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Version of 08.05.2024. Last major change:
Nr. Dataset Item Description Type Min Max Unknown Start End Export Export
1 os1 O_S1_Email oS1Email E-mail of sender text / text_field 2019 3000 yes 197
 
 
2 os1 O_S1_Cardiac_ventricle oS1CardiacVentricle Cardiac ventricle ordinal / choice_radio 0 4 9 2019 3000 yes 198
 
Encoding of values: 0 = none, 1 = univentricular, 2 = biventricular, 3 = borderline (at birth), 4 = undetermined
 
3 os1 O_S1_Cardiac_Primary_Diagnosis oS1CardiacPrimaryDiagnosis Primary cardiac diagnosis ordinal / choice_radio 1 4 2019 3000 yes 199
 
Encoding of values: 1 = two ventricle heart without arch obstruction, 2 = two ventricle heart with arch obstruction, 3 = single ventricle heart without arch obstruction, 4 = single ventricle heart with arch obstruction
 
4 os1 O_S1_Cardiac_Diagnosis oS1CardiacDiagnosis Cardiac diagnosis ordinal / choice_radio 1 12 2019 3000 yes 200
 
  • simple TGA means only D-TGA
  • complex TGA means: Simple TGA plus, i.e. VSD closure, Aortic arch repair, etc.
  • simple CoA repair means standard extended resection plus end-to-end anastomosis
  • complex CoA repair means simple CoA repair plus, i.e. transverse aortic arch repair etc.

Encoding of values: 1 = HLHS, 2 = HLHC, 3 = dTGA simple, 4 = dTGA complex, 5 = CoA / hypoplastic aortic or interrupted aortic arch, 6 = Common arterial truncus, 7 = PA + VSD / Tetralogy of Fallot, 8 = PA + IVS, 9 = Single ventricle, 10 = Other , 11 = TAPVR / PAPVR, 12 = valvular aortic stenosis
 
5 os1 O_S1_Card_Diag_other oS1CardDiagOther Other Cardiac Diagnosis (not listed) text / text_field 9 2019 3000 yes 201
 
 
6 os1 O_S1_Extracardiac_Comorbidity oS1ExtracardiacComorbidity Extracardiac comorbidity text / text_field 9 2023 3000 yes 202
 
 
7 os1 O_S1_Comments oS1Comments Comments to Orchid data entry text / text_area 2019 3000 yes 205
 
 
8 os1 O_S1_Mom_ageyears oS1MomAgeYears Mother’s age in years decimal 15 100 999 2019 3000 yes 230
 
 
9 os1 O_S1_Anomaly oS1GenAnomaly Genetic anomaly ordinal / choice_select 0 10 99 2019 3000 yes 235
 
Encoding of values: 0 = none, 1 = Trisomy 21 (Down’s syndrome), 2 = Turner’s symdrome, 3 = 22q11 microdeletion with full Di George sequence (including immune dysfunction), 4 = Trisomy 18, 5 = Trisomy 13, 6 = Noonan syndrome, 7 = Williams Beuren syndrome, 8 = Alagille syndrom
 
10 os1 O_S1_Anomaly_other oS1GenAnomalyOther Genetic anomaly other text / text_field 9 2019 3000 yes 240
 
 
11 os1 O_S1_Death oS1Death Death boolean / choice_radio 0 1 9 2019 3000 yes 250
 
Encoding of values: 0 = no, 1 = yes
 
12 os1 O_S1_Date_of_death oS1DateOfDeath Date of death date 9 2019 3000 yes 293
 
 
13 os1 O_S1_Day_of_death oS1DayOfDeath Day of death integer 0 730 999 2019 3000 yes 295
 
 
14 os1 O_S1_Death_cause oS1DeathCause Cause of death text / text_area 9 2019 3000 yes 300
 
 
15 os1 O_S1_Timepoint_chd_diagnosis oS1TimepointChdDiagnosis Timepoint of CHD diagnosis ordinal / choice_radio 0 2 9 2019 3000 yes 301
 
Encoding of values: 0 = prenatal, 1 = postnatal
 
16 os1 O_S1_Type_of_birth_elective_cs oS1TypeOfBirthElectiveCs Type of birth: Elective CS boolean 0 1 2019 3000 yes 302
 
 
17 os1 O_S1_Type_of_birth_secondary_cs oS1TypeOfBirthSecondaryCs Type of birth: Secondary CS boolean 0 1 2019 3000 yes 303
 
 
18 os1 O_S1_Type_of_birth_vag_spont oS1TypeOfBirthVagSpont Type of birth: Vaginal (spontaneous) boolean 0 1 2019 3000 yes 304
 
 
19 os1 O_S1_Type_of_birth_vag_induced oS1TypeOfBirthVagInduced Type of birth: Vaginal (induced) boolean 0 1 2019 3000 yes 305
 
 
20 os1 O_S1_Type_of_birth_unknown oS1TypeOfBirthUnknown Type of birth: Unknown boolean 0 1 2019 3000 yes 306
 
 
21 os1 O_S1_UA_pH oS1UaPh Umbilical artery pH decimal 5 9 99 2019 3000 yes 307
 
 
22 os1 O_S1_Birth_length oS1BirthLength Length at birth decimal 40 60 99 2019 3000 yes 308
 
 
23 os1 O_S1_Head_circ oS1HeadCirc Head circumference in cm decimal 15 50 99 2019 3000 yes 309
 
 
24 os1 O_S1_Apgar1 oS1Apgar1 Apgar 1 min integer 0 10 99 2019 3000 yes 310
 
 
25 os1 O_S1_Apgar5 oS1Apgar5 Apgar 5 min integer 0 10 99 2019 3000 yes 311
 
 
26 os1 O_S1_Apgar10 oS1Apgar10 Apgar 10 min integer 0 10 99 2019 3000 yes 312
 
 
27 os1 O_S1_Lactate oS1Lactate Lactate after birth (peak value in 24 hours) decimal 0 30 99 2019 3000 yes 313
 
 
28 os1 O_S1_Pre_Weight_at_surgery oS1PreWeightAtSurgery Body weight at surgery (in kg, the day before) decimal 1 25 99 2019 3000 yes 314
 
 
29 os1 O_S1_Pre_Head_circ oS1PreHeadCirc Head circumference in cm decimal 17 50 99 2019 3000 yes 315
 
 
30 os1 O_S1_Pre_No_feed oS1PreNoFeed No feeding pre operative boolean 0 1 2019 3000 yes 316
 
Encoding of values: 0 = no, 1 = yes
 
31 os1 O_S1_Pre_Any_tube_feed oS1PreAnyTubeFeed Feeding boolean 0 1 2019 3000 yes 317
 

Parenteral: if the patient receives glucose iv in addition with proteins or proteins and lipids.


Encoding of values: 0 = no, 1 = yes
 
32 os1 O_S1_Pre_Oral_feed oS1PreOralFeed boolean 0 1 2019 3000 yes 318
 
Encoding of values: 0 = no, 1 = yes
 
33 os1 O_S1_Pre_Parenteral_feed oS1PreParenteralFeed boolean 0 1 2019 3000 yes 319
 

if the patient receives glucose iv in addition with proteins or proteins and lipids.


Encoding of values: 0 = no, 1 = yes
 
34 os1 O_S1_Pre_Unknown_Feed oS1PreUnknownFeed boolean 0 1 2019 3000 yes 320
 
Encoding of values: 0 = no, 1 = yes
 
35 os1 O_S1_Pre_Seizure oS1PreSeizure Seizure boolean / choice_radio 0 1 9 2019 3000 yes 325
 

Clinical or subclinical identified on aEEG/EEG requiring medical treatment


Encoding of values: 0 = no, 1 = yes
 
36 os1 O_S1_Pre_Cereb_mri oS1PreCerebMri Cerebral MRI pre-operative ordinal / choice_radio 0 2 9 2019 3000 yes 330
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
37 os1 O_S1_Pre_Cereb_mri_patho oS1PreCerebMriPatho Cerebral MRI result phatological text / text_area 2019 3000 yes 335
 
 
38 os1 O_S1_Pre_Cranial_us oS1PreCranialUs Cranial ultrasound pre-operative ordinal / choice_radio 0 2 9 2019 3000 yes 340
 

increased RI value= rated normal


Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
39 os1 O_S1_Pre_Cranial_us_patho oS1PreCranialUsPatho Cranial ultrasound phatological result text / text_area 2019 3000 yes 345
 
 
40 os1 O_S1_Pre_Intubation oS1PreIntubation Intubation pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 350
 

from admission until surgery


Encoding of values: 0 = no, 1 = yes
 
41 os1 O_S1_Pre_Intubation_hours oS1PreIntubationHours Duration of intubation pre-operative (in hours) integer 0 1200 9999 2019 3000 yes 355
 
 
42 os1 O_S1_Pre_Resp_support oS1PreRespSupport Respiratory support pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 360
 

High flow nasal oxygen, CPAP, NIV (non-invasive ventilation) (admission until surgery)


Encoding of values: 0 = no, 1 = yes
 
43 os1 O_S1_Pre_Resp_support_hours oS1PreRespSupportHours Duration of respiratory support, pre-operative (in hours) integer 0 1200 9999 2019 3000 yes 365
 
 
44 os1 O_S1_Pre_Med_none oS1PreMedNone Medications pre-operative: None boolean 0 1 2019 3000 yes 368
 
Encoding of values: 0 = no, 1 = yes
 
45 os1 O_S1_Pre_Med_epi oS1PreMedEpi Medications pre-operative: Epinephrine boolean 0 1 2019 3000 yes 370
 
Encoding of values: 0 = no, 1 = yes
 
46 os1 O_S1_Pre_Med_nore oS1PreMedNore Medications pre-operative: Norepinephrine boolean 0 1 2019 3000 yes 375
 
Encoding of values: 0 = no, 1 = yes
 
47 os1 O_S1_Pre_Med_milr oS1PreMedMilr Medications pre-operative: Milrinone boolean 0 1 2019 3000 yes 380
 
Encoding of values: 0 = no, 1 = yes
 
48 os1 O_S1_Pre_Med_prost oS1PreMedProst Medications pre-operative: Prostaglandine boolean 0 1 2019 3000 yes 385
 
Encoding of values: 0 = no, 1 = yes
 
49 os1 O_S1_Pre_Med_dobu oS1PreMedDobu Medications pre-operative: Dobutamine boolean 0 1 2019 3000 yes 390
 
Encoding of values: 0 = no, 1 = yes
 
50 os1 O_S1_Pre_Med_dopa oS1PreMedDopa Medications pre-operative: Dopamine boolean 0 1 2019 3000 yes 395
 
Encoding of values: 0 = no, 1 = yes
 
51 os1 O_S1_Pre_Med_levo oS1PreMedLevo Medications pre-operative: Levosimendan boolean 0 1 2019 3000 yes 400
 
Encoding of values: 0 = no, 1 = yes
 
52 os1 O_S1_Pre_Med_unknown oS1PreMedUnknown Medications pre-operative: Unknown boolean 0 1 2019 3000 yes 405
 
Encoding of values: 0 = no, 1 = yes
 
53 os1 O_S1_Pre_Med_other oS1PreMedOther Medications pre-operative: Others boolean 0 1 2019 3000 yes 406
 
Encoding of values: 0 = no, 1 = yes
 
54 os1 O_S1_Pre_Med_other_specify oS1PreMedOtherSpecify Medications pre-operative: Others specify text / text_field 2019 3000 yes 407
 
 
55 os1 O_S1_Pre_TcSo2 oS1PreTcSo2 Preductal tcSo2 at surgery (mean value) decimal 30 100 999 2019 3000 yes 410
 
 
56 os1 O_S1_Pre_Haematocrit oS1PreHaematocrit Haematocrit % (mean value) decimal 20 60 99 2019 3000 yes 415
 
 
57 os1 O_S1_Pre_Creatinine oS1PreCreatinine Creatinine, µmol/l (highest value) decimal 0 500 999 2019 3000 yes 420
 
 
58 os1 O_S1_Pre_Lactate oS1PreLactate Lactate mmol/l (peak value in 24h) decimal 0 30 99 2019 3000 yes 425
 
 
59 os1 O_S1_Pre_Resuscitation oS1PreResuscitation Resuscitation boolean / choice_radio 0 1 9 2019 3000 yes 430
 

Cardiopulmonary resuscitation requiring chest compressions


Encoding of values: 0 = no, 1 = yes
 
60 os1 O_S1_Pre_Catheter oS1PreCatheter Cardiac catheter intervention boolean / choice_radio 0 1 9 2019 3000 yes 435
 
Encoding of values: 0 = no, 1 = yes
 
61 os1 O_S1_Pre_Catheter_type oS1PreCatheterType Cardiac catheter type ordinal / choice_radio 0 2 2019 3000 yes 440
 
Encoding of values: 0 = none, 1= BAS, 2 = Ballon dilatation, 3 = Other
 
62 os1 O_S1_Pre_Catheter_type_other oS1PreCatheterTypeOther Cardiac catheter type text / text_field 2019 3000 yes 445
 
 
63 os1 O_S1_Pre_Catheter_date oS1PreCatheterDate Catheter date date 9 2019 3000 yes 446
 
 
64 os1 O_S1_Pre_Catheter_day oS1PreCatheterDay Catheter day integer 1 1200 9999 2019 3000 yes 447
 
 
65 os1 O_S1_Surg_date oS1SurgDate Date of surgery/cardiac catheterization date 9 2019 3000 yes 448
 
 
66 os1 O_S1_Surg_Age oS1SurgAge Age at surgery/cardiac catheterization (days) integer 0 900 999 2019 3000 yes 450
 
 
67 os1 O_S1_Surg_Dhca_time oS1SurgDhcaTime Deep hypothermic cardiac arrest time (minutes) decimal 0 120 999 2019 2020 yes 452
 

main surgery stage 1


 
68 os1 O_S1_Surg_Bypass oS1SurgBypass Cardiac surgery with cardiopulmonary bypass ordinal / choice_radio 0 3 9 2019 3000 yes 455
 
Encoding of values: 0 = no, 1 = yes, 2 = Hybrid, 3 = Interventional heart catheter
 
69 os1 O_S1_Surg_Heart_Cat oS1SurgHeartCat Interventional heart catheter boolean / choice_radio 0 1 2019 3000 yes 456
 
Encoding of values: 0 = no, 1 = yes
 
70 os1 O_S1_Surg_Heart_Cat_Type oS1SurgHeartCatType Type of the interventional heart catheter (if used) ordinal / choice_radio 0 2 2019 3000 yes 457
 
 
71 os1 O_S1_Surg_Heart_Cat_Other oS1SurgHeartCatOther Interventional heart catheter text / text_field 9 2019 3000 yes 458
 
 
72 os1 O_S1_Surg_Surg_none oS1SurgSurgNone Cardiac surgery type: None boolean 0 1 2019 3000 yes 460
 
 
73 os1 O_S1_Surg_Surg_norwood oS1SurgSurgNorwood Cardiac surgery type: Norwood Stage 1 boolean 0 1 2019 3000 yes 462
 
 
74 os1 O_S1_Surg_Surg_As_simple oS1SurgSurgAsSimple Cardiac surgery type: Arterial switch - simple boolean 0 1 2019 3000 yes 463
 
 
75 os1 O_S1_Surg_Surg_As_complex oS1SurgSurgAsComplex Cardiac surgery type: Arterial switch - complex boolean 0 1 2019 3000 yes 464
 
 
76 os1 O_S1_Surg_Surg_shunt_mbts oS1SurgSurgShuntMbts Cardiac surgery type: Shunt procedure - mBTS right boolean 0 1 2019 3000 yes 465
 
 
77 os1 O_S1_Surg_Surg_shunt_sano oS1SurgSurgShuntSano Cardiac surgery type: Shunt procedure - RV PA Sano shunt boolean 0 1 2019 3000 yes 466
 
 
78 os1 O_S1_Surg_Surg_shunt_ap oS1SurgSurgShuntAp Cardiac surgery type: Shunt procedure - central AP shunt boolean 0 1 2019 3000 yes 467
 
 
79 os1 O_S1_Surg_Surg_pa_central oS1SurgSurgPaCentral Cardiac surgery type: Pulmonary artery banding - central boolean 0 1 2019 3000 yes 468
 
 
80 os1 O_S1_Surg_Surg_pa_bilat oS1SurgSurgPaBilat Cardiac surgery type: Pulmonary artery banding - bilateral boolean 0 1 2019 3000 yes 469
 
 
81 os1 O_S1_Surg_Surg_Aa_Coasimple oS1SurgSurgAaCoaSimple Cardiac surgery type: Aortic arch surgery - CoA repair simple boolean 0 1 2019 3000 yes 470
 
 
82 os1 O_S1_Surg_Surg_Aa_Coacomplex oS1SurgSurgAaCoaComplex Cardiac surgery type: Aortic arch surgery - CoA repair complex boolean 0 1 2019 3000 yes 471
 
 
83 os1 O_S1_Surg_Surg_Aa_interr oS1SurgSurgAaInterr Cardiac surgery type: Aortic arch surgery - interrupted aortic arch boolean 0 1 2019 3000 yes 472
 
 
84 os1 O_S1_Surg_Surg_Av_valve oS1SurgSurgAvValve Cardiac surgery type: Aortic valve surgery - aortic valvuloplasty boolean 0 1 2019 3000 yes 473
 
 
85 os1 O_S1_Surg_Surg_Av_ross oS1SurgSurgAvRoss Cardiac surgery type: Aortic valve surgery - Ross procedure boolean 0 1 2019 3000 yes 474
 
 
86 os1 O_S1_Surg_Surg_Trunc_rep oS1SurgSurgTruncRep Cardiac surgery type: Truncus repair boolean 0 1 2019 3000 yes 475
 
 
87 os1 O_S1_Surg_Surg_Tapvc_rep oS1SurgSurgTapvcRep Cardiac surgery type: TAPVC repair boolean 0 1 2019 3000 yes 476
 
 
88 os1 O_S1_Surg_Surg_Papvc_rep oS1SurgSurgPapvcRep Cardiac surgery type: PAPVC repair boolean 0 1 2019 3000 yes 477
 
 
89 os1 O_S1_Surg_Surg_Fallot_rep oS1SurgSurgFallotRep Cardiac surgery type: Fallot repair boolean 0 1 2019 3000 yes 478
 
 
90 os1 O_S1_Surg_Surg_unknown oS1SurgSurgUnknown Cardiac surgery type: Unknown boolean 0 1 2019 3000 yes 479
 
 
91 os1 O_S1_Surg_Surg_other oS1SurgSurgOther Cardiac surgery type: Other type boolean 0 1 2019 3000 yes 480
 
 
92 os1 O_S1_Surg_Surg_type_other oS1SurgSurgTypeOther Cardiac surgery other text / text_field 2019 3000 yes 481
 
 
93 os1 O_S1_Surg_Rachs_score oS1SurgRachsScore RACHS score integer 0 6 99 2019 3000 yes 482
 

###RACHS - Risk adjustment for congenital heart surgery

Individual procedures by risk category


##### Risk category 1 - Atrial septal defect surgery (including atrial septal defect secundum, sinus venosus atrial septal defect, *patent foramen ovale closure) - Aortopexy - Patent ductus arteriosus surgery at age >30 d - Coarctation repair at age >30 d - Partially anomalous pulmonary venous connection surgery ##### Risk category 2 - Aortic valvotomy or valvuloplasty at age >30 d - Subaortic stenosis resection - Pulmonary valvotomy or valvuloplasty - Pulmonary valve replacement - Right ventricular infundibulectomy - Pulmonary outflow tract augmentation - Repair of coronary artery fistula - Atrial septal defect and ventricular septal defect repair - Atrial septal defect primum repair - Ventricular septal defect repair - Ventricular septal defect closure and pulmonary valvotomy or infundibular resection - Ventricular septal defect closure and pulmonary artery band removal - Repair of unspecified septal defect - Total repair of tetralogy of Fallot - Repair of total anomalous pulmonary veins at age >30 d - Glenn shunt - Vascular ring surgery - Repair of aorta-pulmonary window - Coarctation repair at age ≤30 d - Repair of pulmonary artery stenosis - Transection of pulmonary artery - Common atrium closure - Left ventricular to right atrial shunt repair ##### Risk category 3 - Aortic valve replacement - Ross procedure - Left ventricular outflow tract patch - Ventriculomyotomy - Aortoplasty - Mitral valvotomy or valvuloplasty - Mitral valve replacement - Valvectomy of tricuspid valve - Tricuspid valvotomy or valvuloplasty - Tricuspid valve replacement - Tricuspid valve repositioning for Ebstein anomaly at age >30 d - Repair of anomalous coronary artery without intrapulmonary tunnel - Repair of anomalous coronary artery with intrapulmonary tunnel (Takeuchi) - Closure of semilunar valve, aortic or pulmonary - Right ventricular to pulmonary artery conduit - Left ventricular to pulmonary artery conduit - Repair of double-outlet right ventricle with or without repair of right ventricular obstruction - Fontan procedure - Repair of transitional or complete atrioventricular canal with or without valve replacement - Pulmonary artery banding - Repair of tetralogy of Fallot with pulmonary atresia - Repair of cor triatriatum - Systemic to pulmonary artery shunt - Atrial switch operation - Arterial switch operation - Reimplantation of anomalous pulmonary artery - Annuloplasty - Repair of coarctation and ventricular septal defect closure - Excision of intracardiac tumor ##### Risk category 4 - Aortic valvotomy or valvuloplasty at age ≤30 d - Konno procedure - Repair of complex anomaly (single ventricle) by ventricular septal defect enlargement - Repair of total anomalous pulmonary veins at age ≤30 d - Atrial septectomy - Repair of transposition, ventricular septal defect, and subpulmonary stenosis (Rastelli) - Atrial switch operation with ventricular septal defect closure - Atrial switch operation with repair of subpulmonary stenosis - Arterial switch operation with pulmonary artery band removal - Arterial switch operation with ventricular septal defect closure - Arterial switch operation with repair of subpulmonary stenosis - Repair of truncus arteriosus - Repair of hypoplastic or interrupted arch without ventricular septal defect closure - Repair of hypoplastic or interrupted aortic arch with ventricular septal defect closure - Transverse arch graft - Unifocalization for tetralogy of Fallot and pulmonary atresia - Double switch ##### Risk category 5 - Tricuspid valve repositioning for neonatal Ebstein anomaly at age ≤30 d - Repair of truncus arteriosus and interrupted arch ##### Risk category 6 - Stage 1 repair of hypoplastic left heart syndrome (Norwood operation) - Stage 1 repair of nonhypoplastic left heart syndrome conditions - Damus-Kaye-Stansel procedure
Jenkins *et al.*, **Consensus-based method for risk adjustment for surgery for congenital heart disease.** *J. Thorac.*, Jan 2002, 123(1), 110-118
 
94 os1 O_S1_Surg_Cicu_discharge_date oS1SurgCicuDischargeDate CICU discharge date date 9 2019 3000 yes 483
 
 
95 os1 O_S1_Surg_Cicu_discharge_day oS1SurgCicuDischargeDay CICU discharge day integer 1 730 999 2019 3000 yes 484
 

after main surgery stage 1


Encoding of values: oSurgCicuDischargeDay
 
96 os1 O_S1_Surg_Bypass_time oS1SurgBypassTime Cardiopulmonary bypass time (minutes) decimal 0 500 999 2019 3000 yes 485
 

Main intervention stage 1


 
97 os1 O_S1_Surg_Cross_clamp_time oS1SurgCrossClampTime Aortic cross clamp time (minutes) decimal 0 300 999 2019 3000 yes 490
 

Main intervention stage 1


 
98 os1 O_S1_Surg_Circ_arrest_time oS1SurgCircArrestTime Circulatory arrest time (minutes) decimal 0 300 999 2019 3000 yes 495
 

main surgery stage 1


 
99 os1 O_S1_Surg_Cereb_perf oS1SurgCerebPerf Antegrade cerebral perfusion boolean / choice_radio 0 1 9 2019 3000 yes 500
 

main surgery stage 1


Encoding of values: 0 = no, 1 = yes
 
100 os1 O_S1_Surg_Cereb_perf_time oS1SurgCerebPerfTime Antegrade cerebral perfusion (minutes) decimal 0 120 999 2019 3000 yes 502
 

main surgery stage 1


 
101 os1 O_S1_Surg_Low_temp_bypass oS1SurgLowTempBypass Lowest temperature on bypass (degree C) decimal 15 40 99 2019 3000 yes 506
 

main surgery stage 1


 
102 os1 O_S1_Surg_Ultrafiltration oS1SurgUltrafiltration Ultrafiltration during/after bypass surgery boolean / choice_radio 0 1 9 2019 3000 yes 508
 

main surgery stage 1


 
103 os1 O_S1_Post_Lactate oS1PostLactate Lactate mmol/l first 24 h (highest value first 24 h) decimal 0 30 99 2019 3000 yes 525
 
 
104 os1 O_S1_Post_Redo oS1PostRedo Corrective or redo surgery of the previous surgery boolean / choice_radio 0 1 9 2019 3000 yes 550
 

Any redo surgery of the main stage 1 surgery/intervention until discharge after stage 1


Encoding of values: 0 = no, 1 = yes
 
105 os1 O_S1_Post_Redo_Hlm oS1PostRedoHlm Was a heart-lung machine used? boolean / choice_radio 0 1 9 2019 3000 yes 654
 
Encoding of values: 0 = no, 1 = yes
 
106 os1 O_S1_Post_Ecmo_days oS1PostEcmoDays ECMO duration (in days) integer 0 21 999 2019 2020 yes 738
 
 
107 os1 O_S1_Post_Redo_Hlm_Count oS1PostRedoHlmCount How many redo surgeries with a heart-lung machine were done? integer 0 20 99 2019 3000 yes 748
 
 
108 os1 O_S1_Post_Redo_No_Hlm oS1PostRedoNoHlm Were redo surgeries without a heart-lung machine done? boolean / choice_radio 0 1 9 2019 3000 yes 749
 
Encoding of values: 0 = no, 1 = yes
 
109 os1 O_S1_Post_Redo_No_Hlm_Count oS1PostRedoNoHlmCount How many redo surgeries without a heart-lung machine were done? integer 1 20 99 2019 3000 yes 750
 
 
110 os1 O_S1_Post_Hc oS1PostHc Heart catheter used until discharge boolean / choice_radio 0 1 9 2019 3000 yes 755
 

Any heart catheter intervention after main surgery/intervention stage 1 until discharge stage 1


 
111 os1 O_S1_Post_Hc_Count oS1PostHcCount How many times was a heart catheter used until discharge integer 0 30 99 2019 3000 yes 756
 
 
112 os1 O_S1_Post_Resuscitation oS1PostResuscitation Resuscitation boolean / choice_radio 0 1 9 2019 3000 yes 757
 

Cardiopulmonary resuscitation requiring chest compressions post OP stage 1 until discharge stage 1


Encoding of values: 0 = no, 1 = yes
 
113 os1 O_S1_Post_Cpr_duration oS1PostCprDuration Duration CPR (minutes) decimal 0 990 999 2019 3000 yes 758
 
 
114 os1 O_S1_Post_Ecmo oS1PostEcmo ECMO boolean / choice_radio 0 1 9 2019 3000 yes 759
 
Encoding of values: 0 = no, 1 = yes
 
115 os1 O_S1_Post_Ecmo_hours oS1PostEcmoHours ECMO duration (in hours) integer 0 400 999 2019 3000 yes 760
 
 
116 os1 O_S1_Post_Ecmo_Multiple oS1PostEcmoMultiple Multiple ECMO runs boolean / choice_radio 0 1 9 2023 3000 yes 761
 
Encoding of values: 0 = no, 1 = yes
 
117 os1 O_S1_Post_Ecmo_type_vv oS1PostEcmoTypeVv Ecmo type VV boolean 0 1 2019 3000 yes 762
 
 
118 os1 O_S1_Post_Ecmo_type_va oS1PostEcmoTypeVa Ecmo type VA boolean 0 1 2019 3000 yes 763
 
 
119 os1 O_S1_Post_Ecmo_type_other oS1PostEcmoTypeOther Ecmo other type boolean 0 1 2019 3000 yes 764
 
 
120 os1 O_S1_Post_Ecmo_type_unknown oS1PostEcmoTypeUnknown Ecmo unknown type boolean 0 1 2019 3000 yes 765
 
 
121 os1 O_S1_Post_Ecmo_indic_cardiac oS1PostEcmoIndicCardiac Ecmo cardiac indication boolean 0 1 2019 3000 yes 766
 
 
122 os1 O_S1_Post_Ecmo_indic_resp oS1PostEcmoIndicResp Ecmo respiratory indication boolean 0 1 2019 3000 yes 767
 
 
123 os1 O_S1_Post_Ecmo_indic_eCpr oS1PostEcmoIndicEcpr Ecmo eCPR indication boolean 0 1 2019 3000 yes 768
 
 
124 os1 O_S1_Post_Ecmo_indic_unknown oS1PostEcmoIndicUnknown Ecmo unknown indication boolean 0 1 2019 3000 yes 769
 
 
125 os1 O_S1_Post_Ecmo_access oS1PostEcmoAccess ECMO Access ordinal / choice_radio 1 4 9 2019 3000 yes 770
 
 
126 os1 O_S1_Post_Ecmo_time oS1PostEcmoTime ECMO Timepoint boolean / choice_radio 1 3 9 2019 3000 yes 771
 
 
127 os1 O_S1_Post_VAD oS1PostVad VAD boolean / choice_radio 0 1 9 2023 3000 yes 772
 
Encoding of values: 0 = no, 1 = yes
 
128 os1 O_S1_Post_VAD_implantable oS1PostVadImplantable implantable VAD boolean / choice_radio 0 1 9 2023 3000 yes 773
 
Encoding of values: 0 = no, 1 = yes
 
129 os1 O_S1_Post_VAD_extracorporeal oS1PostVadExtracorporeal extracorporeal VAD boolean / choice_radio 0 1 9 2023 3000 yes 774
 
Encoding of values: 0 = no, 1 = yes
 
130 os1 O_S1_Post_VAD_type_LVAD oS1PostVadTypeLvad type LVAD boolean / choice_radio 0 1 9 2023 3000 yes 775
 
Encoding of values: 0 = no, 1 = yes
 
131 os1 O_S1_Post_VAD_type_RVAD oS1PostVadTypeRvad type RVAD boolean / choice_radio 0 1 9 2023 3000 yes 776
 
Encoding of values: 0 = no, 1 = yes
 
132 os1 O_S1_Post_VAD_type_biVAD oS1PostVadTypeBivad Type biVAD boolean / choice_radio 0 1 9 2023 3000 yes 777
 
Encoding of values: 0 = no, 1 = yes
 
133 os1 O_S1_Post_VAD_name oS1PostVadName VAD device name text / text_field 2023 3000 yes 778
 
 
134 os1 O_S1_Post_Med_none oS1PostMedNone Medications post-operative: None boolean 0 1 2019 3000 yes 779
 
Encoding of values: 0 = no, 1 = yes
 
135 os1 O_S1_Post_Med_epi oS1PostMedEpi Medications post-operative: Epinephrine boolean 0 1 2019 3000 yes 780
 
Encoding of values: 0 = no, 1 = yes
 
136 os1 O_S1_Post_Med_epi_hour oS1PostMedEpiHour Medications post-operative: Hours of epinephrine treatment integer 1 4000 9999 2019 3000 yes 781
 
 
137 os1 O_S1_Post_Med_nore oS1PostMedNore Medications post-operative: Norepinephrine boolean 0 1 2019 3000 yes 782
 
Encoding of values: 0 = no, 1 = yes
 
138 os1 O_S1_Post_Med_nore_hour oS1PostMedNoreHour Medications post-operative: Hours of norepinephrine treatment integer 1 4000 9999 2019 3000 yes 783
 
 
139 os1 O_S1_Post_Med_milr oS1PostMedMilr Medications post-operative: Milrinone boolean 0 1 2019 3000 yes 784
 
Encoding of values: 0 = no, 1 = yes
 
140 os1 O_S1_Post_Med_milr_hour oS1PostMedMilrHour Medications post-operative: Hours of milrinone treatment integer 1 4000 9999 2019 3000 yes 785
 
 
141 os1 O_S1_Post_Med_dobu oS1PostMedDobu Medications post-operative: Dobutamine boolean 0 1 2019 3000 yes 786
 
Encoding of values: 0 = no, 1 = yes
 
142 os1 O_S1_Post_Med_dobu_hour oS1PostMedDobuHour Medications post-operative: Hours of dobutamine treatment integer 1 4000 9999 2019 3000 yes 787
 
 
143 os1 O_S1_Post_Med_dopa oS1PostMedDopa Medications post-operative: Dopamine boolean 0 1 2019 3000 yes 788
 
Encoding of values: 0 = no, 1 = yes
 
144 os1 O_S1_Post_Med_dopa_hour oS1PostMedDopaHour Medications post-operative: Hours of dopamine treatment integer 1 4000 9999 2019 3000 yes 789
 
 
145 os1 O_S1_Post_Med_levo oS1PostMedLevo Medications post-operative: Levosimendan boolean 0 1 2019 3000 yes 790
 
Encoding of values: 0 = no, 1 = yes
 
146 os1 O_S1_Post_Med_levo_hour oS1PostMedLevoHour Medications post-operative: Hours of levosimendan treatment integer 1 4000 9999 2019 3000 yes 791
 
 
147 os1 O_S1_Post_Med_unknown oS1PostMedUnknown Unknown medication post surgery boolean 0 1 2019 3000 yes 792
 
Encoding of values: 0 = no, 1 = yes
 
148 os1 O_S1_Post_Med_other oS1PostMedOther Medications post-operative: Others boolean 0 1 2019 3000 yes 793
 
Encoding of values: 0 = no, 1 = yes
 
149 os1 O_S1_Post_Med_other_specify oS1PostMedOtherSpecify Medications post-operative: Others specify text / text_field 2019 3000 yes 794
 
 
150 os1 O_S1_Post_Arrhythmia oS1PostArrhythmia Arrythmia with circulatory compromise ordinal / choice_radio 0 4 9 2019 3000 yes 795
 
Encoding of values: 0 = none, 1 = Tachycardia, 2 = Bradycardia, 3 = AV Block III°
 
151 os1 O_S1_Post_Arr_tachy_type oS1PostArrTachyType Type of tachycardia ordinal / choice_radio 0 2 9 2019 3000 yes 796
 
Encoding of values: 0 = none, 1 = Supraventricular tachycardia, 2 = Ventricular tachycardia
 
152 os1 O_S1_Post_Arr_tachy_sup_type oS1PostArrTachySupType Type of supraventricular tachycardia ordinal / choice_radio 0 4 9 2019 3000 yes 797
 
Encoding of values: 0 = none, 1 = AV Reentry, 2 = EAT, 3 = JET, 4 = Other
 
153 os1 O_S1_Post_Arr_tachy_sup_type_other oS1PostArrTachySupTypeOther Type of supraventricular tachycardia others text / text_field 2019 3000 yes 798
 
 
154 os1 O_S1_Post_Sup_tachy_treat_none oS1PostSupTachyTreatNone Treatment of supraventricular tachycardia: None boolean 0 1 2019 3000 yes 799
 
 
155 os1 O_S1_Post_sup_tachy_treat_amio oS1PostSupTachyTreatAmio Treatment of supraventricular tachycardia: Amiodarone boolean 0 1 2019 3000 yes 800
 
 
156 os1 O_S1_Post_sup_tachy_treat_adeno oS1PostSupTachyTreatAdeno Treatment of supraventricular tachycardia: Adenosine boolean 0 1 2019 3000 yes 801
 
 
157 os1 O_S1_Post_sup_tachy_treat_bblock oS1PostSupTachyTreatBblock Treatment of supraventricular tachycardia: beta-Blocker boolean 0 1 2019 3000 yes 802
 
 
158 os1 O_S1_Post_sup_tachy_treat_vagman oS1PostSupTachyTreatVagman Treatment of supraventricular tachycardia: Vagal maneuver boolean 0 1 2019 3000 yes 803
 
 
159 os1 O_S1_Post_sup_tachy_treat_unknown oS1PostSupTachyTreatUnknown Treatment of supraventricular tachycardia: Unknown boolean 0 1 2019 3000 yes 804
 
 
160 os1 O_S1_Post_sup_tachy_treat_other oS1PostSupTachyTreatOther Treatment of supraventricular tachycardia: Other boolean 0 1 2019 3000 yes 805
 
 
161 os1 O_S1_Post_sup_tachy_treat_other_specfiy oS1PostSupTachyTreatOtherSpecify Treatment of supraventricular tachycardia: Other specific text / text_field 9 2019 3000 yes 806
 
 
162 os1 O_S1_Post_Arr_tachy_vent_treat oS1PostArrTachyVentTreat Treatment of ventricular tachycardia text / text_area 2019 3000 yes 807
 
 
163 os1 O_S1_Post_Arr_av_block oS1PostArrAvBlock AV-Block III° type ordinal / choice_radio 0 4 9 2019 3000 yes 808
 
Encoding of values: 0 = temporary pacing, 1 = permanent pacing (Pacemaker)
 
164 os1 O_S1_Post_Intubation_hours oS1PostIntubationHours Duration of intubation, postoperative integer 0 5000 9999 2019 3000 yes 809
 
 
165 os1 O_S1_Post_Resp_support oS1PostRespSupport Respiratory support pre-operative boolean / choice_radio 0 1 9 2019 3000 yes 810
 

Cumulatively, including redo interventions


Encoding of values: 0 = no, 1 = yes
 
166 os1 O_S1_Post_Resp_support_hours oS1PostRespSupportHours Duration of respiratory support (in hours), postoperative integer 0 5000 9999 2019 3000 yes 811
 
 
167 os1 O_S1_Post_No oS1PostNo Nitric oxide boolean / choice_radio 0 1 9 2019 3000 yes 812
 
Encoding of values: 0 = no, 1 = yes
 
168 os1 O_S1_Post_Oxy oS1PostOxy Oxygen boolean / choice_radio 0 1 9 2019 3000 yes 813
 
Encoding of values: 0 = no, 1 = yes
 
169 os1 O_S1_Post_Creatinine oS1PostCreatinine Creatinine, µmol/l (highest value overall, postoperative) decimal 0 500 999 2019 3000 yes 814
 
 
170 os1 O_S1_Post_Rrt oS1PostRrt Renal replacement therapy boolean / choice_radio 0 1 9 2019 3000 yes 815
 
Encoding of values: 0 = no, 1 = yes
 
171 os1 O_S1_Post_Cx_none oS1PostCxNone Complications after surgery/interventions: None boolean 0 1 2019 3000 yes 816
 

confirmed infection = any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioerative antibiotic prophylaxis)

wound infection = any evidence of infection requiring antibiotic therapy which is confirmed on a positive wound swap (despite perioperative prophylaxis)

respiratory = pleural effusions(drainage required), pneumothorax, haematothorax

cardiogenic NEC = Bell stage 2 or 3, infants with abdominal distension, blood in stool together with abdominal x-ray or ultrasound showing bowel oedema, pneumastosis or pneumoperitoneum

Stroke = clinical or MRI

LCO syndrome = combination of:
  • mean blood pressure lower than 5th percentile of age-related normal values and/or increased inotropics/vasopressors required to achieve this blood pressure goal
  • difference between the arterial oxygen saturation (SaO2) and central venous oxygen saturation (ScvO2) value of >35% or Scv=2<60% for non cyanotoc patients
  • urine output <1ml/kg/hr
  • peripheral temperature <32°C in the absence of the use of target temperature management
  • serum lactate >2mmol/L

Encoding of values: 0 = no, 1 = yes
 
172 os1 O_S1_Post_Cx_infec oS1PostCxInfec Complications after surgery/interventions: Confirmed infection boolean 0 1 2019 3000 yes 817
 

Any evidence of infection requiring antibiotic therapy which is confirmed on microbiological culture (despite perioperative anibiotic prophylaxis)


Encoding of values: 0 = no, 1 = yes
 
173 os1 O_S1_Post_Cx_wound oS1PostCxWound Complications after surgery/interventions: Wound infection boolean 0 1 2019 3000 yes 818
 

Any evidence of infection requiring antibiotic therapy which is confirmed on a wound swab (despite perioperative antibiotic prophylaxis)


Encoding of values: 0 = no, 1 = yes
 
174 os1 O_S1_Post_Cx_diaph oS1PostCxDiaph Complications after surgery/interventions: Diaphragmatic paralysis boolean 0 1 2019 3000 yes 819
 
Encoding of values: 0 = no, 1 = yes
 
175 os1 O_S1_Post_Cx_chylo oS1PostCxChylo Complications after surgery/interventions: Chylothorax boolean 0 1 2019 3000 yes 820
 
Encoding of values: 0 = no, 1 = yes
 
176 os1 O_S1_Post_Cx_respi oS1PostCxRespi Complications after surgery/interventions: Respiratory boolean 0 1 2019 3000 yes 821
 
Encoding of values: 0 = no, 1 = yes
 
177 os1 O_S1_Post_Cx_nec oS1PostCxNec Complications after surgery/interventions: Cardiogenic NEC boolean 0 1 2019 3000 yes 822
 
Encoding of values: 0 = no, 1 = yes
 
178 os1 O_S1_Post_Cx_mof oS1PostCxMof Complications after surgery/interventions: Multi organ failure boolean 0 1 2019 3000 yes 823
 
Encoding of values: 0 = no, 1 = yes
 
179 os1 O_S1_Post_Cx_stroke oS1PostCxStroke Complications after surgery/interventions: Stroke boolean 0 1 2019 3000 yes 824
 
Encoding of values: 0 = no, 1 = yes
 
180 os1 O_S1_Post_Cx_seizure_clinical oS1PostCxSeizureClinical Complications after surgery/interventions: Clinical Seizures boolean 0 1 2019 3000 yes 825
 
Encoding of values: 0 = no, 1 = yes
 
181 os1 O_S1_Post_Cx_seizure_subclinical oS1PostCxSeizureSubclinical Complications after surgery/interventions: Subclinical seizures boolean 0 1 2019 3000 yes 826
 
Encoding of values: 0 = no, 1 = yes
 
182 os1 O_S1_Post_Cx_lco oS1PostCxLco Complications after surgery/interventions: Low cardiac output syndrome boolean 0 1 2019 3000 yes 827
 
Encoding of values: 0 = no, 1 = yes
 
183 os1 O_S1_Post_Cx_unknown oS1PostCxUnknown Unknown complications post surgery boolean 0 1 2019 3000 yes 828
 
Encoding of values: 0 = no, 1 = yes
 
184 os1 O_S1_Post_Cx_other oS1PostCxOther Complications after surgery/interventions: Other boolean 0 1 2019 3000 yes 829
 
Encoding of values: 0 = no, 1 = yes
 
185 os1 O_S1_Post_Cx_other_specifiy oS1PostCxOtherSpecify Complications after surgery/interventions: other specify text / text_field 2019 3000 yes 830
 
 
186 os1 O_S1_Post_Cereb_us oS1PostCerebUs Cerebral US post-operative ordinal / choice_radio 0 2 9 2019 3000 yes 831
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
187 os1 O_S1_Post_Cereb_us_patho oS1PostCerebUsPatho Cerebral MRI result phatological text / text_field 2019 3000 yes 832
 
 
188 os1 O_S1_Post_Cereb_mri oS1PostCerebMri Cerebral MRI post-operative ordinal / choice_radio 0 2 9 2019 3000 yes 833
 
Encoding of values: 0 = none, 1 = normal, 2 = pathological
 
189 os1 O_S1_Post_Cereb_mri_date oS1PostCerebMriDate Date at which Cerebral MRI (post-operative) was done date 9 2019 3000 yes 834
 
 
190 os1 O_S1_Post_Cereb_mri_day oS1PostCerebMriDay Day of life at which Cerebral MRI (post-operative) was done integer 0 900 999 2019 3000 yes 835
 
 
191 os1 O_S1_Post_Cereb_mri_patho oS1PostCerebMriPatho Cerebral MRI result phatological text / text_field 2019 3000 yes 836
 
 
192 os1 O_S1_Post_Death_30_days oS1PostDeath30Days Death within 30 days post OP boolean / choice_radio 0 1 9 2019 3000 yes 837
 
Encoding of values: 0 = no, 1 = yes
 
193 os1 O_S1_Dis_To oS1DisTo Where was the patitent discharged to? ordinal / choice_radio 0 3 9 2019 3000 yes 837
 
Encoding of values: 0 = still hospitalized, 1 = home, 2 = other hospital, 3 = died
 
194 os1 O_S1_Dis_Date oS1DisDate Date of Discharge date 9 2019 3000 yes 838
 

Date of admission to your hospital until discharge after stage 1


 
195 os1 O_S1_Dis_Day oS1DisDay Day of life at discharge integer 1 730 999 2019 3000 yes 839
 

Day of admission to your hospital until discharge after stage 1


Encoding of values: oDisDay
 
196 os1 O_S1_Dis_Icu_Days oS1DisIcuDays Duration of ICU stay until discharge (in days) integer 0 365 999 2019 3000 yes 840
 
 
197 os1 O_S1_Dis_Medication_None oS1DisMedicationNone Medication at discharge: none boolean 0 1 2019 3000 yes 842
 
Encoding of values: 0 = no, 1 = yes
 
198 os1 O_S1_Dis_Medication_Ace oS1DisMedicationAce Medication at discharge: ACE Inhibitor boolean 0 1 2019 3000 yes 843
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
199 os1 O_S1_Dis_Medication_Asa oS1DisMedicationAsa Medication at discharge: Aspirin boolean 0 1 2019 3000 yes 844
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
200 os1 O_S1_Dis_Medication_Bblock oS1DisMedicationBblock Medication at discharge: Beta-blocker boolean 0 1 2019 3000 yes 845
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
201 os1 O_S1_Dis_Medication_Digoxin oS1DisMedicationDigoxin Medications post-operative: Digoxin boolean 0 1 2019 3000 yes 846
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
202 os1 O_S1_Dis_Medication_Enoxaparin oS1DisMedicationEnoxaparin Medication at discharge: Enoxaparin-Natrium boolean 0 1 2019 3000 yes 847
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
203 os1 O_S1_Dis_Medication_Diuretics oS1DisMedicationDiuretics Medication at discharge: Diuretics boolean 0 1 2019 3000 yes 848
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
204 os1 O_S1_Dis_Medication_Sildenafil oS1DisMedicationSildenafil Medication at discharge: Sildenafil boolean 0 1 2019 3000 yes 849
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
205 os1 O_S1_Dis_Medication_Unknown oS1DisMedicationUnknown Medication at discharge: Unknown boolean 0 1 2019 3000 yes 850
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
206 os1 O_S1_Dis_Medication_Other oS1DisMedicationOther Medication at discharge: Other boolean 0 1 2019 3000 yes 851
 

all medication, including those in external clinics


Encoding of values: 0 = no, 1 = yes
 
207 os1 O_S1_Dis_Medication_OtherSpecific oS1DisMedicationOtherSpecific Other medication at discharge text / text_field 2019 3000 yes 852
 

all medication, including those in external clinics


 
208 os1 O_S1_Dis_Weight oS1DisWeight Weight at discharge (kg) decimal 1 30 99 2019 3000 yes 853
 
 
209 os1 O_S1_Dis_Height oS1DisHeight Height at discharge (cm) decimal 1 100 999 2019 3000 yes 930
 
 
210 os1 O_S1_Dis_Head_circ oS1DisHeadCirc Head circumference at discharge (cm) decimal 1 50 99 2019 3000 yes 935
 
 
211 os1 O_S1_Dis_TcSO2 oS1DisTcSO2 tcO2 at discharge (%) decimal 30 100 999 2019 3000 yes 940
 
 
212 os1 O_S1_Dis_Tube_Feed oS1DisTubeFeed Tube feeding at discharge ordinal / choice_radio 0 2 9 2019 3000 yes 950
 
Encoding of values: 0 = none, 1 = partial, 2 = full
 
213 os1 O_S1_Error_report oS1ErrorReport text / text_area 2019 3000 yes 1180
 
 
214 os1 O_S1_Errorlist_ignore oS1ErrorlistIgnore integer / choice_radio 3000 no
 
 
215 os1 O_S1_DS_lockdate oS1DsLockdate date 3000 no
 
 
216 os1 O_S1_Errors oS1Errors integer 2019 3000 yes 1185