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Data Structure Icon Raw Data Structure Export R Export Print Show definitions SQL version All years


Version of 20.05.2024. Last major change:
Nr. Dataset R Item Description Type Min Max Unknown Start End Export Export
1 fu1 fu1TestUpload fu1TestUpload Upload parental assessment form in lieu of recording clinical consultation boolean 0 = no, 1 = yes 2019 3000 yes 2216
2 fu1 fu1DevTestAgeText fu1DevTestAgeText text / text_field 3000 no
3 fu1 fu1MdiIndex fu1MdiIndex BSID II MDI index integer 49 151 999 3000 no
4 fu1 fu1MdiDiffCalc fu1MdiDiffCalc text / text_field 3000 no
5 fu1 fu1PdiIndex fu1PdiIndex BSID II PDI index integer 49 151 999 3000 no
6 fu1 fu1PdiDiffCalc fu1PdiDiffCalc text / text_field 3000 no
7 fu1 fu1B3CogScaled fu1B3CogScaled Bayley III Cog scaled score integer 0 0 3000 no
8 fu1 fu1B3CogComp fu1B3CogComp Bayley III Cog composit score integer 0 0 3000 no
9 fu1 fu1B3RcScaled fu1B3RcScaled Bayley III RC scaled integer 0 0 3000 no
10 fu1 fu1B3EcScaled fu1B3EcScaled Bayley III EC scaled integer 0 0 3000 no
11 fu1 fu1B3LangComp fu1B3LangComp Bayley III Lang composite score integer 0 0 3000 no
12 fu1 fu1B3FmScaled fu1B3FmScaled Bayley III FM scaled integer 0 0 3000 no
13 fu1 fu1B3GmScaled fu1B3GmScaled Bayley III GM scaled integer 0 0 3000 no
14 fu1 fu1B3MotCompRef fu1B3MotCompRef Bayley III Mot composite score integer 0 0 3000 no
15 fu1 fu1B3CogScaledRef fu1B3CogScaledRef Bayley III cognitive scaled score integer 0 0 3000 yes 2405
16 fu1 fu1B3RcScaledRef fu1B3RcScaledRef Bayley III RC scaled decimal 0 0 3000 yes 2410
17 fu1 fu1B3EcScaledRef fu1B3EcScaledRef Bayley III EC scaled integer 0 0 3000 yes 2415
18 fu1 fu1B3FmScaledRef fu1B3FmScaledRef Bayley III FM scaled integer 0 0 3000 yes 2420
19 fu1 fu1B3GmScaledRef fu1B3GmScaledRef Bayley III GM scaled integer 0 0 3000 yes 2425
20 fu1 fu1B3LangScaled fu1B3LangScaled Bayley III Lang composite score integer 0 0 3000 no
21 fu1 fu1B3MotScaled fu1B3MotScaled Bayley III motor scaled decimal 0 0 3000 no
22 fu1 fu1B3CogCompRef fu1B3CogCompRef Bayley III cognitive composite decimal 0 0 3000 yes 2440
23 fu1 fu1B3LangCompRef fu1B3LangCompRef Bayley III language composite decimal 0 0 3000 yes 2445
24 fu1 fu1B3MotCompRef fu1B3MotCompRef Bayley III motor composite decimal 0 0 3000 yes 2450
25 fu1 fu1GqNomotorCalc fu1GqNomotorCalc Griffiths quotient w/o motor component decimal 2 0 3000 yes 2510
26 fu1 fu1AtaxicCp fu1AtaxicCp Ataxic CP ordinal / choice_radio 1 = Ataxia, 2 = Hemitaxia 3000 yes 2530
27 fu1 fu1VisualProblemsGlasses fu1VisualProblemsGlasses Visual problems integer 0 0 3000 no
28 fu1 fu1VisusEHakenR fu1VisusEHakenR E-Haken: right decimal 0 0 3000 no
29 fu1 fu1VisusEHakenL fu1VisusEHakenL E-Haken: left decimal 0 0 3000 no
30 fu1 fu1VisusStycarR fu1VisusStycarR Stycar: right decimal 0 0 3000 no
31 fu1 fu1VisusStycarL fu1VisusStycarL Stycar: left decimal 0 0 3000 no
32 fu1 fu1Audiometry fu1Audiometry lang test integer 0 0 3000 yes 2735
33 fu1 fu1AudiometrySpecific fu1AudiometrySpecific hearing problems integer 0 0 3000 yes 2740
34 fu1 fu1EntTxt fu1EntTxt result of specialist exam text / text_field 3000 yes 2750
35 fu1 fu1EntDate fu1EntDate date of specialist exam date 0 0 3000 no
36 fu1 fu1Ndi fu1Ndi Neurodevelopmental impairment score ordinal / choice_radio 0 = no, 1 = moderate, 2 = severe 3000 yes 2780
37 fu1 fu1LastChange fu1LastChange date 0 0 3000 no
38 fu1 fu1DsStatus fu1DsStatus integer 0 0 3000 no
39 fu1 fu1DsLockdate fu1DsLockdate date 0 0 3000 no
40 fu1 fu1ErrorReport fu1ErrorReport fu1ErrorReport / 0 0 3000 no
41 fu1 fu1Errors fu1Errors integer 0 0 3000 no
42 fu1 fu1ErrorlistIgnore fu1ErrorlistIgnore integer 0 0 3000 no
43 fu1 fu1Check fu1Check integer 0 2 9 3000 no
44 fu1 fu1NdiManual fu1NdiManual Neurodevelopmental impairment ordinal / choice_radio 0 2 9 3000 no
45 fu1 fu1NdiComment fu1NdiComment Comment to neurodevelopmental impairment classification text / text_area unknown 3000 no
46 fu1 fu1Date fu1Date date 2000 3000 no
47 fu1 fu1AgeCalc fu1AgeCalc Corrected age at FU decimal 0 48 3000 yes 5501
48 fu1 fu1Examiner1 fu1Examiner1 Examiner: Physician boolean 0 = no, 1 = yes 3000 yes 5502
49 fu1 fu1Examiner2 fu1Examiner2 Examiner: Psychologist boolean 0 = no, 1 = yes 3000 yes 5503
50 fu1 fu1Examiner3 fu1Examiner3 Examiner: Physiotherapist boolean 0 = no, 1 = yes 3000 yes 5504
51 fu1 fu1Examiner4 fu1Examiner4 Examiner: Pediatrician in private practice boolean 0 = no, 1 = yes 3000 yes 5505
52 fu1 fu1Examiner5 fu1Examiner5 Examiner: Other boolean 0 = no, 1 = yes 3000 yes 5506
53 fu1 fu1Examiner5Specific fu1Examiner5Specific Examiner: Specifics of other text / text_field 3000 yes 5507
54 fu1 fu1ExaminerName fu1ExaminerName Name of examiner text / text_field 3000 yes 5508
55 fu1 sesEducationMother1 sesEducationMother1 Highest education mother text / choice_select unknown 2000 3000 no
56 fu1 sesOccupationMother1 sesOccupationMother1 Current occupation mother text / text_field unknown 2000 3000 no
57 fu1 sesScoreMother1 sesScoreMother1 SES Score of mother integer 1 6 9 2000 3000 no
58 fu1 sesEducationFather1 sesEducationFather1 Training basis for current occupation father text / choice_select unknown 2000 3000 no
59 fu1 sesOccupationFather1 sesOccupationFather1 Current occupation father text / text_field unknown 2000 3000 no
60 fu1 sesScoreFather1 sesScoreFather1 SES Score of father integer 1 6 9 2000 3000 no
61 fu1 fu1Weight fu1Weight Weight decimal 4 25 99 3000 yes 5515
62 fu1 fu1WeightZscore fu1WeightZscore Weight z-score Braegger et al. 2011 decimal / static_text -10 10 3000 yes 5516
63 fu1 fu1Length fu1Length Length decimal 50 110 999 3000 yes 5517
64 fu1 fu1LengthZscore fu1LengthZscore length z-score Braegger et al. 2011 decimal / static_text -10 10 3000 yes 5518
65 fu1 fu1DevTest fu1DevTest Development test ordinal / choice_select 0 4 3000 yes 5518
66 fu1 fu1HeadCirc fu1HeadCirc Head circumference decimal 40 60 99 3000 yes 5519
67 fu1 fu1Poorcomp fu1Poorcomp Poor complience boolean 0 = no, 1 = yes 3000 yes 5519
68 fu1 fu1HeadCircZscore fu1HeadCircZscore head circumference z-score Braegger et al. 2011 decimal / static_text -10 10 3000 yes 5520
69 fu1 fu1DevTestDate fu1DevTestDate Development test date date 0 0 3000 yes 5520
70 fu1 fu1DevTestAge fu1DevTestAge Age at developmental test decimal 0 0 3000 yes 5521
71 fu1 fu1MdiRaw fu1MdiRaw BSID II MDI raw integer 0 200 999 3000 yes 5522
72 fu1 fu1PdiRaw fu1PdiRaw BSID II PDI raw integer 0 200 999 3000 yes 5523
73 fu1 fu1MdiIndexRef fu1MdiIndexRef BSID II MDI index integer 49 151 999 3000 yes 5524
74 fu1 fu1PdiIndexRef fu1PdiIndexRef BSID II PDI index integer 49 151 999 3000 yes 5525
75 fu1 fu1TreatCardioName fu1TreatCardioName Name of Treating cardiologist text / text_field 2019 3000 yes 5525
76 fu1 fu1B3CogRaw fu1B3CogRaw Bayley III Cog. raw integer 1 91 999 3000 yes 5526
77 fu1 fu1B3RcRaw fu1B3RcRaw Bayley III RC raw integer 1 91 999 3000 yes 5527
78 fu1 fu1B3EcRaw fu1B3EcRaw Bayley III EC raw integer 1 91 999 3000 yes 5528
79 fu1 fu1B3FmRaw fu1B3FmRaw Bayley III FM raw integer 1 91 999 3000 yes 5529
80 fu1 fu1B3GmRaw fu1B3GmRaw Bayley III GM raw integer 1 91 999 3000 yes 5530
81 fu1 fu1TreatCardioEmail fu1TreatCardioEmail E-mail of cardiologist text / text_field 2019 3000 yes 5530
82 fu1 fu1GriffithMotorRaw fu1GriffithMotorRaw Griffiths raw: motor decimal 0 200 999 3000 yes 5531
83 fu1 fu1GriffithSocialRaw fu1GriffithSocialRaw Griffiths raw: social decimal 0 200 999 3000 yes 5532
84 fu1 fu1GriffithHearingRaw fu1GriffithHearingRaw Griffiths raw: hearing decimal 0 200 999 3000 yes 5533
85 fu1 fu1GriffithEyeRaw fu1GriffithEyeRaw Griffiths raw: eye decimal 0 200 999 3000 yes 5534
86 fu1 fu1GriffithCognitionRaw fu1GriffithCognitionRaw Griffiths raw: cognition decimal 0 200 999 3000 yes 5535
87 fu1 fu1GriffithMotorIndex fu1GriffithMotorIndex Griffiths index: motor decimal 0 200 999 3000 yes 5536
88 fu1 fu1GriffithSocialIndex fu1GriffithSocialIndex Griffiths index: social decimal 0 200 999 3000 yes 5537
89 fu1 fu1GriffithHearingIndex fu1GriffithHearingIndex Griffiths index: hearing decimal 0 200 999 3000 yes 5538
90 fu1 fu1GriffithEyeIndex fu1GriffithEyeIndex Griffiths index: eye decimal 0 200 999 3000 yes 5539
91 fu1 fu1GriffithCognitionIndex fu1GriffithCognitionIndex Griffiths index: cognition decimal 0 200 999 3000 yes 5540
92 fu1 fu1GqTot fu1GqTot Griffiths quotient decimal 0 0 3000 yes 5541
93 fu1 fu1DevTestComments fu1DevTestComments Comments text / text_area 3000 yes 5542
94 fu1 fu1SmFindings fu1SmFindings Sensory motor findings ordinal / choice_select 0 3 3000 yes 5543
95 fu1 fu1CpSuspect fu1CpSuspect CP suspect boolean 0 = no, 1 = yes 3000 yes 5544
96 fu1 fu1CpDegree fu1CpDegree Palisano score integer / choice_radio 0 5 3000 yes 5545
97 fu1 fu1kindofCP fu1kindofCP Type of CP integer / choice_radio 0 4 3000 yes 5546
98 fu1 fu1SpasticCp2020 fu1SpasticCp2020 Spastic CP (as of 2020) ordinal / choice_radio 0 = Unilateral, 1 = Bilateral 2014 3000 yes 5547
99 fu1 fu1CPSpasticUnilateralLr fu1CPSpasticUnilateralLr Unilateral Spastic CP left or right integer / choice_radio 1 = L, 2 = R 2014 3000 yes 5548
100 fu1 fu1DyskineticCp fu1DyskineticCp Dyskinetic CP ordinal / choice_radio 1 3 3000 yes 5549
101 fu1 fu1NonCpAbn1 fu1NonCpAbn1 Non-CP abnormality: tone or reflexes boolean 0 = no, 1 = yes 3000 yes 5550
102 fu1 fu1NonCpAbn2 fu1NonCpAbn2 Non-CP abnormality: tone and reflexes, but not CP boolean 0 = no, 1 = yes 3000 yes 5551
103 fu1 fu1NonCpAbn3 fu1NonCpAbn3 Non-CP abnormality: Clumsy fine motor performance boolean 0 = no, 1 = yes 3000 yes 5552
104 fu1 fu1NonCpAbn4 fu1NonCpAbn4 Non-CP abnormality: Clumsy gross motor performance boolean 0 = no, 1 = yes 3000 yes 5553
105 fu1 fu1Neurodev fu1Neurodev Other neurodev. abnormalities boolean / choice_radio 0 = no, 1 = yes 3000 yes 5555
106 fu1 fu1NeurodevSpecific fu1NeurodevSpecific Specifics of other text / text_area 3000 yes 5556
107 fu1 fu1Therapy fu1Therapy Therapy boolean / choice_radio 0 = no, 1 = yes 3000 yes 5557
108 fu1 fu1Therapy1 fu1Therapy1 Physical therapy boolean 0 = no, 1 = yes 3000 yes 5558
109 fu1 fu1Therapy1Age fu1Therapy1Age Physical therapy-age integer 0 36 999 3000 yes 5559
110 fu1 fu1Therapy1Ongoing fu1Therapy1Ongoing Physical therapy ongoing boolean 0 = no, 1 = yes 3000 yes 5560
111 fu1 fu1Therapy1Duration fu1Therapy1Duration Physical therapy-Duration integer 0 24 999 3000 yes 5561
112 fu1 fu1Therapy2 fu1Therapy2 Early intervention boolean 0 = no, 1 = yes 3000 yes 5562
113 fu1 fu1Therapy2Age fu1Therapy2Age Early intervention-age integer 0 36 999 3000 yes 5563
114 fu1 fu1Therapy2Ongoing fu1Therapy2Ongoing Early intervention ongoing boolean 0 = no, 1 = yes 3000 yes 5564
115 fu1 fu1Therapy2Duration fu1Therapy2Duration Early intervention-Duration integer 0 24 999 3000 yes 5565
116 fu1 fu1Therapy3 fu1Therapy3 Occupational therapy boolean 0 = no, 1 = yes 3000 yes 5566
117 fu1 fu1Therapy3Age fu1Therapy3Age Occupational therapy-age integer 0 36 999 3000 yes 5567
118 fu1 fu1Therapy3Ongoing fu1Therapy3Ongoing Occupational therapy ongoing boolean 0 = no, 1 = yes 3000 yes 5568
119 fu1 fu1Therapy3Duration fu1Therapy3Duration Occupational therapy-Duration integer 0 24 999 3000 yes 5569
120 fu1 fu1Therapy6 fu1Therapy6 Child psychiatry therapy boolean 0 = no, 1 = yes 3000 yes 5570
121 fu1 fu1Therapy6Age fu1Therapy6Age Child psychiatry therapy-age integer 0 36 999 3000 yes 5571
122 fu1 fu1Therapy6Ongoing fu1Therapy6Ongoing Child psychiatry therapy ongoing boolean 0 = no, 1 = yes 3000 yes 5572
123 fu1 fu1Therapy6Duration fu1Therapy6Duration Child psychiatry therapy-Duration integer 0 24 999 3000 yes 5573
124 fu1 fu1Therapy7 fu1Therapy7 Other therapy boolean 0 = no, 1 = yes 3000 yes 5574
125 fu1 fu1Therapy7Specific fu1Therapy7Specific Specifics of other therapy text / text_field 3000 yes 5575
126 fu1 fu1Therapy7Age fu1Therapy7Age Other therapy-age integer 0 36 999 3000 yes 5576
127 fu1 fu1Therapy7Ongoing fu1Therapy7Ongoing Other therapy ongoing boolean 0 = no, 1 = yes 3000 yes 5577
128 fu1 fu1Therapy7Duration fu1Therapy7Duration Other therapy-Duration integer 0 24 999 3000 yes 5578
129 fu1 fu1VisualProblems fu1VisualProblems Visual problems ordinal / choice_radio 0 2 9 3000 yes 5579
130 fu1 fu1LangTest fu1LangTest Lang test ordinal / choice_radio 0 2 9 3000 yes 5580
131 fu1 fu1HearingProblems fu1HearingProblems Hearing problems ordinal / choice_radio 0 2 9 3000 yes 5581
132 fu1 fu1Rehosp fu1Rehosp Rehospitalization ordinal / choice_radio 0 = never, 1 = once, 2 = several times 3000 yes 5582
133 fu1 fu1RehospSpecific fu1RehospSpecific specifics to rehospitalization text / text_area 3000 yes 5583
134 fu1 fu1RepeatSurgery fu1RepeatSurgery Surgery for ROP boolean / choice_radio 0 = no, 1 = yes 2019 3000 no
135 fu1 fu1CatheterIntervention fu1CatheterIntervention Catheter Intervention boolean / choice_radio 0 = no, 1 = yes 2019 3000 no
136 fu1 fu1CardMedNone fu1CardMedNone Cardiac Medication: None boolean 0 = no, 1 = yes 3000 yes 5586
137 fu1 fu1CardMedDiuretics fu1CardMedDiuretics Cardiac Medication: Diuretics boolean 0 = no, 1 = yes 3000 yes 5587
138 fu1 fu1CardMedSildenafil fu1CardMedSildenafil Cardiac Medication: Sildenafil boolean 0 = no, 1 = yes 3000 yes 5588
139 fu1 fu1CardMedAceInhibitor fu1CardMedAceInhibitor Cardiac Medication: ACE Inhibitor boolean 0 = no, 1 = yes 3000 yes 5589
140 fu1 fu1CardMedDigoxin fu1CardMedDigoxin Cardiac Medication: Diuretics boolean 0 = no, 1 = yes 3000 yes 5590
141 fu1 fu1CardMedBetaBlocker fu1CardMedBetaBlocker Cardiac Medication: Beta-Blocker boolean 0 = no, 1 = yes 3000 yes 5591
142 fu1 fu1CardMedOther fu1CardMedOther Cardiac Medication: Other boolean 0 = no, 1 = yes 3000 yes 5592
143 fu1 fu1GiTubeFeeding fu1GiTubeFeeding Gastrointestinal tube feeding boolean / choice_radio 0 = no, 1 = yes 2019 3000 no
144 fu1 fu1Ropsurg fu1Ropsurg Surgery for ROP boolean / choice_radio 0 = no, 1 = yes 3000 yes 5620
145 fu1 fu1CardMedOtherSpecific fu1CardMedOtherSpecific Cardiac Medication: Specifics of other text / text_field 3000 yes 5620
146 fu1 fu1Vpshunt fu1Vpshunt VP shunt boolean / choice_radio 0 = no, 1 = yes 3000 yes 5621
147 fu1 fu1Comment fu1Comment Comments text / text_area 3000 yes 5622
148 fu1 fu1Email fu1Email E-mail of examiner text / text_field 3000 no
149 fu1 fu1NdiComment fu1files Test upload text / static_text unknown 3000 no
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