy2	Early intervention	boolean	0 = no, 1 = yes				3000	yes	5562
165	fu1	FU1_Therapy2_age	Early intervention-age	integer	0	36	999		3000	yes	5563
166	fu1	FU1_Therapy2_ongoing	Early intervention ongoing	boolean	0 = no, 1 = yes				3000	yes	5564
167	fu1	FU1_Therapy2_duration	Early intervention-Duration	integer	0	24	999		3000	yes	5565
168	fu1	FU1_Therapy3	Occupational therapy	boolean	0 = no, 1 = yes				3000	yes	5566
169	fu1	FU1_Therapy3_age	Occupational therapy-age	integer	0	36	999		3000	yes	5567
170	fu1	FU1_Therapy3_ongoing	Occupational therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5568
171	fu1	FU1_Therapy3_duration	Occupational therapy-Duration	integer	0	24	999		3000	yes	5569
172	fu1	FU1_Therapy6	Child psychiatry therapy	boolean	0 = no, 1 = yes				3000	yes	5570
173	fu1	FU1_Therapy6_age	Child psychiatry therapy-age	integer	0	36	999		3000	yes	5571
174	fu1	FU1_Therapy6_ongoing	Child psychiatry therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5572
175	fu1	FU1_Therapy6_duration	Child psychiatry therapy-Duration	integer	0	24	999		3000	yes	5573
176	fu1	FU1_Therapy7	Other therapy	boolean	0 = no, 1 = yes				3000	yes	5574
177	fu1	FU1_Therapy7_specific	Specifics of other therapy	text / text_field					3000	yes	5575
178	fu1	FU1_Therapy7_age	Other therapy-age	integer	0	36	999		3000	yes	5576
179	fu1	FU1_Therapy7_ongoing	Other therapy ongoing	boolean	0 = no, 1 = yes				3000	yes	5577
180	fu1	FU1_Therapy7_duration	Other therapy-Duration	integer	0	24	999		3000	yes	5578
181	fu1	FU1_Visual_problems	Visual problems	ordinal / choice_radio	0	2	9		3000	yes	5579
182	fu1	FU1_Lang_test	Lang test	ordinal / choice_radio	0	2	9		3000	yes	5580
183	fu1	FU1_Hearing_problems	Hearing problems	ordinal / choice_radio	0	2	9		3000	yes	5581
184	fu1	FU1_Rehosp	Rehospitalization	ordinal / choice_radio	0 = never, 1 = once, 2 = several times				3000	yes	5582
185	fu1	FU1_Rehosp_specific	specifics to rehospitalization	text / text_area					3000	yes	5583
186	fu1	FU1_Repeat_surgery	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
187	fu1	FU1_Catheter_intervention	Catheter Intervention	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
188	fu1	FU1_Cardiac_medication_none	Cardiac Medication: None	boolean	0 = no, 1 = yes				3000	yes	5586
189	fu1	FU1_Cardiac_medication_diuretics	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	yes	5587
190	fu1	FU1_Cardiac_medication_sildenafil	Cardiac Medication: Sildenafil	boolean	0 = no, 1 = yes				3000	yes	5588
191	fu1	FU1_Cardiac_medication_ace_inhibitor	Cardiac Medication: ACE Inhibitor	boolean	0 = no, 1 = yes				3000	yes	5589
192	fu1	FU1_Cardiac_medication_digoxin	Cardiac Medication: Diuretics	boolean	0 = no, 1 = yes				3000	yes	5590
193	fu1	FU1_Cardiac_medication_beta_blocker	Cardiac Medication: Beta-Blocker	boolean	0 = no, 1 = yes				3000	yes	5591
194	fu1	FU1_Cardiac_medication_other	Cardiac Medication: Other	boolean	0 = no, 1 = yes				3000	yes	5592
195	fu1	FU1_Gi_tube_feeding	Gastrointestinal tube feeding	boolean / choice_radio	0 = no, 1 = yes			2019	3000	no
196	fu1	FU1_Ropsurg	Surgery for ROP	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5620
197	fu1	FU1_Cardiac_medication_other_specific	Cardiac Medication: Specifics of other	text / text_field					3000	yes	5620
198	fu1	FU1_VPshunt	VP shunt	boolean / choice_radio	0 = no, 1 = yes				3000	yes	5621
199	fu1	FU1_Comment	Comments	text / text_area					3000	yes	5622
200	fu1	FU1_Email	E-mail of examiner	text / text_field					3000	no
201	fu1	FU1_Files	Test upload	text / static_text			unknown		3000	no

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