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Version of 19.05.2024. Last major change:
Nr. Dataset R Item Description Type Min Max Unknown Start End Export Export
1 os1 oEmail oS1Email E-mail of sender text / text_field 2019 3000 yes 197
 
 
2 os1 oCardiacVentricle oS1CardiacVentricle Cardiac ventricle ordinal / choice_radio 0 4 9 2019 3000 yes 198
 
Encoding of values: 0 = none, 1 = univentricular, 2 = biventricular, 3 = borderline (at birth), 4 = undetermined
 
3 os1 oCardiacPrimaryDiagnosis oS1CardiacPrimaryDiagnosis Primary cardiac diagnosis ordinal / choice_radio 1 4 2019 3000 yes 199
 
Encoding of values: 1 = two ventricle heart without arch obstruction, 2 = two ventricle heart with arch obstruction, 3 = single ventricle heart without arch obstruction, 4 = single ventricle heart with arch obstruction
 
4 os1 oCardiacDiagnosis oS1CardiacDiagnosis Cardiac diagnosis ordinal / choice_radio 1 12 2019 3000 yes 200
 
  • simple TGA means only D-TGA
  • complex TGA means: Simple TGA plus, i.e. VSD closure, Aortic arch repair, etc.
  • simple CoA repair means standard extended resection plus end-to-end anastomosis
  • complex CoA repair means simple CoA repair plus, i.e. transverse aortic arch repair etc.

Encoding of values: 1 = HLHS, 2 = HLHC, 3 = dTGA simple, 4 = dTGA complex, 5 = CoA / hypoplastic aortic or interrupted aortic arch, 6 = Common arterial truncus, 7 = PA + VSD / Tetralogy of Fallot, 8 = PA + IVS, 9 = Single ventricle, 10 = Other , 11 = TAPVR / PAPVR, 12 = valvular aortic stenosis
 
5 os1 oS1CardDiagOther oS1CardDiagOther Other Cardiac Diagnosis (not listed) text / text_field 9 2019 3000 yes 201
 
 
6 os1 oS1CardDiagOther oS1ExtracardiacComorbidity Extracardiac comorbidity text / text_field 9 2023 3000 yes 202
 
 
7 os1 oComments oS1Comments Comments to Orchid data entry text / text_area 2019 3000 yes 205
 
 
8 os1 oMomAgeyears oS1MomAgeYears Mother’s age in years decimal 15 100 999 2019 3000 yes 230
 
 
9 os1 oS1GenAnomaly oS1GenAnomaly Genetic anomaly ordinal / choice_select 0 10 99 2019 3000 yes 235
 
Encoding of values: 0 = none, 1 = Trisomy 21 (Down’s syndrome), 2 = Turner’s symdrome, 3 = 22q11 microdeletion with full Di George sequence (including immune dysfunction), 4 = Trisomy 18, 5 = Trisomy 13, 6 = Noonan syndrome, 7 = Williams Beuren syndrome, 8 = Alagille syndrom
 
10 os1 oS1GenAnomalyOther oS1GenAnomalyOther Genetic anomaly other text / text_field 9 2019 3000 yes 240
 
 
11 os1 oDeath oS1Death Death boolean / choice_radio 0 1 9 2019 3000 yes 250
 
Encoding of values: 0 = no, 1 = yes
 
12 os1 oDayOfDeath oS1DateOfDeath Date of death date 9 2019 3000 yes 293
 
 
13 os1 oDayOfDeath oS1DayOfDeath Day of death integer 0 730 999 2019 3000 yes 295
 
 
14 os1 oDeathCause oS1DeathCause Cause of death text / text_area 9 2019 3000 yes 300
 
 
15 os1 oTimepointChdDiagnosis oS1TimepointChdDiagnosis Timepoint of CHD diagnosis ordinal / choice_radio 0 2 9 2019 3000 yes 301
 
Encoding of values: 0 = prenatal, 1 = postnatal
 
16 os1 oTypeOfBirth oS1TypeOfBirthElectiveCs Type of birth: Elective CS boolean 0 1 2019 3000 yes 302
 
 
17 os1 oTypeOfBirth oS1TypeOfBirthSecondaryCs Type of birth: Secondary CS boolean 0 1 2019 3000 yes 303
 
 
18 os1 oTypeOfBirth oS1TypeOfBirthVagSpont Type of birth: Vaginal (spontaneous) boolean 0 1 2019 3000 yes 304
 
 
19 os1 oTypeOfBirth oS1TypeOfBirthVagInduced Type of birth: Vaginal (induced) boolean 0 1 2019 3000 yes 305
 
 
20 os1 oTypeOfBirth oS1TypeOfBirthUnknown Type of birth: Unknown boolean 0 1 2019 3000 yes 306
 
 
21 os1 oUaPh oS1UaPh Umbilical artery pH decimal 5 9 99 2019 3000 yes 307
 
 
22 os1 oBirthLength oS1BirthLength Length at birth decimal 40 60 99 2019 3000 yes 308
 
 
23 os1 oHeadCirc oS1HeadCirc Head circumference in cm decimal 15 50 99 2019 3000 yes 309
 
 
24 os1 oApgar1 oS1Apgar1 Apgar 1 min integer 0 10 99 2019 3000 yes 310
 
 
25 os1 oApgar5 oS1Apgar5 Apgar 5 min integer 0 10 99 2019 3000 yes 311
 
 
26 os1 oApgar10 oS1Apgar10 Apgar 10 min integer 0 10 99 2019 3000 yes 312
 
 
27 os1 oLactate oS1Lactate Lactate after birth (peak value in 24 hours) decimal 0 30 99 2019 3000 yes 313
 
 
28 os1 oPreWeightAtSurgery oS1PreWeightAtSurgery Body weight at surgery (in kg, the day before) decimal 1 25 99 2019 3000 yes 314
 
 
29 os1 oPreHeadCirc oS1PreHeadCirc Head circumference in cm decimal 17 50 99 2019 3000 yes 315
 
 
30 os1 oPreNoFeed oS1PreNoFeed No feeding pre operative boolean 0 1 2019 3000 yes 316
 
Encoding of values: 0 = no, 1 = yes
 
31 os1 oPreAnyTubeFeed oS1PreAnyTubeFeed Feeding boolean 0 1 2019 3000 yes 317
 

Parenteral: if the patient receives glucose iv in addition with proteins or proteins and lipids.


Encoding of values: 0 = no, 1 = yes
 
32 os1 oPreOralFeed oS1PreOralFeed boolean 0 1 2019 3000 yes 318
 
Encoding of values: 0 = no, 1 = yes
 
33 os1 oPreParenteralFeed oS1PreParenteralFeed boolean 0 1 2019 3000 yes 319
 

if the patient receives glucose iv in addition with proteins or proteins and lipids.


Encoding of values: 0 = no, 1 = yes
 
34 os1 oPreUnknownFeed oS1PreUnknownFeed boolean 0 1 2019 3000 yes 320
 
Encoding of values: 0 = no, 1 = yes
 
35 os1 oPreSeizure oS1PreSeizure Seizure boolean / choice_radio 0 1 9 2019 3000 yes 325
 

Clinical or subclinical identified on aEEG/EEG requiring medical treatment


Encoding of values: 0 = no, 1 = yes
 
36 os1 oPreCerebMri oS1PreCerebMri Cerebral MRI pre-operative ordinal / choice_radio 0 2 9 2019 3000 yes 330
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
37 os1 oPreCerebMriResultPatho oS1PreCerebMriPatho Cerebral MRI result phatological text / text_area 2019 3000 yes 335
 
 
38 os1 oPreCranialUs oS1PreCranialUs Cranial ultrasound pre-operative ordinal / choice_radio 0 2 9 2019 3000 yes 340
 

increased RI value= rated normal


Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
39 os1 oPreCranialUsResultPatho oS1PreCranialUsPatho Cranial ultrasound phatological result text / text_area 2019 3000 yes 345
 
 
40 os1 oPreIntubation oS1PreIntubation Intubation pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 350
 

from admission until surgery


Encoding of values: 0 = no, 1 = yes
 
41 os1 oPreIntubationDays oS1PreIntubationHours Duration of intubation pre-operative (in hours) integer 0 1200 9999 2019 3000 yes 355
 
 
42 os1 oPreRespSupport oS1PreRespSupport Respiratory support pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 360
 

High flow nasal oxygen, CPAP, NIV (non-invasive ventilation) (admission until surgery)


Encoding of values: 0 = no, 1 = yes
 
43 os1 oPreRespSupportDays oS1PreRespSupportHours Duration of respiratory support, pre-operative (in hours) integer 0 1200 9999 2019 3000 yes 365
 
 
44 os1 oPreMedNone oS1PreMedNone Medications pre-operative: None boolean 0 1 2019 3000 yes 368
 
Encoding of values: 0 = no, 1 = yes
 
45 os1 oPreMedEphi oS1PreMedEpi Medications pre-operative: Epinephrine boolean 0 1 2019 3000 yes 370
 
Encoding of values: 0 = no, 1 = yes
 
46 os1 oPreMedNore oS1PreMedNore Medications pre-operative: Norepinephrine boolean 0 1 2019 3000 yes 375
 
Encoding of values: 0 = no, 1 = yes
 
47 os1 oPreMedMilr oS1PreMedMilr Medications pre-operative: Milrinone boolean 0 1 2019 3000 yes 380
 
Encoding of values: 0 = no, 1 = yes
 
48 os1 oPreMedProst oS1PreMedProst Medications pre-operative: Prostaglandine boolean 0 1 2019 3000 yes 385
 
Encoding of values: 0 = no, 1 = yes
 
49 os1 oPreMedDobu oS1PreMedDobu Medications pre-operative: Dobutamine boolean 0 1 2019 3000 yes 390
 
Encoding of values: 0 = no, 1 = yes
 
50 os1 oPreMedDopa oS1PreMedDopa Medications pre-operative: Dopamine boolean 0 1 2019 3000 yes 395
 
Encoding of values: 0 = no, 1 = yes
 
51 os1 oPreMedLevo oS1PreMedLevo Medications pre-operative: Levosimendan boolean 0 1 2019 3000 yes 400
 
Encoding of values: 0 = no, 1 = yes
 
52 os1 oPreMedUnknown oS1PreMedUnknown Medications pre-operative: Unknown boolean 0 1 2019 3000 yes 405
 
Encoding of values: 0 = no, 1 = yes
 
53 os1 oPreMedOther oS1PreMedOther Medications pre-operative: Others boolean 0 1 2019 3000 yes 406
 
Encoding of values: 0 = no, 1 = yes
 
54 os1 oPreMedOtherSpecify oS1PreMedOtherSpecify Medications pre-operative: Others specify text / text_field 2019 3000 yes 407
 
 
55 os1 oPreTcSo2 oS1PreTcSo2 Preductal tcSo2 at surgery (mean value) decimal 30 100 999 2019 3000 yes 410
 
 
56 os1 oPreHaematocrit oS1PreHaematocrit Haematocrit % (mean value) decimal 20 60 99 2019 3000 yes 415
 
 
57 os1 oPreCreatinine oS1PreCreatinine Creatinine, µmol/l (highest value) decimal 0 500 999 2019 3000 yes 420
 
 
58 os1 oPreLactate oS1PreLactate Lactate mmol/l (peak value in 24h) decimal 0 30 99 2019 3000 yes 425
 
 
59 os1 oPreResuscitation oS1PreResuscitation Resuscitation boolean / choice_radio 0 1 9 2019 3000 yes 430
 

Cardiopulmonary resuscitation requiring chest compressions


Encoding of values: 0 = no, 1 = yes
 
60 os1 oPreCatheter oS1PreCatheter Cardiac catheter intervention boolean / choice_radio 0 1 9 2019 3000 yes 435
 
Encoding of values: 0 = no, 1 = yes
 
61 os1 oPreCatheterType oS1PreCatheterType Cardiac catheter type ordinal / choice_radio 0 2 2019 3000 yes 440
 
Encoding of values: 0 = none, 1= BAS, 2 = Ballon dilatation, 3 = Other
 
62 os1 oPreCatheterType oS1PreCatheterTypeOther Cardiac catheter type text / text_field 2019 3000 yes 445
 
 
63 os1 oPreCatheterDate oS1PreCatheterDate Catheter date date 9 2019 3000 yes 446
 
 
64 os1 oPreCatheterDate oS1PreCatheterDay Catheter day integer 1 1200 9999 2019 3000 yes 447
 
 
65 os1 oSurgAge oS1SurgDate Date of surgery/cardiac catheterization date 9 2019 3000 yes 448
 
 
66 os1 oSurgAge oS1SurgAge Age at surgery/cardiac catheterization (days) integer 0 900 999 2019 3000 yes 450
 
 
67 os1 oSurgDhcaTime oS1SurgDhcaTime Deep hypothermic cardiac arrest time (minutes) decimal 0 120 999 2019 2020 yes 452
 

main surgery stage 1


 
68 os1 oSurgBypass oS1SurgBypass Cardiac surgery with cardiopulmonary bypass ordinal / choice_radio 0 3 9 2019 3000 yes 455
 
Encoding of values: 0 = no, 1 = yes, 2 = Hybrid, 3 = Interventional heart catheter
 
69 os1 oS1SurgHeartCat oS1SurgHeartCat Interventional heart catheter boolean / choice_radio 0 1 2019 3000 yes 456
 
Encoding of values: 0 = no, 1 = yes
 
70 os1 oS1SurgHeartCatType oS1SurgHeartCatType Type of the interventional heart catheter (if used) ordinal / choice_radio 0 2 2019 3000 yes 457
 
 
71 os1 oS1SurgHeartCatOther oS1SurgHeartCatOther Interventional heart catheter text / text_field 9 2019 3000 yes 458
 
 
72 os1 oSurgSurgType oS1SurgSurgNone Cardiac surgery type: None boolean 0 1 2019 3000 yes 460
 
 
73 os1 oSurgSurgType oS1SurgSurgNorwood Cardiac surgery type: Norwood Stage 1 boolean 0 1 2019 3000 yes 462
 
 
74 os1 oSurgSurgType oS1SurgSurgAsSimple Cardiac surgery type: Arterial switch - simple boolean 0 1 2019 3000 yes 463
 
 
75 os1 oSurgSurgType oS1SurgSurgAsComplex Cardiac surgery type: Arterial switch - complex boolean 0 1 2019 3000 yes 464
 
 
76 os1 oSurgSurgType oS1SurgSurgShuntMbts Cardiac surgery type: Shunt procedure - mBTS right boolean 0 1 2019 3000 yes 465
 
 
77 os1 oSurgSurgType oS1SurgSurgShuntSano Cardiac surgery type: Shunt procedure - RV PA Sano shunt boolean 0 1 2019 3000 yes 466
 
 
78 os1 oSurgSurgType oS1SurgSurgShuntAp Cardiac surgery type: Shunt procedure - central AP shunt boolean 0 1 2019 3000 yes 467
 
 
79 os1 oSurgSurgType oS1SurgSurgPaCentral Cardiac surgery type: Pulmonary artery banding - central boolean 0 1 2019 3000 yes 468
 
 
80 os1 oSurgSurgType oS1SurgSurgPaBilat Cardiac surgery type: Pulmonary artery banding - bilateral boolean 0 1 2019 3000 yes 469
 
 
81 os1 oSurgSurgType oS1SurgSurgAaCoaSimple Cardiac surgery type: Aortic arch surgery - CoA repair simple boolean 0 1 2019 3000 yes 470
 
 
82 os1 oSurgSurgType oS1SurgSurgAaCoaComplex Cardiac surgery type: Aortic arch surgery - CoA repair complex boolean 0 1 2019 3000 yes 471
 
 
83 os1 oSurgSurgType oS1SurgSurgAaInterr Cardiac surgery type: Aortic arch surgery - interrupted aortic arch boolean 0 1 2019 3000 yes 472
 
 
84 os1 oSurgSurgType oS1SurgSurgAvValve Cardiac surgery type: Aortic valve surgery - aortic valvuloplasty boolean 0 1 2019 3000 yes 473
 
 
85 os1 oSurgSurgType oS1SurgSurgAvRoss Cardiac surgery type: Aortic valve surgery - Ross procedure boolean 0 1 2019 3000 yes 474
 
 
86 os1 oSurgSurgType oS1SurgSurgTruncRep Cardiac surgery type: Truncus repair boolean 0 1 2019 3000 yes 475
 
 
87 os1 oSurgSurgType oS1SurgSurgTapvcRep Cardiac surgery type: TAPVC repair boolean 0 1 2019 3000 yes 476
 
 
88 os1 oSurgSurgType oS1SurgSurgPapvcRep Cardiac surgery type: PAPVC repair boolean 0 1 2019 3000 yes 477
 
 
89 os1 oSurgSurgType oS1SurgSurgFallotRep Cardiac surgery type: Fallot repair boolean 0 1 2019 3000 yes 478
 
 
90 os1 oSurgSurgType oS1SurgSurgUnknown Cardiac surgery type: Unknown boolean 0 1 2019 3000 yes 479
 
 
91 os1 oSurgSurgType oS1SurgSurgOther Cardiac surgery type: Other type boolean 0 1 2019 3000 yes 480
 
 
92 os1 oSurgSurgTypeOther oS1SurgSurgTypeOther Cardiac surgery other text / text_field 2019 3000 yes 481
 
 
93 os1 oSurgRachsScore oS1SurgRachsScore RACHS score integer 0 6 99 2019 3000 yes 482
 

###RACHS - Risk adjustment for congenital heart surgery

Individual procedures by risk category


##### Risk category 1 - Atrial septal defect surgery (including atrial septal defect secundum, sinus venosus atrial septal defect, *patent foramen ovale closure) - Aortopexy - Patent ductus arteriosus surgery at age >30 d - Coarctation repair at age >30 d - Partially anomalous pulmonary venous connection surgery ##### Risk category 2 - Aortic valvotomy or valvuloplasty at age >30 d - Subaortic stenosis resection - Pulmonary valvotomy or valvuloplasty - Pulmonary valve replacement - Right ventricular infundibulectomy - Pulmonary outflow tract augmentation - Repair of coronary artery fistula - Atrial septal defect and ventricular septal defect repair - Atrial septal defect primum repair - Ventricular septal defect repair - Ventricular septal defect closure and pulmonary valvotomy or infundibular resection - Ventricular septal defect closure and pulmonary artery band removal - Repair of unspecified septal defect - Total repair of tetralogy of Fallot - Repair of total anomalous pulmonary veins at age >30 d - Glenn shunt - Vascular ring surgery - Repair of aorta-pulmonary window - Coarctation repair at age ≤30 d - Repair of pulmonary artery stenosis - Transection of pulmonary artery - Common atrium closure - Left ventricular to right atrial shunt repair ##### Risk category 3 - Aortic valve replacement - Ross procedure - Left ventricular outflow tract patch - Ventriculomyotomy - Aortoplasty - Mitral valvotomy or valvuloplasty - Mitral valve replacement - Valvectomy of tricuspid valve - Tricuspid valvotomy or valvuloplasty - Tricuspid valve replacement - Tricuspid valve repositioning for Ebstein anomaly at age >30 d - Repair of anomalous coronary artery without intrapulmonary tunnel - Repair of anomalous coronary artery with intrapulmonary tunnel (Takeuchi) - Closure of semilunar valve, aortic or pulmonary - Right ventricular to pulmonary artery conduit - Left ventricular to pulmonary artery conduit - Repair of double-outlet right ventricle with or without repair of right ventricular obstruction - Fontan procedure - Repair of transitional or complete atrioventricular canal with or without valve replacement - Pulmonary artery banding - Repair of tetralogy of Fallot with pulmonary atresia - Repair of cor triatriatum - Systemic to pulmonary artery shunt - Atrial switch operation - Arterial switch operation - Reimplantation of anomalous pulmonary artery - Annuloplasty - Repair of coarctation and ventricular septal defect closure - Excision of intracardiac tumor ##### Risk category 4 - Aortic valvotomy or valvuloplasty at age ≤30 d - Konno procedure - Repair of complex anomaly (single ventricle) by ventricular septal defect enlargement - Repair of total anomalous pulmonary veins at age ≤30 d - Atrial septectomy - Repair of transposition, ventricular septal defect, and subpulmonary stenosis (Rastelli) - Atrial switch operation with ventricular septal defect closure - Atrial switch operation with repair of subpulmonary stenosis - Arterial switch operation with pulmonary artery band removal - Arterial switch operation with ventricular septal defect closure - Arterial switch operation with repair of subpulmonary stenosis - Repair of truncus arteriosus - Repair of hypoplastic or interrupted arch without ventricular septal defect closure - Repair of hypoplastic or interrupted aortic arch with ventricular septal defect closure - Transverse arch graft - Unifocalization for tetralogy of Fallot and pulmonary atresia - Double switch ##### Risk category 5 - Tricuspid valve repositioning for neonatal Ebstein anomaly at age ≤30 d - Repair of truncus arteriosus and interrupted arch ##### Risk category 6 - Stage 1 repair of hypoplastic left heart syndrome (Norwood operation) - Stage 1 repair of nonhypoplastic left heart syndrome conditions - Damus-Kaye-Stansel procedure
Jenkins *et al.*, **Consensus-based method for risk adjustment for surgery for congenital heart disease.** *J. Thorac.*, Jan 2002, 123(1), 110-118
 
94 os1 oSurgCicuDischargeDate oS1SurgCicuDischargeDate CICU discharge date date 9 2019 3000 yes 483
 
 
95 os1 oSurgCicuDischargeDate oS1SurgCicuDischargeDay CICU discharge day integer 1 730 999 2019 3000 yes 484
 

after main surgery stage 1


Encoding of values: oSurgCicuDischargeDay
 
96 os1 oSurgBypassTime oS1SurgBypassTime Cardiopulmonary bypass time (minutes) decimal 0 500 999 2019 3000 yes 485
 

Main intervention stage 1


 
97 os1 oSurgCrossClampTime oS1SurgCrossClampTime Aortic cross clamp time (minutes) decimal 0 300 999 2019 3000 yes 490
 

Main intervention stage 1


 
98 os1 oSurgCircArrestTime oS1SurgCircArrestTime Circulatory arrest time (minutes) decimal 0 300 999 2019 3000 yes 495
 

main surgery stage 1


 
99 os1 oSurgCerebPerf oS1SurgCerebPerf Antegrade cerebral perfusion boolean / choice_radio 0 1 9 2019 3000 yes 500
 

main surgery stage 1


Encoding of values: 0 = no, 1 = yes
 
100 os1 oSurgCerebPerfTime oS1SurgCerebPerfTime Antegrade cerebral perfusion (minutes) decimal 0 120 999 2019 3000 yes 502
 

main surgery stage 1


 
101 os1 oSurgLowTempBypass oS1SurgLowTempBypass Lowest temperature on bypass (degree C) decimal 15 40 99 2019 3000 yes 506
 

main surgery stage 1


 
102 os1 oSurgUltrafiltration oS1SurgUltrafiltration Ultrafiltration during/after bypass surgery boolean / choice_radio 0 1 9 2019 3000 yes 508
 

main surgery stage 1


 
103 os1 oPostLactate oS1PostLactate Lactate mmol/l first 24 h (highest value first 24 h) decimal 0 30 99 2019 3000 yes 525
 
 
104 os1 oS1PostRedo oS1PostRedo Corrective or redo surgery of the previous surgery boolean / choice_radio 0 1 9 2019 3000 yes 550
 

Any redo surgery of the main stage 1 surgery/intervention until discharge after stage 1


Encoding of values: 0 = no, 1 = yes
 
105 os1 oSurgRedo oS1PostRedoHlm Was a heart-lung machine used? boolean / choice_radio 0 1 9 2019 3000 yes 654
 
Encoding of values: 0 = no, 1 = yes
 
106 os1 oPostEcmo oS1PostEcmoDays ECMO duration (in days) integer 0 21 999 2019 2020 yes 738
 
 
107 os1 oSurgRedo oS1PostRedoHlmCount How many redo surgeries with a heart-lung machine were done? integer 0 20 99 2019 3000 yes 748
 
 
108 os1 oSurgRedo oS1PostRedoNoHlm Were redo surgeries without a heart-lung machine done? boolean / choice_radio 0 1 9 2019 3000 yes 749
 
Encoding of values: 0 = no, 1 = yes
 
109 os1 oSurgRedo oS1PostRedoNoHlmCount How many redo surgeries without a heart-lung machine were done? integer 1 20 99 2019 3000 yes 750
 
 
110 os1 oS1PostHc oS1PostHc Heart catheter used until discharge boolean / choice_radio 0 1 9 2019 3000 yes 755
 

Any heart catheter intervention after main surgery/intervention stage 1 until discharge stage 1


 
111 os1 oS1PostHcCount oS1PostHcCount How many times was a heart catheter used until discharge integer 0 30 99 2019 3000 yes 756
 
 
112 os1 oPostResuscitation oS1PostResuscitation Resuscitation boolean / choice_radio 0 1 9 2019 3000 yes 757
 

Cardiopulmonary resuscitation requiring chest compressions post OP stage 1 until discharge stage 1


Encoding of values: 0 = no, 1 = yes
 
113 os1 oPostCprDuration oS1PostCprDuration Duration CPR (minutes) decimal 0 990 999 2019 3000 yes 758
 
 
114 os1 oPostEcmo oS1PostEcmo ECMO boolean / choice_radio 0 1 9 2019 3000 yes 759
 
Encoding of values: 0 = no, 1 = yes
 
115 os1 oS1PostEcmoHours oS1PostEcmoHours ECMO duration (in hours) integer 0 400 999 2019 3000 yes 760
 
 
116 os1 oS1PostEcmoMultiple oS1PostEcmoMultiple Multiple ECMO runs boolean / choice_radio 0 1 9 2023 3000 yes 761
 
Encoding of values: 0 = no, 1 = yes
 
117 os1 oS1PostEcmoTypeVv oS1PostEcmoTypeVv Ecmo type VV boolean 0 1 2019 3000 yes 762
 
 
118 os1 oS1PostEcmoTypeVa oS1PostEcmoTypeVa Ecmo type VA boolean 0 1 2019 3000 yes 763
 
 
119 os1 oS1PostEcmoTypeOther oS1PostEcmoTypeOther Ecmo other type boolean 0 1 2019 3000 yes 764
 
 
120 os1 oS1PostEcmoTypeUnknown oS1PostEcmoTypeUnknown Ecmo unknown type boolean 0 1 2019 3000 yes 765
 
 
121 os1 oS1PostEcmoIndicCardiac oS1PostEcmoIndicCardiac Ecmo cardiac indication boolean 0 1 2019 3000 yes 766
 
 
122 os1 oS1PostEcmoIndicResp oS1PostEcmoIndicResp Ecmo respiratory indication boolean 0 1 2019 3000 yes 767
 
 
123 os1 oS1PostEcmoIndicEcpr oS1PostEcmoIndicEcpr Ecmo eCPR indication boolean 0 1 2019 3000 yes 768
 
 
124 os1 oS1PostEcmoIndicUnknown oS1PostEcmoIndicUnknown Ecmo unknown indication boolean 0 1 2019 3000 yes 769
 
 
125 os1 oS1PostEcmoAccess oS1PostEcmoAccess ECMO Access ordinal / choice_radio 1 4 9 2019 3000 yes 770
 
 
126 os1 oS1PostEcmoTime oS1PostEcmoTime ECMO Timepoint boolean / choice_radio 1 3 9 2019 3000 yes 771
 
 
127 os1 oS1PostVad oS1PostVad VAD boolean / choice_radio 0 1 9 2023 3000 yes 772
 
Encoding of values: 0 = no, 1 = yes
 
128 os1 oS1PostVadImplantable oS1PostVadImplantable implantable VAD boolean / choice_radio 0 1 9 2023 3000 yes 773
 
Encoding of values: 0 = no, 1 = yes
 
129 os1 oS1PostVadExtracorporeal oS1PostVadExtracorporeal extracorporeal VAD boolean / choice_radio 0 1 9 2023 3000 yes 774
 
Encoding of values: 0 = no, 1 = yes
 
130 os1 oS1PostVadTypeLvad oS1PostVadTypeLvad type LVAD boolean / choice_radio 0 1 9 2023 3000 yes 775
 
Encoding of values: 0 = no, 1 = yes
 
131 os1 oS1PostVadTypeRvad oS1PostVadTypeRvad type RVAD boolean / choice_radio 0 1 9 2023 3000 yes 776
 
Encoding of values: 0 = no, 1 = yes
 
132 os1 oS1PostVadTypeBivad oS1PostVadTypeBivad Type biVAD boolean / choice_radio 0 1 9 2023 3000 yes 777
 
Encoding of values: 0 = no, 1 = yes
 
133 os1 oS1PostVadName oS1PostVadName VAD device name text / text_field 2023 3000 yes 778
 
 
134 os1 oPostMedNone oS1PostMedNone Medications post-operative: None boolean 0 1 2019 3000 yes 779
 
Encoding of values: 0 = no, 1 = yes
 
135 os1 oPostMedEphi oS1PostMedEpi Medications post-operative: Epinephrine boolean 0 1 2019 3000 yes 780
 
Encoding of values: 0 = no, 1 = yes
 
136 os1 oPostMedEphi oS1PostMedEpiHour Medications post-operative: Hours of epinephrine treatment integer 1 4000 9999 2019 3000 yes 781
 
 
137 os1 oPostMedNore oS1PostMedNore Medications post-operative: Norepinephrine boolean 0 1 2019 3000 yes 782
 
Encoding of values: 0 = no, 1 = yes
 
138 os1 oPostMedNore oS1PostMedNoreHour Medications post-operative: Hours of norepinephrine treatment integer 1 4000 9999 2019 3000 yes 783
 
 
139 os1 oPostMedMilr oS1PostMedMilr Medications post-operative: Milrinone boolean 0 1 2019 3000 yes 784
 
Encoding of values: 0 = no, 1 = yes
 
140 os1 oPostMedMilr oS1PostMedMilrHour Medications post-operative: Hours of milrinone treatment integer 1 4000 9999 2019 3000 yes 785
 
 
141 os1 oPostMedDobu oS1PostMedDobu Medications post-operative: Dobutamine boolean 0 1 2019 3000 yes 786
 
Encoding of values: 0 = no, 1 = yes
 
142 os1 oPostMedDobu oS1PostMedDobuHour Medications post-operative: Hours of dobutamine treatment integer 1 4000 9999 2019 3000 yes 787
 
 
143 os1 oPostMedDopa oS1PostMedDopa Medications post-operative: Dopamine boolean 0 1 2019 3000 yes 788
 
Encoding of values: 0 = no, 1 = yes
 
144 os1 oPostMedDopa oS1PostMedDopaHour Medications post-operative: Hours of dopamine treatment integer 1 4000 9999 2019 3000 yes 789
 
 
145 os1 oPostMedLevo oS1PostMedLevo Medications post-operative: Levosimendan boolean 0 1 2019 3000 yes 790
 
Encoding of values: 0 = no, 1 = yes
 
146 os1 oPostMedLevo oS1PostMedLevoHour Medications post-operative: Hours of levosimendan treatment integer 1 4000 9999 2019 3000 yes 791
 
 
147 os1 oPostMedUnknown oS1PostMedUnknown Unknown medication post surgery boolean 0 1 2019 3000 yes 792
 
Encoding of values: 0 = no, 1 = yes
 
148 os1 oPostMedOther oS1PostMedOther Medications post-operative: Others boolean 0 1 2019 3000 yes 793
 
Encoding of values: 0 = no, 1 = yes
 
149 os1 oPostMedOtherSpecify oS1PostMedOtherSpecify Medications post-operative: Others specify text / text_field 2019 3000 yes 794
 
 
150 os1 oPostArrythmia oS1PostArrhythmia Arrythmia with circulatory compromise ordinal / choice_radio 0 4 9 2019 3000 yes 795
 
Encoding of values: 0 = none, 1 = Tachycardia, 2 = Bradycardia, 3 = AV Block III°
 
151 os1 oPostArrTachyType oS1PostArrTachyType Type of tachycardia ordinal / choice_radio 0 2 9 2019 3000 yes 796
 
Encoding of values: 0 = none, 1 = Supraventricular tachycardia, 2 = Ventricular tachycardia
 
152 os1 oPostArrTachySupType oS1PostArrTachySupType Type of supraventricular tachycardia ordinal / choice_radio 0 4 9 2019 3000 yes 797
 
Encoding of values: 0 = none, 1 = AV Reentry, 2 = EAT, 3 = JET, 4 = Other
 
153 os1 oPostArrTachySupTypeOther oS1PostArrTachySupTypeOther Type of supraventricular tachycardia others text / text_field 2019 3000 yes 798
 
 
154 os1 oPostArrTachySupTreat oS1PostSupTachyTreatNone Treatment of supraventricular tachycardia: None boolean 0 1 2019 3000 yes 799
 
 
155 os1 oPostArrTachySupTreat oS1PostSupTachyTreatAmio Treatment of supraventricular tachycardia: Amiodarone boolean 0 1 2019 3000 yes 800
 
 
156 os1 oPostArrTachySupTreat oS1PostSupTachyTreatAdeno Treatment of supraventricular tachycardia: Adenosine boolean 0 1 2019 3000 yes 801
 
 
157 os1 oPostArrTachySupTreat oS1PostSupTachyTreatBblock Treatment of supraventricular tachycardia: beta-Blocker boolean 0 1 2019 3000 yes 802
 
 
158 os1 oPostArrTachySupTreat oS1PostSupTachyTreatVagman Treatment of supraventricular tachycardia: Vagal maneuver boolean 0 1 2019 3000 yes 803
 
 
159 os1 oPostArrTachySupTreat oS1PostSupTachyTreatUnknown Treatment of supraventricular tachycardia: Unknown boolean 0 1 2019 3000 yes 804
 
 
160 os1 oPostArrTachySupTreat oS1PostSupTachyTreatOther Treatment of supraventricular tachycardia: Other boolean 0 1 2019 3000 yes 805
 
 
161 os1 oPostArrTachySupTreat oS1PostSupTachyTreatOtherSpecify Treatment of supraventricular tachycardia: Other specific text / text_field 9 2019 3000 yes 806
 
 
162 os1 oPostArrTachyVentTreat oS1PostArrTachyVentTreat Treatment of ventricular tachycardia text / text_area 2019 3000 yes 807
 
 
163 os1 oPostArrAvBlock oS1PostArrAvBlock AV-Block III° type ordinal / choice_radio 0 4 9 2019 3000 yes 808
 
Encoding of values: 0 = temporary pacing, 1 = permanent pacing (Pacemaker)
 
164 os1 oPostIntubationDays oS1PostIntubationHours Duration of intubation, postoperative integer 0 5000 9999 2019 3000 yes 809
 
 
165 os1 oPostRespSupport oS1PostRespSupport Respiratory support pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 810
 

Cumulatively, including redo interventions


Encoding of values: 0 = no, 1 = yes
 
166 os1 oPostRespSupportDays oS1PostRespSupportHours Duration of respiratory support (in hours), postoperative integer 0 5000 9999 2019 3000 yes 811
 
 
167 os1 oPostNo oS1PostNo Nitric oxide boolean / choice_radio 0 1 9 2019 3000 yes 812
 
Encoding of values: 0 = no, 1 = yes
 
168 os1 oPostNo oS1PostOxy Oxygen boolean / choice_radio 0 1 9 2019 3000 yes 813
 
Encoding of values: 0 = no, 1 = yes
 
169 os1 oPostCreatinine oS1PostCreatinine Creatinine, µmol/l (highest value overall, postoperative) decimal 0 500 999 2019 3000 yes 814
 
 
170 os1 oPostRrt oS1PostRrt Renal replacement therapy boolean / choice_radio 0 1 9 2019 3000 yes 815
 
Encoding of values: 0 = no, 1 = yes
 
171 os1 oPostCxNone oS1PostCxNone Complications after surgery/interventions: None boolean 0 1 2019 3000 yes 816
 

confirmed infection = any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioerative antibiotic prophylaxis)

wound infection = any evidence of infection requiring antibiotic therapy which is confirmed on a positive wound swap (despite perioperative prophylaxis)

respiratory = pleural effusions(drainage required), pneumothorax, haematothorax

cardiogenic NEC = Bell stage 2 or 3, infants with abdominal distension, blood in stool together with abdominal x-ray or ultrasound showing bowel oedema, pneumastosis or pneumoperitoneum

Stroke = clinical or MRI

LCO syndrome = combination of:
  • mean blood pressure lower than 5th percentile of age-related normal values and/or increased inotropics/vasopressors required to achieve this blood pressure goal
  • difference between the arterial oxygen saturation (SaO2) and central venous oxygen saturation (ScvO2) value of >35% or Scv=2<60% for non cyanotoc patients
  • urine output <1ml/kg/hr
  • peripheral temperature <32°C in the absence of the use of target temperature management
  • serum lactate >2mmol/L

Encoding of values: 0 = no, 1 = yes
 
172 os1 oPostCxInfec oS1PostCxInfec Complications after surgery/interventions: Confirmed infection boolean 0 1 2019 3000 yes 817
 

Any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioperative anibiotic prophylaxis)


Encoding of values: 0 = no, 1 = yes
 
173 os1 O_Post_Cx_wound oS1PostCxWound Complications after surgery/interventions: Wound infection boolean 0 1 2019 3000 yes 818
 

Any evidence of infection requiring antibiotic therapy which is confirmed on a wound swab (despite perioperative antibiotic prophylaxis)


Encoding of values: 0 = no, 1 = yes
 
174 os1 O_Post_Cx_diaph oS1PostCxDiaph Complications after surgery/interventions: Diaphragmatic paralysis boolean 0 1 2019 3000 yes 819
 
Encoding of values: 0 = no, 1 = yes
 
175 os1 O_Post_Cx_chylo oS1PostCxChylo Complications after surgery/interventions: Chylothorax boolean 0 1 2019 3000 yes 820
 
Encoding of values: 0 = no, 1 = yes
 
176 os1 O_Post_Cx_respi oS1PostCxRespi Complications after surgery/interventions: Respiratory boolean 0 1 2019 3000 yes 821
 
Encoding of values: 0 = no, 1 = yes
 
177 os1 O_Post_Cx_nec oS1PostCxNec Complications after surgery/interventions: Cardiogenic NEC boolean 0 1 2019 3000 yes 822
 
Encoding of values: 0 = no, 1 = yes
 
178 os1 O_Post_Cx_mof oS1PostCxMof Complications after surgery/interventions: Multi organ failure boolean 0 1 2019 3000 yes 823
 
Encoding of values: 0 = no, 1 = yes
 
179 os1 O_Post_Cx_stroke oS1PostCxStroke Complications after surgery/interventions: Stroke boolean 0 1 2019 3000 yes 824
 
Encoding of values: 0 = no, 1 = yes
 
180 os1 O_Post_Cx_seizure oS1PostCxSeizureClinical Complications after surgery/interventions: Clinical Seizures boolean 0 1 2019 3000 yes 825
 
Encoding of values: 0 = no, 1 = yes
 
181 os1 O_Post_Cx_seizure oS1PostCxSeizureSubclinical Complications after surgery/interventions: Subclinical seizures boolean 0 1 2019 3000 yes 826
 
Encoding of values: 0 = no, 1 = yes
 
182 os1 O_Post_Cx_mof oS1PostCxLco Complications after surgery/interventions: Low cardiac output syndrome boolean 0 1 2019 3000 yes 827
 
Encoding of values: 0 = no, 1 = yes
 
183 os1 oPostCxUnknown oS1PostCxUnknown Unknown complications post surgery boolean 0 1 2019 3000 yes 828
 
Encoding of values: 0 = no, 1 = yes
 
184 os1 O_Post_Cx_other oS1PostCxOther Complications after surgery/interventions: Other boolean 0 1 2019 3000 yes 829
 
Encoding of values: 0 = no, 1 = yes
 
185 os1 oPostCxOtherSpecify oS1PostCxOtherSpecify Complications after surgery/interventions: other specify text / text_field 2019 3000 yes 830
 
 
186 os1 oDisCerebMri oS1PostCerebUs Cerebral US post-operative ordinal / choice_radio 0 2 9 2019 3000 yes 831
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
187 os1 O_Dis_Cereb_mri_result_patho oS1PostCerebUsPatho Cerebral MRI result phatological text / text_field 2019 3000 yes 832
 
 
188 os1 oDisCerebMri oS1PostCerebMri Cerebral MRI post-operative ordinal / choice_radio 0 2 9 2019 3000 yes 833
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
189 os1 oDisCerebMri oS1PostCerebMriDate Date at which Cerebral MRI (post-operative) was done date 9 2019 3000 yes 834
 
 
190 os1 oDisCerebMri oS1PostCerebMriDay Day of life at which Cerebral MRI (post-operative) was done integer 0 900 999 2019 3000 yes 835
 
 
191 os1 O_Dis_Cereb_mri_result_patho oS1PostCerebMriPatho Cerebral MRI result phatological text / text_field 2019 3000 yes 836
 
 
192 os1 oPostDeath30Days oS1PostDeath30Days Death within 30 days post OP boolean / choice_radio 0 1 9 2019 3000 yes 837
 
Encoding of values: 0 = no, 1 = yes
 
193 os1 oDisTo oS1DisTo Where was the patitent discharged to? ordinal / choice_radio 0 3 9 2019 3000 yes 837
 
Encoding of values: 0 = still hospitalized, 1 = home, 2 = other hospital, 3 = died
 
194 os1 oDisDate oS1DisDate Date of Discharge date 9 2019 3000 yes 838
 

Date of admission to your hospital until discharge after stage 1


 
195 os1 oDisDate oS1DisDay Day of life at discharge integer 1 730 999 2019 3000 yes 839
 

Day of admission to your hospital until discharge after stage 1


Encoding of values: oDisDay
 
196 os1 oS1DisIcuDays oS1DisIcuDays Duration of ICU stay until discharge (in days) integer 0 365 999 2019 3000 yes 840
 
 
197 os1 oDisMedicationNone oS1DisMedicationNone Medication at discharge: none boolean 0 1 2019 3000 yes 842
 
Encoding of values: 0 = no, 1 = yes
 
198 os1 oDisMedicationAce oS1DisMedicationAce Medication at discharge: ACE Inhibitor boolean 0 1 2019 3000 yes 843
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
199 os1 oDisMedicationDigoxin oS1DisMedicationAsa Medication at discharge: Aspirin boolean 0 1 2019 3000 yes 844
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
200 os1 oDisMedicationBblock oS1DisMedicationBblock Medication at discharge: Beta-blocker boolean 0 1 2019 3000 yes 845
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
201 os1 oPostMedDopa oS1DisMedicationDigoxin Medications post-operative: Digoxin boolean 0 1 2019 3000 yes 846
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
202 os1 oDisMedicationSildenafil oS1DisMedicationEnoxaparin Medication at discharge: Enoxaparin-Natrium boolean 0 1 2019 3000 yes 847
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
203 os1 oDisMedicationDiuretics oS1DisMedicationDiuretics Medication at discharge: Diuretics boolean 0 1 2019 3000 yes 848
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
204 os1 oDisMedicationSildenafil oS1DisMedicationSildenafil Medication at discharge: Sildenafil boolean 0 1 2019 3000 yes 849
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
205 os1 oDisMedicationUnknown oS1DisMedicationUnknown Medication at discharge: Unknown boolean 0 1 2019 3000 yes 850
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
206 os1 oDisMedicationOther oS1DisMedicationOther Medication at discharge: Other boolean 0 1 2019 3000 yes 851
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
207 os1 oDisMedicationOtherSpecific oS1DisMedicationOtherSpecific Other medication at discharge text / text_field 2019 3000 yes 852
 

all medication, including those in external clinics


 
208 os1 oDisWeight oS1DisWeight Weight at discharge (kg) decimal 1 30 99 2019 3000 yes 853
 
 
209 os1 oDisWeight oS1DisHeight Height at discharge (cm) decimal 1 100 999 2019 3000 yes 930
 
 
210 os1 oDisWeight oS1DisHeadCirc Head circumference at discharge (cm) decimal 1 50 99 2019 3000 yes 935
 
 
211 os1 oDisWeight oS1DisTcSO2 tcO2 at discharge (%) decimal 30 100 999 2019 3000 yes 940
 
 
212 os1 oDisTubeFeeding oS1DisTubeFeed Tube feeding at discharge ordinal / choice_radio 0 2 9 2019 3000 yes 950
 
Encoding of values: 0 = none, 1 = partial, 2 = full
 
213 os1 oS1ErrorReport oS1ErrorReport text / text_area 2019 3000 yes 1180
 
 
214 os1 oS1ErrorlistIgnore oS1ErrorlistIgnore integer / choice_radio 3000 no
 
 
215 os1 oS1DsLockdate oS1DsLockdate date 3000 no
 
 
216 os1 oS1Errors oS1Errors integer 2019 3000 yes 1185