Nr. | Dataset | Item | Description | Type | Min | Max | Unknown | Start | End | Export | Export |
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1 | os1 | O_S1_Email | E-mail of sender | text / text_field | 2019 | 3000 | yes | 197 | |||
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2 | os1 | O_S1_Cardiac_ventricle | Cardiac ventricle | ordinal / choice_radio | 0 | 4 | 9 | 2019 | 3000 | yes | 198 |
Encoding of values: 0 = none, 1 = univentricular, 2 = biventricular, 3 = borderline (at birth), 4 = undetermined |
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3 | os1 | O_S1_Cardiac_Primary_Diagnosis | Primary cardiac diagnosis | ordinal / choice_radio | 1 | 4 | 2019 | 3000 | yes | 199 | |
Encoding of values: 1 = two ventricle heart without arch obstruction, 2 = two ventricle heart with arch obstruction, 3 = single ventricle heart without arch obstruction, 4 = single ventricle heart with arch obstruction |
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4 | os1 | O_S1_Cardiac_Diagnosis | Cardiac diagnosis | ordinal / choice_radio | 1 | 12 | 2019 | 3000 | yes | 200 | |
Encoding of values: 1 = HLHS, 2 = HLHC, 3 = dTGA simple, 4 = dTGA complex, 5 = CoA / hypoplastic aortic or interrupted aortic arch, 6 = Common arterial truncus, 7 = PA + VSD / Tetralogy of Fallot, 8 = PA + IVS, 9 = Single ventricle, 10 = Other , 11 = TAPVR / PAPVR, 12 = valvular aortic stenosis |
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5 | os1 | O_S1_Card_Diag_other | Other Cardiac Diagnosis (not listed) | text / text_field | 9 | 2019 | 3000 | yes | 201 | ||
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6 | os1 | O_S1_Extracardiac_Comorbidity | Extracardiac comorbidity | text / text_field | 9 | 2023 | 3000 | yes | 202 | ||
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7 | os1 | O_S1_Comments | Comments to Orchid data entry | text / text_area | 2019 | 3000 | yes | 205 | |||
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8 | os1 | O_S1_Mom_ageyears | Mother’s age in years | decimal | 15 | 100 | 999 | 2019 | 3000 | yes | 230 |
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9 | os1 | O_S1_Anomaly | Genetic anomaly | ordinal / choice_select | 0 | 10 | 99 | 2019 | 3000 | yes | 235 |
Encoding of values: 0 = none, 1 = Trisomy 21 (Down’s syndrome), 2 = Turner’s symdrome, 3 = 22q11 microdeletion with full Di George sequence (including immune dysfunction), 4 = Trisomy 18, 5 = Trisomy 13, 6 = Noonan syndrome, 7 = Williams Beuren syndrome, 8 = Alagille syndrom |
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10 | os1 | O_S1_Anomaly_other | Genetic anomaly other | text / text_field | 9 | 2019 | 3000 | yes | 240 | ||
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11 | os1 | O_S1_Death | Death | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 250 |
Encoding of values: 0 = no, 1 = yes |
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12 | os1 | O_S1_Date_of_death | Date of death | date | 9 | 2019 | 3000 | yes | 293 | ||
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13 | os1 | O_S1_Day_of_death | Day of death | integer | 0 | 730 | 999 | 2019 | 3000 | yes | 295 |
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14 | os1 | O_S1_Death_cause | Cause of death | text / text_area | 9 | 2019 | 3000 | yes | 300 | ||
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15 | os1 | O_S1_Timepoint_chd_diagnosis | Timepoint of CHD diagnosis | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 301 |
Encoding of values: 0 = prenatal, 1 = postnatal |
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16 | os1 | O_S1_Type_of_birth_elective_cs | Type of birth: Elective CS | boolean | 0 | 1 | 2019 | 3000 | yes | 302 | |
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17 | os1 | O_S1_Type_of_birth_secondary_cs | Type of birth: Secondary CS | boolean | 0 | 1 | 2019 | 3000 | yes | 303 | |
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18 | os1 | O_S1_Type_of_birth_vag_spont | Type of birth: Vaginal (spontaneous) | boolean | 0 | 1 | 2019 | 3000 | yes | 304 | |
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19 | os1 | O_S1_Type_of_birth_vag_induced | Type of birth: Vaginal (induced) | boolean | 0 | 1 | 2019 | 3000 | yes | 305 | |
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20 | os1 | O_S1_Type_of_birth_unknown | Type of birth: Unknown | boolean | 0 | 1 | 2019 | 3000 | yes | 306 | |
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21 | os1 | O_S1_UA_pH | Umbilical artery pH | decimal | 5 | 9 | 99 | 2019 | 3000 | yes | 307 |
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22 | os1 | O_S1_Birth_length | Length at birth | decimal | 40 | 60 | 99 | 2019 | 3000 | yes | 308 |
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23 | os1 | O_S1_Head_circ | Head circumference in cm | decimal | 15 | 50 | 99 | 2019 | 3000 | yes | 309 |
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24 | os1 | O_S1_Apgar1 | Apgar 1 min | integer | 0 | 10 | 99 | 2019 | 3000 | yes | 310 |
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25 | os1 | O_S1_Apgar5 | Apgar 5 min | integer | 0 | 10 | 99 | 2019 | 3000 | yes | 311 |
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26 | os1 | O_S1_Apgar10 | Apgar 10 min | integer | 0 | 10 | 99 | 2019 | 3000 | yes | 312 |
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27 | os1 | O_S1_Lactate | Lactate after birth (peak value in 24 hours) | decimal | 0 | 30 | 99 | 2019 | 3000 | yes | 313 |
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28 | os1 | O_S1_Pre_Weight_at_surgery | Body weight at surgery (in kg, the day before) | decimal | 1 | 25 | 99 | 2019 | 3000 | yes | 314 |
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29 | os1 | O_S1_Pre_Head_circ | Head circumference in cm | decimal | 17 | 50 | 99 | 2019 | 3000 | yes | 315 |
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30 | os1 | O_S1_Pre_No_feed | No feeding pre operative | boolean | 0 | 1 | 2019 | 3000 | yes | 316 | |
Encoding of values: 0 = no, 1 = yes |
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31 | os1 | O_S1_Pre_Any_tube_feed | Feeding | boolean | 0 | 1 | 2019 | 3000 | yes | 317 | |
Parenteral: if the patient receives glucose iv in addition with proteins or proteins and lipids. Encoding of values: 0 = no, 1 = yes |
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32 | os1 | O_S1_Pre_Oral_feed | boolean | 0 | 1 | 2019 | 3000 | yes | 318 | ||
Encoding of values: 0 = no, 1 = yes |
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33 | os1 | O_S1_Pre_Parenteral_feed | boolean | 0 | 1 | 2019 | 3000 | yes | 319 | ||
if the patient receives glucose iv in addition with proteins or proteins and lipids. Encoding of values: 0 = no, 1 = yes |
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34 | os1 | O_S1_Pre_Unknown_Feed | boolean | 0 | 1 | 2019 | 3000 | yes | 320 | ||
Encoding of values: 0 = no, 1 = yes |
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35 | os1 | O_S1_Pre_Seizure | Seizure | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 325 |
Clinical or subclinical identified on aEEG/EEG requiring medical treatment Encoding of values: 0 = no, 1 = yes |
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36 | os1 | O_S1_Pre_Cereb_mri | Cerebral MRI pre-operative | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 330 |
Encoding of values: 0 = none, 1 = normal, 2 = pathological |
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37 | os1 | O_S1_Pre_Cereb_mri_patho | Cerebral MRI result phatological | text / text_area | 2019 | 3000 | yes | 335 | |||
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38 | os1 | O_S1_Pre_Cranial_us | Cranial ultrasound pre-operative | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 340 |
increased RI value= rated normal Encoding of values: 0 = none, 1 = normal, 2 = pathological |
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39 | os1 | O_S1_Pre_Cranial_us_patho | Cranial ultrasound phatological result | text / text_area | 2019 | 3000 | yes | 345 | |||
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40 | os1 | O_S1_Pre_Intubation | Intubation pre-operative | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 350 |
from admission until surgery Encoding of values: 0 = no, 1 = yes |
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41 | os1 | O_S1_Pre_Intubation_hours | Duration of intubation pre-operative (in hours) | integer | 0 | 1200 | 9999 | 2019 | 3000 | yes | 355 |
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42 | os1 | O_S1_Pre_Resp_support | Respiratory support pre-operative | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 360 |
High flow nasal oxygen, CPAP, NIV (non-invasive ventilation) (admission until surgery) Encoding of values: 0 = no, 1 = yes |
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43 | os1 | O_S1_Pre_Resp_support_hours | Duration of respiratory support, pre-operative (in hours) | integer | 0 | 1200 | 9999 | 2019 | 3000 | yes | 365 |
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44 | os1 | O_S1_Pre_Med_none | Medications pre-operative: None | boolean | 0 | 1 | 2019 | 3000 | yes | 368 | |
Encoding of values: 0 = no, 1 = yes |
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45 | os1 | O_S1_Pre_Med_epi | Medications pre-operative: Epinephrine | boolean | 0 | 1 | 2019 | 3000 | yes | 370 | |
Encoding of values: 0 = no, 1 = yes |
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46 | os1 | O_S1_Pre_Med_nore | Medications pre-operative: Norepinephrine | boolean | 0 | 1 | 2019 | 3000 | yes | 375 | |
Encoding of values: 0 = no, 1 = yes |
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47 | os1 | O_S1_Pre_Med_milr | Medications pre-operative: Milrinone | boolean | 0 | 1 | 2019 | 3000 | yes | 380 | |
Encoding of values: 0 = no, 1 = yes |
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48 | os1 | O_S1_Pre_Med_prost | Medications pre-operative: Prostaglandine | boolean | 0 | 1 | 2019 | 3000 | yes | 385 | |
Encoding of values: 0 = no, 1 = yes |
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49 | os1 | O_S1_Pre_Med_dobu | Medications pre-operative: Dobutamine | boolean | 0 | 1 | 2019 | 3000 | yes | 390 | |
Encoding of values: 0 = no, 1 = yes |
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50 | os1 | O_S1_Pre_Med_dopa | Medications pre-operative: Dopamine | boolean | 0 | 1 | 2019 | 3000 | yes | 395 | |
Encoding of values: 0 = no, 1 = yes |
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51 | os1 | O_S1_Pre_Med_levo | Medications pre-operative: Levosimendan | boolean | 0 | 1 | 2019 | 3000 | yes | 400 | |
Encoding of values: 0 = no, 1 = yes |
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52 | os1 | O_S1_Pre_Med_unknown | Medications pre-operative: Unknown | boolean | 0 | 1 | 2019 | 3000 | yes | 405 | |
Encoding of values: 0 = no, 1 = yes |
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53 | os1 | O_S1_Pre_Med_other | Medications pre-operative: Others | boolean | 0 | 1 | 2019 | 3000 | yes | 406 | |
Encoding of values: 0 = no, 1 = yes |
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54 | os1 | O_S1_Pre_Med_other_specify | Medications pre-operative: Others specify | text / text_field | 2019 | 3000 | yes | 407 | |||
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55 | os1 | O_S1_Pre_TcSo2 | Preductal tcSo2 at surgery (mean value) | decimal | 30 | 100 | 999 | 2019 | 3000 | yes | 410 |
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56 | os1 | O_S1_Pre_Haematocrit | Haematocrit % (mean value) | decimal | 20 | 60 | 99 | 2019 | 3000 | yes | 415 |
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57 | os1 | O_S1_Pre_Creatinine | Creatinine, µmol/l (highest value) | decimal | 0 | 500 | 999 | 2019 | 3000 | yes | 420 |
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58 | os1 | O_S1_Pre_Lactate | Lactate mmol/l (peak value in 24h) | decimal | 0 | 30 | 99 | 2019 | 3000 | yes | 425 |
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59 | os1 | O_S1_Pre_Resuscitation | Resuscitation | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 430 |
Cardiopulmonary resuscitation requiring chest compressions Encoding of values: 0 = no, 1 = yes |
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60 | os1 | O_S1_Pre_Catheter | Cardiac catheter intervention | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 435 |
Encoding of values: 0 = no, 1 = yes |
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61 | os1 | O_S1_Pre_Catheter_type | Cardiac catheter type | ordinal / choice_radio | 0 | 2 | 2019 | 3000 | yes | 440 | |
Encoding of values: 0 = none, 1= BAS, 2 = Ballon dilatation, 3 = Other |
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62 | os1 | O_S1_Pre_Catheter_type_other | Cardiac catheter type | text / text_field | 2019 | 3000 | yes | 445 | |||
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63 | os1 | O_S1_Pre_Catheter_date | Catheter date | date | 9 | 2019 | 3000 | yes | 446 | ||
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64 | os1 | O_S1_Pre_Catheter_day | Catheter day | integer | 1 | 1200 | 9999 | 2019 | 3000 | yes | 447 |
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65 | os1 | O_S1_Surg_date | Date of surgery/cardiac catheterization | date | 9 | 2019 | 3000 | yes | 448 | ||
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66 | os1 | O_S1_Surg_Age | Age at surgery/cardiac catheterization (days) | integer | 0 | 900 | 999 | 2019 | 3000 | yes | 450 |
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67 | os1 | O_S1_Surg_Dhca_time | Deep hypothermic cardiac arrest time (minutes) | decimal | 0 | 120 | 999 | 2019 | 2020 | yes | 452 |
main surgery stage 1 |
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68 | os1 | O_S1_Surg_Bypass | Cardiac surgery with cardiopulmonary bypass | ordinal / choice_radio | 0 | 3 | 9 | 2019 | 3000 | yes | 455 |
Encoding of values: 0 = no, 1 = yes, 2 = Hybrid, 3 = Interventional heart catheter |
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69 | os1 | O_S1_Surg_Heart_Cat | Interventional heart catheter | boolean / choice_radio | 0 | 1 | 2019 | 3000 | yes | 456 | |
Encoding of values: 0 = no, 1 = yes |
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70 | os1 | O_S1_Surg_Heart_Cat_Type | Type of the interventional heart catheter (if used) | ordinal / choice_radio | 0 | 2 | 2019 | 3000 | yes | 457 | |
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71 | os1 | O_S1_Surg_Heart_Cat_Other | Interventional heart catheter | text / text_field | 9 | 2019 | 3000 | yes | 458 | ||
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72 | os1 | O_S1_Surg_Surg_none | Cardiac surgery type: None | boolean | 0 | 1 | 2019 | 3000 | yes | 460 | |
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73 | os1 | O_S1_Surg_Surg_norwood | Cardiac surgery type: Norwood Stage 1 | boolean | 0 | 1 | 2019 | 3000 | yes | 462 | |
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74 | os1 | O_S1_Surg_Surg_As_simple | Cardiac surgery type: Arterial switch - simple | boolean | 0 | 1 | 2019 | 3000 | yes | 463 | |
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75 | os1 | O_S1_Surg_Surg_As_complex | Cardiac surgery type: Arterial switch - complex | boolean | 0 | 1 | 2019 | 3000 | yes | 464 | |
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76 | os1 | O_S1_Surg_Surg_shunt_mbts | Cardiac surgery type: Shunt procedure - mBTS right | boolean | 0 | 1 | 2019 | 3000 | yes | 465 | |
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77 | os1 | O_S1_Surg_Surg_shunt_sano | Cardiac surgery type: Shunt procedure - RV PA Sano shunt | boolean | 0 | 1 | 2019 | 3000 | yes | 466 | |
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78 | os1 | O_S1_Surg_Surg_shunt_ap | Cardiac surgery type: Shunt procedure - central AP shunt | boolean | 0 | 1 | 2019 | 3000 | yes | 467 | |
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79 | os1 | O_S1_Surg_Surg_pa_central | Cardiac surgery type: Pulmonary artery banding - central | boolean | 0 | 1 | 2019 | 3000 | yes | 468 | |
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80 | os1 | O_S1_Surg_Surg_pa_bilat | Cardiac surgery type: Pulmonary artery banding - bilateral | boolean | 0 | 1 | 2019 | 3000 | yes | 469 | |
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81 | os1 | O_S1_Surg_Surg_Aa_Coasimple | Cardiac surgery type: Aortic arch surgery - CoA repair simple | boolean | 0 | 1 | 2019 | 3000 | yes | 470 | |
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82 | os1 | O_S1_Surg_Surg_Aa_Coacomplex | Cardiac surgery type: Aortic arch surgery - CoA repair complex | boolean | 0 | 1 | 2019 | 3000 | yes | 471 | |
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83 | os1 | O_S1_Surg_Surg_Aa_interr | Cardiac surgery type: Aortic arch surgery - interrupted aortic arch | boolean | 0 | 1 | 2019 | 3000 | yes | 472 | |
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84 | os1 | O_S1_Surg_Surg_Av_valve | Cardiac surgery type: Aortic valve surgery - aortic valvuloplasty | boolean | 0 | 1 | 2019 | 3000 | yes | 473 | |
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85 | os1 | O_S1_Surg_Surg_Av_ross | Cardiac surgery type: Aortic valve surgery - Ross procedure | boolean | 0 | 1 | 2019 | 3000 | yes | 474 | |
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86 | os1 | O_S1_Surg_Surg_Trunc_rep | Cardiac surgery type: Truncus repair | boolean | 0 | 1 | 2019 | 3000 | yes | 475 | |
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87 | os1 | O_S1_Surg_Surg_Tapvc_rep | Cardiac surgery type: TAPVC repair | boolean | 0 | 1 | 2019 | 3000 | yes | 476 | |
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88 | os1 | O_S1_Surg_Surg_Papvc_rep | Cardiac surgery type: PAPVC repair | boolean | 0 | 1 | 2019 | 3000 | yes | 477 | |
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89 | os1 | O_S1_Surg_Surg_Fallot_rep | Cardiac surgery type: Fallot repair | boolean | 0 | 1 | 2019 | 3000 | yes | 478 | |
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90 | os1 | O_S1_Surg_Surg_unknown | Cardiac surgery type: Unknown | boolean | 0 | 1 | 2019 | 3000 | yes | 479 | |
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91 | os1 | O_S1_Surg_Surg_other | Cardiac surgery type: Other type | boolean | 0 | 1 | 2019 | 3000 | yes | 480 | |
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92 | os1 | O_S1_Surg_Surg_type_other | Cardiac surgery other | text / text_field | 2019 | 3000 | yes | 481 | |||
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93 | os1 | O_S1_Surg_Rachs_score | RACHS score | integer | 0 | 6 | 99 | 2019 | 3000 | yes | 482 |
###RACHS - Risk adjustment for congenital heart surgery Individual procedures by risk category##### Risk category 1 - Atrial septal defect surgery (including atrial septal defect secundum, sinus venosus atrial septal defect, *patent foramen ovale closure) - Aortopexy - Patent ductus arteriosus surgery at age >30 d - Coarctation repair at age >30 d - Partially anomalous pulmonary venous connection surgery ##### Risk category 2 - Aortic valvotomy or valvuloplasty at age >30 d - Subaortic stenosis resection - Pulmonary valvotomy or valvuloplasty - Pulmonary valve replacement - Right ventricular infundibulectomy - Pulmonary outflow tract augmentation - Repair of coronary artery fistula - Atrial septal defect and ventricular septal defect repair - Atrial septal defect primum repair - Ventricular septal defect repair - Ventricular septal defect closure and pulmonary valvotomy or infundibular resection - Ventricular septal defect closure and pulmonary artery band removal - Repair of unspecified septal defect - Total repair of tetralogy of Fallot - Repair of total anomalous pulmonary veins at age >30 d - Glenn shunt - Vascular ring surgery - Repair of aorta-pulmonary window - Coarctation repair at age ≤30 d - Repair of pulmonary artery stenosis - Transection of pulmonary artery - Common atrium closure - Left ventricular to right atrial shunt repair ##### Risk category 3 - Aortic valve replacement - Ross procedure - Left ventricular outflow tract patch - Ventriculomyotomy - Aortoplasty - Mitral valvotomy or valvuloplasty - Mitral valve replacement - Valvectomy of tricuspid valve - Tricuspid valvotomy or valvuloplasty - Tricuspid valve replacement - Tricuspid valve repositioning for Ebstein anomaly at age >30 d - Repair of anomalous coronary artery without intrapulmonary tunnel - Repair of anomalous coronary artery with intrapulmonary tunnel (Takeuchi) - Closure of semilunar valve, aortic or pulmonary - Right ventricular to pulmonary artery conduit - Left ventricular to pulmonary artery conduit - Repair of double-outlet right ventricle with or without repair of right ventricular obstruction - Fontan procedure - Repair of transitional or complete atrioventricular canal with or without valve replacement - Pulmonary artery banding - Repair of tetralogy of Fallot with pulmonary atresia - Repair of cor triatriatum - Systemic to pulmonary artery shunt - Atrial switch operation - Arterial switch operation - Reimplantation of anomalous pulmonary artery - Annuloplasty - Repair of coarctation and ventricular septal defect closure - Excision of intracardiac tumor ##### Risk category 4 - Aortic valvotomy or valvuloplasty at age ≤30 d - Konno procedure - Repair of complex anomaly (single ventricle) by ventricular septal defect enlargement - Repair of total anomalous pulmonary veins at age ≤30 d - Atrial septectomy - Repair of transposition, ventricular septal defect, and subpulmonary stenosis (Rastelli) - Atrial switch operation with ventricular septal defect closure - Atrial switch operation with repair of subpulmonary stenosis - Arterial switch operation with pulmonary artery band removal - Arterial switch operation with ventricular septal defect closure - Arterial switch operation with repair of subpulmonary stenosis - Repair of truncus arteriosus - Repair of hypoplastic or interrupted arch without ventricular septal defect closure - Repair of hypoplastic or interrupted aortic arch with ventricular septal defect closure - Transverse arch graft - Unifocalization for tetralogy of Fallot and pulmonary atresia - Double switch ##### Risk category 5 - Tricuspid valve repositioning for neonatal Ebstein anomaly at age ≤30 d - Repair of truncus arteriosus and interrupted arch ##### Risk category 6 - Stage 1 repair of hypoplastic left heart syndrome (Norwood operation) - Stage 1 repair of nonhypoplastic left heart syndrome conditions - Damus-Kaye-Stansel procedure Jenkins *et al.*, **Consensus-based method for risk adjustment for surgery for congenital heart disease.** *J. Thorac.*, Jan 2002, 123(1), 110-118 |
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94 | os1 | O_S1_Surg_Cicu_discharge_date | CICU discharge date | date | 9 | 2019 | 3000 | yes | 483 | ||
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95 | os1 | O_S1_Surg_Cicu_discharge_day | CICU discharge day | integer | 1 | 730 | 999 | 2019 | 3000 | yes | 484 |
after main surgery stage 1 Encoding of values: oSurgCicuDischargeDay |
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96 | os1 | O_S1_Surg_Bypass_time | Cardiopulmonary bypass time (minutes) | decimal | 0 | 500 | 999 | 2019 | 3000 | yes | 485 |
Main intervention stage 1 |
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97 | os1 | O_S1_Surg_Cross_clamp_time | Aortic cross clamp time (minutes) | decimal | 0 | 300 | 999 | 2019 | 3000 | yes | 490 |
Main intervention stage 1 |
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98 | os1 | O_S1_Surg_Circ_arrest_time | Circulatory arrest time (minutes) | decimal | 0 | 300 | 999 | 2019 | 3000 | yes | 495 |
main surgery stage 1 |
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99 | os1 | O_S1_Surg_Cereb_perf | Antegrade cerebral perfusion | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 500 |
main surgery stage 1 Encoding of values: 0 = no, 1 = yes |
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100 | os1 | O_S1_Surg_Cereb_perf_time | Antegrade cerebral perfusion (minutes) | decimal | 0 | 120 | 999 | 2019 | 3000 | yes | 502 |
main surgery stage 1 |
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101 | os1 | O_S1_Surg_Low_temp_bypass | Lowest temperature on bypass (degree C) | decimal | 15 | 40 | 99 | 2019 | 3000 | yes | 506 |
main surgery stage 1 |
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102 | os1 | O_S1_Surg_Ultrafiltration | Ultrafiltration during/after bypass surgery | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 508 |
main surgery stage 1 |
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103 | os1 | O_S1_Post_Lactate | Lactate mmol/l first 24 h (highest value first 24 h) | decimal | 0 | 30 | 99 | 2019 | 3000 | yes | 525 |
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104 | os1 | O_S1_Post_Redo | Corrective or redo surgery of the previous surgery | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 550 |
Any redo surgery of the main stage 1 surgery/intervention until discharge after stage 1 Encoding of values: 0 = no, 1 = yes |
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105 | os1 | O_S1_Post_Redo_Hlm | Was a heart-lung machine used? | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 654 |
Encoding of values: 0 = no, 1 = yes |
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106 | os1 | O_S1_Post_Ecmo_days | ECMO duration (in days) | integer | 0 | 21 | 999 | 2019 | 2020 | yes | 738 |
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107 | os1 | O_S1_Post_Redo_Hlm_Count | How many redo surgeries with a heart-lung machine were done? | integer | 0 | 20 | 99 | 2019 | 3000 | yes | 748 |
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108 | os1 | O_S1_Post_Redo_No_Hlm | Were redo surgeries without a heart-lung machine done? | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 749 |
Encoding of values: 0 = no, 1 = yes |
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109 | os1 | O_S1_Post_Redo_No_Hlm_Count | How many redo surgeries without a heart-lung machine were done? | integer | 1 | 20 | 99 | 2019 | 3000 | yes | 750 |
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110 | os1 | O_S1_Post_Hc | Heart catheter used until discharge | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 755 |
Any heart catheter intervention after main surgery/intervention stage 1 until discharge stage 1 |
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111 | os1 | O_S1_Post_Hc_Count | How many times was a heart catheter used until discharge | integer | 0 | 30 | 99 | 2019 | 3000 | yes | 756 |
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112 | os1 | O_S1_Post_Resuscitation | Resuscitation | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 757 |
Cardiopulmonary resuscitation requiring chest compressions post OP stage 1 until discharge stage 1 Encoding of values: 0 = no, 1 = yes |
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113 | os1 | O_S1_Post_Cpr_duration | Duration CPR (minutes) | decimal | 0 | 990 | 999 | 2019 | 3000 | yes | 758 |
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114 | os1 | O_S1_Post_Ecmo | ECMO | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 759 |
Encoding of values: 0 = no, 1 = yes |
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115 | os1 | O_S1_Post_Ecmo_hours | ECMO duration (in hours) | integer | 0 | 400 | 999 | 2019 | 3000 | yes | 760 |
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116 | os1 | O_S1_Post_Ecmo_Multiple | Multiple ECMO runs | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 761 |
Encoding of values: 0 = no, 1 = yes |
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117 | os1 | O_S1_Post_Ecmo_type_vv | Ecmo type VV | boolean | 0 | 1 | 2019 | 3000 | yes | 762 | |
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118 | os1 | O_S1_Post_Ecmo_type_va | Ecmo type VA | boolean | 0 | 1 | 2019 | 3000 | yes | 763 | |
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119 | os1 | O_S1_Post_Ecmo_type_other | Ecmo other type | boolean | 0 | 1 | 2019 | 3000 | yes | 764 | |
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120 | os1 | O_S1_Post_Ecmo_type_unknown | Ecmo unknown type | boolean | 0 | 1 | 2019 | 3000 | yes | 765 | |
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121 | os1 | O_S1_Post_Ecmo_indic_cardiac | Ecmo cardiac indication | boolean | 0 | 1 | 2019 | 3000 | yes | 766 | |
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122 | os1 | O_S1_Post_Ecmo_indic_resp | Ecmo respiratory indication | boolean | 0 | 1 | 2019 | 3000 | yes | 767 | |
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123 | os1 | O_S1_Post_Ecmo_indic_eCpr | Ecmo eCPR indication | boolean | 0 | 1 | 2019 | 3000 | yes | 768 | |
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124 | os1 | O_S1_Post_Ecmo_indic_unknown | Ecmo unknown indication | boolean | 0 | 1 | 2019 | 3000 | yes | 769 | |
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125 | os1 | O_S1_Post_Ecmo_access | ECMO Access | ordinal / choice_radio | 1 | 4 | 9 | 2019 | 3000 | yes | 770 |
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126 | os1 | O_S1_Post_Ecmo_time | ECMO Timepoint | boolean / choice_radio | 1 | 3 | 9 | 2019 | 3000 | yes | 771 |
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127 | os1 | O_S1_Post_VAD | VAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 772 |
Encoding of values: 0 = no, 1 = yes |
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128 | os1 | O_S1_Post_VAD_implantable | implantable VAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 773 |
Encoding of values: 0 = no, 1 = yes |
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129 | os1 | O_S1_Post_VAD_extracorporeal | extracorporeal VAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 774 |
Encoding of values: 0 = no, 1 = yes |
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130 | os1 | O_S1_Post_VAD_type_LVAD | type LVAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 775 |
Encoding of values: 0 = no, 1 = yes |
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131 | os1 | O_S1_Post_VAD_type_RVAD | type RVAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 776 |
Encoding of values: 0 = no, 1 = yes |
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132 | os1 | O_S1_Post_VAD_type_biVAD | Type biVAD | boolean / choice_radio | 0 | 1 | 9 | 2023 | 3000 | yes | 777 |
Encoding of values: 0 = no, 1 = yes |
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133 | os1 | O_S1_Post_VAD_name | VAD device name | text / text_field | 2023 | 3000 | yes | 778 | |||
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134 | os1 | O_S1_Post_Med_none | Medications post-operative: None | boolean | 0 | 1 | 2019 | 3000 | yes | 779 | |
Encoding of values: 0 = no, 1 = yes |
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135 | os1 | O_S1_Post_Med_epi | Medications post-operative: Epinephrine | boolean | 0 | 1 | 2019 | 3000 | yes | 780 | |
Encoding of values: 0 = no, 1 = yes |
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136 | os1 | O_S1_Post_Med_epi_hour | Medications post-operative: Hours of epinephrine treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 781 |
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137 | os1 | O_S1_Post_Med_nore | Medications post-operative: Norepinephrine | boolean | 0 | 1 | 2019 | 3000 | yes | 782 | |
Encoding of values: 0 = no, 1 = yes |
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138 | os1 | O_S1_Post_Med_nore_hour | Medications post-operative: Hours of norepinephrine treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 783 |
|
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139 | os1 | O_S1_Post_Med_milr | Medications post-operative: Milrinone | boolean | 0 | 1 | 2019 | 3000 | yes | 784 | |
Encoding of values: 0 = no, 1 = yes |
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140 | os1 | O_S1_Post_Med_milr_hour | Medications post-operative: Hours of milrinone treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 785 |
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141 | os1 | O_S1_Post_Med_dobu | Medications post-operative: Dobutamine | boolean | 0 | 1 | 2019 | 3000 | yes | 786 | |
Encoding of values: 0 = no, 1 = yes |
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142 | os1 | O_S1_Post_Med_dobu_hour | Medications post-operative: Hours of dobutamine treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 787 |
|
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143 | os1 | O_S1_Post_Med_dopa | Medications post-operative: Dopamine | boolean | 0 | 1 | 2019 | 3000 | yes | 788 | |
Encoding of values: 0 = no, 1 = yes |
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144 | os1 | O_S1_Post_Med_dopa_hour | Medications post-operative: Hours of dopamine treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 789 |
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145 | os1 | O_S1_Post_Med_levo | Medications post-operative: Levosimendan | boolean | 0 | 1 | 2019 | 3000 | yes | 790 | |
Encoding of values: 0 = no, 1 = yes |
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146 | os1 | O_S1_Post_Med_levo_hour | Medications post-operative: Hours of levosimendan treatment | integer | 1 | 4000 | 9999 | 2019 | 3000 | yes | 791 |
|
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147 | os1 | O_S1_Post_Med_unknown | Unknown medication post surgery | boolean | 0 | 1 | 2019 | 3000 | yes | 792 | |
Encoding of values: 0 = no, 1 = yes |
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148 | os1 | O_S1_Post_Med_other | Medications post-operative: Others | boolean | 0 | 1 | 2019 | 3000 | yes | 793 | |
Encoding of values: 0 = no, 1 = yes |
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149 | os1 | O_S1_Post_Med_other_specify | Medications post-operative: Others specify | text / text_field | 2019 | 3000 | yes | 794 | |||
|
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150 | os1 | O_S1_Post_Arrhythmia | Arrythmia with circulatory compromise | ordinal / choice_radio | 0 | 4 | 9 | 2019 | 3000 | yes | 795 |
Encoding of values: 0 = none, 1 = Tachycardia, 2 = Bradycardia, 3 = AV Block III° |
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151 | os1 | O_S1_Post_Arr_tachy_type | Type of tachycardia | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 796 |
Encoding of values: 0 = none, 1 = Supraventricular tachycardia, 2 = Ventricular tachycardia |
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152 | os1 | O_S1_Post_Arr_tachy_sup_type | Type of supraventricular tachycardia | ordinal / choice_radio | 0 | 4 | 9 | 2019 | 3000 | yes | 797 |
Encoding of values: 0 = none, 1 = AV Reentry, 2 = EAT, 3 = JET, 4 = Other |
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153 | os1 | O_S1_Post_Arr_tachy_sup_type_other | Type of supraventricular tachycardia others | text / text_field | 2019 | 3000 | yes | 798 | |||
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154 | os1 | O_S1_Post_Sup_tachy_treat_none | Treatment of supraventricular tachycardia: None | boolean | 0 | 1 | 2019 | 3000 | yes | 799 | |
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155 | os1 | O_S1_Post_sup_tachy_treat_amio | Treatment of supraventricular tachycardia: Amiodarone | boolean | 0 | 1 | 2019 | 3000 | yes | 800 | |
|
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156 | os1 | O_S1_Post_sup_tachy_treat_adeno | Treatment of supraventricular tachycardia: Adenosine | boolean | 0 | 1 | 2019 | 3000 | yes | 801 | |
|
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157 | os1 | O_S1_Post_sup_tachy_treat_bblock | Treatment of supraventricular tachycardia: beta-Blocker | boolean | 0 | 1 | 2019 | 3000 | yes | 802 | |
|
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158 | os1 | O_S1_Post_sup_tachy_treat_vagman | Treatment of supraventricular tachycardia: Vagal maneuver | boolean | 0 | 1 | 2019 | 3000 | yes | 803 | |
|
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159 | os1 | O_S1_Post_sup_tachy_treat_unknown | Treatment of supraventricular tachycardia: Unknown | boolean | 0 | 1 | 2019 | 3000 | yes | 804 | |
|
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160 | os1 | O_S1_Post_sup_tachy_treat_other | Treatment of supraventricular tachycardia: Other | boolean | 0 | 1 | 2019 | 3000 | yes | 805 | |
|
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161 | os1 | O_S1_Post_sup_tachy_treat_other_specfiy | Treatment of supraventricular tachycardia: Other specific | text / text_field | 9 | 2019 | 3000 | yes | 806 | ||
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162 | os1 | O_S1_Post_Arr_tachy_vent_treat | Treatment of ventricular tachycardia | text / text_area | 2019 | 3000 | yes | 807 | |||
|
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163 | os1 | O_S1_Post_Arr_av_block | AV-Block III° type | ordinal / choice_radio | 0 | 4 | 9 | 2019 | 3000 | yes | 808 |
Encoding of values: 0 = temporary pacing, 1 = permanent pacing (Pacemaker) |
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164 | os1 | O_S1_Post_Intubation_hours | Duration of intubation, postoperative | integer | 0 | 5000 | 9999 | 2019 | 3000 | yes | 809 |
|
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165 | os1 | O_S1_Post_Resp_support | Respiratory support pre-operative | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 810 |
Cumulatively, including redo interventions Encoding of values: 0 = no, 1 = yes |
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166 | os1 | O_S1_Post_Resp_support_hours | Duration of respiratory support (in hours), postoperative | integer | 0 | 5000 | 9999 | 2019 | 3000 | yes | 811 |
|
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167 | os1 | O_S1_Post_No | Nitric oxide | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 812 |
Encoding of values: 0 = no, 1 = yes |
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168 | os1 | O_S1_Post_Oxy | Oxygen | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 813 |
Encoding of values: 0 = no, 1 = yes |
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169 | os1 | O_S1_Post_Creatinine | Creatinine, µmol/l (highest value overall, postoperative) | decimal | 0 | 500 | 999 | 2019 | 3000 | yes | 814 |
|
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170 | os1 | O_S1_Post_Rrt | Renal replacement therapy | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 815 |
Encoding of values: 0 = no, 1 = yes |
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171 | os1 | O_S1_Post_Cx_none | Complications after surgery/interventions: None | boolean | 0 | 1 | 2019 | 3000 | yes | 816 | |
confirmed infection = any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioerative antibiotic prophylaxis) wound infection = any evidence of infection requiring antibiotic therapy which is confirmed on a positive wound swap (despite perioperative prophylaxis) respiratory = pleural effusions(drainage required), pneumothorax, haematothorax cardiogenic NEC = Bell stage 2 or 3, infants with abdominal distension, blood in stool together with abdominal x-ray or ultrasound showing bowel oedema, pneumastosis or pneumoperitoneum Stroke = clinical or MRI LCO syndrome = combination of:
Encoding of values: 0 = no, 1 = yes |
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172 | os1 | O_S1_Post_Cx_infec | Complications after surgery/interventions: Confirmed infection | boolean | 0 | 1 | 2019 | 3000 | yes | 817 | |
Any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioperative anibiotic prophylaxis) Encoding of values: 0 = no, 1 = yes |
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173 | os1 | O_S1_Post_Cx_wound | Complications after surgery/interventions: Wound infection | boolean | 0 | 1 | 2019 | 3000 | yes | 818 | |
Any evidence of infection requiring antibiotic therapy which is confirmed on a wound swab (despite perioperative antibiotic prophylaxis) Encoding of values: 0 = no, 1 = yes |
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174 | os1 | O_S1_Post_Cx_diaph | Complications after surgery/interventions: Diaphragmatic paralysis | boolean | 0 | 1 | 2019 | 3000 | yes | 819 | |
Encoding of values: 0 = no, 1 = yes |
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175 | os1 | O_S1_Post_Cx_chylo | Complications after surgery/interventions: Chylothorax | boolean | 0 | 1 | 2019 | 3000 | yes | 820 | |
Encoding of values: 0 = no, 1 = yes |
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176 | os1 | O_S1_Post_Cx_respi | Complications after surgery/interventions: Respiratory | boolean | 0 | 1 | 2019 | 3000 | yes | 821 | |
Encoding of values: 0 = no, 1 = yes |
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177 | os1 | O_S1_Post_Cx_nec | Complications after surgery/interventions: Cardiogenic NEC | boolean | 0 | 1 | 2019 | 3000 | yes | 822 | |
Encoding of values: 0 = no, 1 = yes |
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178 | os1 | O_S1_Post_Cx_mof | Complications after surgery/interventions: Multi organ failure | boolean | 0 | 1 | 2019 | 3000 | yes | 823 | |
Encoding of values: 0 = no, 1 = yes |
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179 | os1 | O_S1_Post_Cx_stroke | Complications after surgery/interventions: Stroke | boolean | 0 | 1 | 2019 | 3000 | yes | 824 | |
Encoding of values: 0 = no, 1 = yes |
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180 | os1 | O_S1_Post_Cx_seizure_clinical | Complications after surgery/interventions: Clinical Seizures | boolean | 0 | 1 | 2019 | 3000 | yes | 825 | |
Encoding of values: 0 = no, 1 = yes |
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181 | os1 | O_S1_Post_Cx_seizure_subclinical | Complications after surgery/interventions: Subclinical seizures | boolean | 0 | 1 | 2019 | 3000 | yes | 826 | |
Encoding of values: 0 = no, 1 = yes |
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182 | os1 | O_S1_Post_Cx_lco | Complications after surgery/interventions: Low cardiac output syndrome | boolean | 0 | 1 | 2019 | 3000 | yes | 827 | |
Encoding of values: 0 = no, 1 = yes |
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183 | os1 | O_S1_Post_Cx_unknown | Unknown complications post surgery | boolean | 0 | 1 | 2019 | 3000 | yes | 828 | |
Encoding of values: 0 = no, 1 = yes |
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184 | os1 | O_S1_Post_Cx_other | Complications after surgery/interventions: Other | boolean | 0 | 1 | 2019 | 3000 | yes | 829 | |
Encoding of values: 0 = no, 1 = yes |
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185 | os1 | O_S1_Post_Cx_other_specifiy | Complications after surgery/interventions: other specify | text / text_field | 2019 | 3000 | yes | 830 | |||
|
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186 | os1 | O_S1_Post_Cereb_us | Cerebral US post-operative | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 831 |
Encoding of values: 0 = none, 1 = normal, 2 = pathological |
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187 | os1 | O_S1_Post_Cereb_us_patho | Cerebral MRI result phatological | text / text_field | 2019 | 3000 | yes | 832 | |||
|
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188 | os1 | O_S1_Post_Cereb_mri | Cerebral MRI post-operative | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 833 |
Encoding of values: 0 = none, 1 = normal, 2 = pathological |
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189 | os1 | O_S1_Post_Cereb_mri_date | Date at which Cerebral MRI (post-operative) was done | date | 9 | 2019 | 3000 | yes | 834 | ||
|
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190 | os1 | O_S1_Post_Cereb_mri_day | Day of life at which Cerebral MRI (post-operative) was done | integer | 0 | 900 | 999 | 2019 | 3000 | yes | 835 |
|
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191 | os1 | O_S1_Post_Cereb_mri_patho | Cerebral MRI result phatological | text / text_field | 2019 | 3000 | yes | 836 | |||
|
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192 | os1 | O_S1_Post_Death_30_days | Death within 30 days post OP | boolean / choice_radio | 0 | 1 | 9 | 2019 | 3000 | yes | 837 |
Encoding of values: 0 = no, 1 = yes |
|||||||||||
193 | os1 | O_S1_Dis_To | Where was the patitent discharged to? | ordinal / choice_radio | 0 | 3 | 9 | 2019 | 3000 | yes | 837 |
Encoding of values: 0 = still hospitalized, 1 = home, 2 = other hospital, 3 = died |
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194 | os1 | O_S1_Dis_Date | Date of Discharge | date | 9 | 2019 | 3000 | yes | 838 | ||
Date of admission to your hospital until discharge after stage 1 |
|||||||||||
195 | os1 | O_S1_Dis_Day | Day of life at discharge | integer | 1 | 730 | 999 | 2019 | 3000 | yes | 839 |
Day of admission to your hospital until discharge after stage 1 Encoding of values: oDisDay |
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196 | os1 | O_S1_Dis_Icu_Days | Duration of ICU stay until discharge (in days) | integer | 0 | 365 | 999 | 2019 | 3000 | yes | 840 |
|
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197 | os1 | O_S1_Dis_Medication_None | Medication at discharge: none | boolean | 0 | 1 | 2019 | 3000 | yes | 842 | |
Encoding of values: 0 = no, 1 = yes |
|||||||||||
198 | os1 | O_S1_Dis_Medication_Ace | Medication at discharge: ACE Inhibitor | boolean | 0 | 1 | 2019 | 3000 | yes | 843 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
199 | os1 | O_S1_Dis_Medication_Asa | Medication at discharge: Aspirin | boolean | 0 | 1 | 2019 | 3000 | yes | 844 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
200 | os1 | O_S1_Dis_Medication_Bblock | Medication at discharge: Beta-blocker | boolean | 0 | 1 | 2019 | 3000 | yes | 845 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
201 | os1 | O_S1_Dis_Medication_Digoxin | Medications post-operative: Digoxin | boolean | 0 | 1 | 2019 | 3000 | yes | 846 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
202 | os1 | O_S1_Dis_Medication_Enoxaparin | Medication at discharge: Enoxaparin-Natrium | boolean | 0 | 1 | 2019 | 3000 | yes | 847 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
203 | os1 | O_S1_Dis_Medication_Diuretics | Medication at discharge: Diuretics | boolean | 0 | 1 | 2019 | 3000 | yes | 848 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
204 | os1 | O_S1_Dis_Medication_Sildenafil | Medication at discharge: Sildenafil | boolean | 0 | 1 | 2019 | 3000 | yes | 849 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
205 | os1 | O_S1_Dis_Medication_Unknown | Medication at discharge: Unknown | boolean | 0 | 1 | 2019 | 3000 | yes | 850 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
206 | os1 | O_S1_Dis_Medication_Other | Medication at discharge: Other | boolean | 0 | 1 | 2019 | 3000 | yes | 851 | |
all medication, including those in external clinics Encoding of values: 0 = no, 1 = yes |
|||||||||||
207 | os1 | O_S1_Dis_Medication_OtherSpecific | Other medication at discharge | text / text_field | 2019 | 3000 | yes | 852 | |||
all medication, including those in external clinics |
|||||||||||
208 | os1 | O_S1_Dis_Weight | Weight at discharge (kg) | decimal | 1 | 30 | 99 | 2019 | 3000 | yes | 853 |
|
|||||||||||
209 | os1 | O_S1_Dis_Height | Height at discharge (cm) | decimal | 1 | 100 | 999 | 2019 | 3000 | yes | 930 |
|
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210 | os1 | O_S1_Dis_Head_circ | Head circumference at discharge (cm) | decimal | 1 | 50 | 99 | 2019 | 3000 | yes | 935 |
|
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211 | os1 | O_S1_Dis_TcSO2 | tcO2 at discharge (%) | decimal | 30 | 100 | 999 | 2019 | 3000 | yes | 940 |
|
|||||||||||
212 | os1 | O_S1_Dis_Tube_Feed | Tube feeding at discharge | ordinal / choice_radio | 0 | 2 | 9 | 2019 | 3000 | yes | 950 |
Encoding of values: 0 = none, 1 = partial, 2 = full |
|||||||||||
213 | os1 | O_S1_Error_report | text / text_area | 2019 | 3000 | yes | 1180 | ||||
|
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214 | os1 | O_S1_Errorlist_ignore | integer / choice_radio | 3000 | no | ||||||
|
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215 | os1 | O_S1_DS_lockdate | date | 3000 | no | ||||||
|
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216 | os1 | O_S1_Errors | integer | 2019 | 3000 | yes | 1185 | ||||
|