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Nr. Dataset Item Description Type Min Max Unknown Start End Export
1 patient __P_kp_PatientID DB primary key integer 1 0 2000 3000 yes
2 patient P_SNNID SNN-ID (leave empty if new dataset!) text 2000 3000 yes
3 patient P_MNDS_type MNDS type ordinal 1 4 2000 2016 no
4 patient P_Informed_consent Informed consent given ordinal 1 6 2015 3000 yes
5 patient P_Date_of_birth Date of birth date 0 0 2000 3000 yes
6 patient P_Month_of_birth Month of birth integer 1 12 2000 3000 yes
7 patient P_Hospital_ID Preset hospital ID text 2000 3000 yes
8 patient P_Center_Nr Preset center nr text 2000 3000 yes
9 patient P_Register Register ordinal 1 = mnds, 2 = asp, 3 = mndsb34, 4 = orchid 2000 3000 yes
10 patient P_Study RCT study coding ordinal 1 = epo, 2 = albino, 3 = copca, 4 = music 2000 3000 yes
11 patient P_Center_Nr_anonym Encrypted center number integer 1 15 2000 3000 yes
12 patient P_Outcome_study Study group selector ordinal 0 1 2000 3000 yes
13 patient P_Year_of_birth Year of birth integer 2000 2030 2000 3000 yes
14 patient P_MNDS_exclude Exclude from overnight evaluation boolean 0 = no, 1 = yes 2000 3000 yes
15 patient P_Asp_Exclude Exclude from evaluation boolean 0 = no, 1 = yes 2011 3000 yes
16 patient P_Patient_no Patient number text 2000 3000 yes
17 patient P_Sex Sex ordinal 1 2 9 2000 3000 yes
18 patient P_Place_of_birth Place of birth text 2000 3000 yes
19 patient P_Day_of_admission Day of admission integer 1 365 999 2000 3000 yes
20 patient P_Birth_location Birth location ordinal 1 = inborn, 2 = outborn 2001 3000 yes
21 patient P_GA_weeks Weeks of gestation integer 22 42 2000 3000 yes
22 patient P_GA_days Days after weeks integer 0 6 2000 3000 yes
23 patient P_Birth_weight Birth weight in g integer 100 8000 2000 3000 yes
24 patient P_Number_of_infants Number of infants in this birth integer 1 6 2000 3000 yes
25 patient P_Rank Order of births text 2000 3000 yes
26 patient P_Dataset Dataset ordinal 1 = mnds, 2 = asp, 3 = fu, 4 = orchid 2018 3000 no
27 patient P_Neo_Dataset Describes registry ("mnds", "asp", etc.) text 2000 3000 no
28 patient P_Identifier_mother ID text/number for mother dataset (not in use) text 2020 3000 no
29 patient P_FU1_location Location of follow-up 1 text 2000 3000 yes
30 patient P_FU2_location Location of follow-up 2 text 2000 3000 yes
31 patient P_FU5_location Location of follow-up 5 text 2000 3000 yes
32 patient P_FU1_performed Follow-up 1 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
33 patient P_FU2_performed Follow-up 2 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
34 patient P_FU5_performed Follow-up 5 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
35 patient P_SDQ_performed SDQ has taken place boolean 0 = no, 1 = yes 2000 3000 no
36 patient P_FUp_performed Parental form filled in boolean 0 = no, 1 = yes 2000 3000 no
37 patient F_FU1_status Recruitment status text 2000 3000 yes
38 patient F_FU2_status Recruitment status text 2000 3000 yes
39 patient F_FU5_status Recruitment status text 2000 3000 yes
40 patient P_Bw_Zscore Birth weight z-score (Voigt 2006) decimal -6 6 2000 3000 yes
41 patient P_SGA Birth weight < 10th percentile (Voigt 2006) boolean 0 = no, 1 = yes 2000 3000 yes
42 patient P_Died Child died at any time boolean 0 = no, 1 = yes 2000 3000 yes
43 patient SES_Score_total Total of all available SES scores integer 2 12 2000 3000 yes
44 os2 O_S2_Comments Comments to Orchid data entry text 2020 3000 yes
45 os2 O_S2_Email E-mail of sender text 2020 3000 yes
46 os2 O_S2_Pre_Admission_date Date of admission (if informed consent available) date 9 2020 3000 yes
47 os2 O_S2_Pre_Admission_age Age at admission (in days) decimal 0 900 999 2020 3000 yes
48 os2 O_S2_Pre_Redo Repetition of previous surgery? boolean 9 2020 3000 yes
49 os2 O_S2_Pre_Redo_count How many redo surgeries were done? integer 1 20 99 2020 3000 yes
50 os2 O_S2_Pre_Redo_hlm Was a heart-lung machine used? boolean 9 2020 3000 yes
51 os2 O_S2_Pre_Redo_hlm_count How many redo surgeries with a heart-lung machine were done? integer 1 20 99 2020 3000 yes
52 os2 O_S2_Pre_Redo_no_hlm Redo surgery without heart-lung machines? boolean 9 2020 3000 yes
53 os2 O_S2_Pre_Redo_no_hlm_count How many redo surgeries without a heart-lung machine were done? integer 1 20 99 2020 3000 yes
54 os2 O_S2_Pre_Redo_hc Heart catheter used until discharge boolean 9 2020 3000 yes
55 os2 O_S2_Pre_Redo_hc_count How many times was a heart catheter used until discharge integer 1 20 99 2020 3000 yes
56 os2 O_S2_Pre_Weight Weight at admission (in kg) decimal 1 30 99 2020 3000 yes
57 os2 O_S2_Pre_Height Length at admission (in cm) decimal 10 90 99 2020 3000 yes
58 os2 O_S2_Pre_Head_circ Head circumference at admission (cm) decimal 5 50 99 2020 3000 yes
59 os2 O_S2_Pre_Any_tube_feed Any tube feeding boolean 0 = no, 1 = yes 2020 3000 yes
60 os2 O_S2_Pre_Oral_feed Oral feeding boolean 0 = no, 1 = yes 2020 3000 yes
61 os2 O_S2_Pre_Parenteral_feed Parenteral feeding boolean 0 = no, 1 = yes 2020 3000 yes
62 os2 O_S2_Pre_Unknown_feed Unknown feeding boolean 0 = no, 1 = yes 2020 3000 yes
63 os2 O_S2_Pre_Seizure Seizure boolean 0 = no, 1 = yes 2020 3000 yes
64 os2 O_S2_Pre_Intubation Intubation pre-operative boolean 0 = no, 1 = yes 2020 3000 yes
65 os2 O_S2_Pre_Intubation_hours Duration of intubation pre-operative (in hours) integer 0 900 999 2020 3000 yes
66 os2 O_S2_Pre_Resp_support Respiratory support pre-operative boolean 0 = no, 1 = yes 2020 3000 yes
67 os2 O_S2_Pre_Resp_support_hours Duration of respiratory support, pre-operative (in hours) integer 0 900 999 2020 3000 yes
68 os2 O_S2_Pre_Med_inotrop Medications pre-operative: Inotropics boolean 0 = no, 1 = yes 2020 3000 yes
69 os2 O_S2_Pre_Med_vasocon Medications pre-operative: Vasoconstrictors boolean 0 = no, 1 = yes 2020 3000 yes
70 os2 O_S2_Pre_Med_asa Medications pre-operative: Aspirin boolean 0 = no, 1 = yes 2020 3000 yes
71 os2 O_S2_Pre_Med_ace Medications pre-operative: ACE-Inhibitors boolean 0 = no, 1 = yes 2020 3000 yes
72 os2 O_S2_Pre_Med_diuretics Medications pre-operative: Diuretics boolean 0 = no, 1 = yes 2020 3000 yes
73 os2 O_S2_Pre_Med_bblock Medications pre-operative: beta-Blockers boolean 0 = no, 1 = yes 2020 3000 yes
74 os2 O_S2_Pre_Med_sildenafil Medications pre-operative: Sildenafil boolean 0 = no, 1 = yes 2020 3000 yes
75 os2 O_S2_Pre_Med_enoxaparin Medications pre-operative: Clexane boolean 0 = no, 1 = yes 2020 3000 yes
76 os2 O_S2_Pre_Med_none Medications pre-operative: None boolean 0 = no, 1 = yes 2020 3000 yes
77 os2 O_S2_Pre_Med_unknown Medications pre-operative: Unknown boolean 0 = no, 1 = yes 2020 3000 yes
78 os2 O_S2_Pre_Med_other Medications pre-operative: Other boolean 0 = no, 1 = yes 2020 3000 yes
79 os2 O_S2_Pre_Med_other_specify Medications pre-operative: Others specify text 2020 3000 yes
80 os2 O_S2_Pre_TcSo2 Preductal tcSo2 at surgery (mean value) decimal 30 100 999 2020 3000 yes
81 os2 O_S2_Pre_Haematocrit Haematocrit % (mean value) decimal 20 60 99 2020 3000 yes
82 os2 O_S2_Pre_Nyha_class NYHA classification integer 1 4 9 2020 3000 yes
83 os2 O_S2_Pre_Resuscitation Resuscitation boolean 0 = no, 1 = yes 2020 3000 yes
84 os2 O_S2_Surg_Date Date of surgery (if informed consent available) date 2020 3000 yes
85 os2 O_S2_Surg_Age Age at surgery/cardiac catheterization (months) integer 0 900 999 2020 3000 yes
86 os2 O_S2_Surg_Bypass Cardiac surgery with cardiopulmonary bypass ordinal 0 = no, 1 = yes 2020 3000 yes
87 os2 O_S2_Surg_Surg_type_none Cardiac surgery type: None boolean 0 1 2020 3000 yes
88 os2 O_S2_Surg_Surg_type_comp Cardiac surgery type: Comprehensive Stage 1+2 boolean 0 1 2020 3000 yes
89 os2 O_S2_Surg_Surg_type_bdcpa Cardiac surgery type: BDCPA boolean 0 1 2020 3000 yes
90 os2 O_S2_Surg_Surg_type_total_repair Cardiac surgery type: Total repair boolean 0 1 2020 3000 yes
91 os2 O_S2_Surg_Surg_type_other Cardiac surgery type: Other boolean 0 1 2020 3000 yes
92 os2 O_S2_Surg_Surg_type_other_specific Cardiac surgery type: Other specific text 2020 3000 yes
93 os2 O_S2_Surg_Cardiac_shunt Cardiac Shunt procedure text 2020 3000 yes
94 os2 O_S2_Surg_Rachs_score RACHS score integer 0 6 99 2020 3000 yes
95 os2 O_S2_Surg_Cicu_discharge_day CICU discharge day integer oSurgCicuDischargeDay 2020 3000 yes
96 os2 O_S2_Surg_Bypass_time Cardiopulmonary bypass time (minutes) decimal 0 900 999 2020 3000 yes
97 os2 O_S2_Surg_Cross_clamp_time Aortic cross clamp time (minutes) decimal 0 500 999 2020 3000 yes
98 os2 O_S2_Surg_Circ_arrest_time Circulatory arrest time (minutes) decimal 0 120 999 2020 3000 yes
99 os2 O_S2_Surg_Cereb_perf Antegrade cerebral perfusion boolean 0 = no, 1 = yes 2020 3000 yes
100 os2 O_S2_Surg_Cereb_perf_time Antegrade cerebral perfusion (minutes) decimal 0 120 999 2020 3000 yes
101 os2 O_S2_Surg_Dhca_time Deep hypothermic cardiac arrest time (minutes) decimal 0 500 999 2020 2020 yes
102 os2 O_S2_Surg_Low_temp_bypass Lowest temperature on bypass (degree C) decimal 15 40 99 2020 3000 yes
103 os2 O_S2_Surg_Ultrafiltration Ultrafiltration during/after bypass surgery boolean 0 1 9 2020 3000 yes
104 os2 O_S2_Post_Lactate Lactate mmol/l first 24 h (highest value first 24 h) decimal 0 30 99 2020 3000 yes
105 os2 O_S2_Post_Redo Corrective or redo surgery of the previous surgery boolean 0 = no, 1 = yes 2020 3000 yes
106 os2 O_S2_Post_Redo_hlm Was a heart-lung machine used? boolean 0 = no, 1 = yes 2020 3000 yes
107 os2 O_S2_Post_Redo_hlm_count How many redo surgeries with a heart-lung machine were done? integer 0 20 99 2020 3000 yes
108 os2 O_S2_Post_Redo_no_hlm Redo surgery without heart-lung machines? boolean 0 1 9 2020 3000 yes
109 os2 O_S2_Post_Redo_no_hlm_count How many redo surgeries without a heart-lung machine were done? integer 0 20 99 2020 3000 yes
110 os2 O_S2_Post_Hc Heart catheter used until discharge boolean 0 1 9 2020 3000 yes
111 os2 O_S2_Post_Hc_Count How many times was a heart catheter used until discharge integer 0 30 99 2020 3000 yes
112 os2 O_S2_Post_Resuscitation Resuscitation boolean 0 = no, 1 = yes 2020 3000 yes
113 os2 O_S2_Post_Cpr_duration Duration CPR (minutes) decimal 0 990 999 2020 3000 yes
114 os2 O_S2_Post_Ecmo ECMO boolean 0 = no, 1 = yes 2020 3000 yes
115 os2 O_S2_Post_Ecmo_days ECMO duration (in days) integer 0 21 999 2020 2020 yes
116 os2 O_S2_Post_Ecmo_hours ECMO duration (in hours) integer 0 400 999 2020 3000 yes
117 os2 O_S2_Post_Med_epi Medications post-operative: Epinephrine boolean 0 = no, 1 = yes 2020 3000 yes
118 os2 O_S2_Post_Med_nore Medications post-operative: Norepinephrine boolean 0 = no, 1 = yes 2020 3000 yes
119 os2 O_S2_Post_Med_milr Medications post-operative: Milrinone boolean 0 = no, 1 = yes 2020 3000 yes
120 os2 O_S2_Post_Med_dobu Medications post-operative: Dobutamine boolean 0 = no, 1 = yes 2020 3000 yes
121 os2 O_S2_Post_Med_dopa Medications post-operative: Dopamine boolean 0 = no, 1 = yes 2020 3000 yes
122 os2 O_S2_Post_Med_levo Medications post-operative: Levosimendan boolean 0 = no, 1 = yes 2020 3000 yes
123 os2 O_S2_Post_Med_none Medications post-operative: None boolean 0 = no, 1 = yes 2020 3000 yes
124 os2 O_S2_Post_Med_unknown Medications post-operative: Unknown boolean 0 = no, 1 = yes 2020 3000 yes
125 os2 O_S2_Post_Med_other Medications post-operative: Others boolean 0 = no, 1 = yes 2020 3000 yes
126 os2 O_S2_Post_Med_other_specify Medications post-operative: Others specify text 2020 3000 yes
127 os2 O_S2_Post_Med_epi_hour Medications post-operative: Hours of epinephrine treatment integer 1 4000 9999 2020 3000 yes
128 os2 O_S2_Post_Med_nore_hour Medications post-operative: Hours of norepinephrine treatment integer 1 4000 9999 2020 3000 yes
129 os2 O_S2_Post_Med_milr_hour Medications post-operative: Hours of milrinone treatment integer 1 4000 9999 2020 3000 yes
130 os2 O_S2_Post_Med_dobu_hour Medications post-operative: Hours of dobutamine treatment integer 1 4000 9999 2020 3000 yes
131 os2 O_S2_Post_Med_dopa_hour Medications post-operative: Hours of dopamine treatment integer 1 4000 9999 2020 3000 yes
132 os2 O_S2_Post_Med_levo_hour Medications post-operative: Hours of levosimendan treatment integer 1 4000 9999 2020 3000 yes
133 os2 O_S2_Post_Arrhythmia Arrythmia with circulatory compromise ordinal 0 4 9 2020 3000 yes
134 os2 O_S2_Post_Arr_tachy_type Type of tachycardia ordinal 0 2 9 2020 3000 yes
135 os2 O_S2_Post_Arr_tachy_sup_type Type of supraventricular tachycardia ordinal 0 4 9 2020 3000 yes
136 os2 O_S2_Post_Arr_tachy_sup_type_other Type of supraventricular tachycardia others text 2020 3000 yes
137 os2 O_S2_Post_Sup_tachy_treat_none Treatment of supraventricular tachycardia: None boolean 0 1 2020 3000 yes
138 os2 O_S2_Post_sup_tachy_treat_amio Treatment of supraventricular tachycardia: Amiodarone boolean 0 1 2020 3000 yes
139 os2 O_S2_Post_sup_tachy_treat_adeno Treatment of supraventricular tachycardia: Adenosine boolean 0 1 2020 3000 yes
140 os2 O_S2_Post_sup_tachy_treat_bblock Treatment of supraventricular tachycardia: beta-Blocker boolean 0 1 2020 3000 yes
141 os2 O_S2_Post_sup_tachy_treat_vagman Treatment of supraventricular tachycardia: Vagal maneuver boolean 0 1 2020 3000 yes
142 os2 O_S2_Post_sup_tachy_treat_unknown Treatment of supraventricular tachycardia: Unknown boolean 0 1 2020 3000 yes
143 os2 O_S2_Post_sup_tachy_treat_other Treatment of supraventricular tachycardia: Other boolean 0 1 2020 3000 yes
144 os2 O_S2_Post_sup_tachy_treat_other_specfiy Treatment of supraventricular tachycardia: Other specific text 9 2020 3000 yes
145 os2 O_S2_Post_Arr_tachy_vent_treat Treatment of ventricular tachycardia text 9 2020 3000 yes
146 os2 O_S2_Post_Arr_av_block AV-Block III° type ordinal 0 4 9 2020 3000 yes
147 os2 O_S2_Post_Intubation_hours Duration of intubation, postoperative integer 0 5000 9999 2020 3000 yes
148 os2 O_S2_Post_Resp_support Respiratory support pre-operative boolean 0 = no, 1 = yes 2020 3000 yes
149 os2 O_S2_Post_Resp_support_hours Duration of respiratory support (in hours), postoperative integer 0 5000 9999 2020 3000 yes
150 os2 O_S2_Post_No Nitric oxide boolean 0 = no, 1 = yes 2019 3000 yes
151 os2 O_S2_Post_Oxy Oxygen boolean 0 = no, 1 = yes 2020 3000 yes
152 os2 O_S2_Post_Creatinine Creatinine, µmol/l (highest value overall, postoperative) decimal 0 500 999 2020 3000 yes
153 os2 O_S2_Post_Rrt Renal replacement therapy boolean 0 = no, 1 = yes 2020 3000 yes
154 os2 O_S2_Post_Cx_none Complications after surgery/interventions: None boolean 0 = no, 1 = yes 2020 3000 yes
155 os2 O_S2_Post_Cx_infec Complications after surgery/interventions: Confirmed infection boolean 0 = no, 1 = yes 2020 3000 yes
156 os2 O_S2_Post_Cx_wound Complications after surgery/interventions: Wound infection boolean 0 = no, 1 = yes 2020 3000 yes
157 os2 O_S2_Post_Cx_diaph Complications after surgery/interventions: Diaphragmatic paralysis boolean 0 = no, 1 = yes 2020 3000 yes
158 os2 O_S2_Post_Cx_chylo Complications after surgery/interventions: Chylothorax boolean 0 = no, 1 = yes 2020 3000 yes
159 os2 O_S2_Post_Cx_respi Complications after surgery/interventions: Respiratory boolean 0 = no, 1 = yes 2020 3000 yes
160 os2 O_S2_Post_Cx_nec Complications after surgery/interventions: Cardiogenic NEC boolean 0 = no, 1 = yes 2020 3000 yes
161 os2 O_S2_Post_Cx_mof Complications after surgery/interventions: Multi organ failure boolean 0 = no, 1 = yes 2020 3000 yes
162 os2 O_S2_Post_Cx_stroke Complications after surgery/interventions: Stroke boolean 0 = no, 1 = yes 2020 3000 yes
163 os2 O_S2_Post_Cx_seizure_clinical Complications after surgery/interventions: Clinical Seizures boolean 0 = no, 1 = yes 2020 3000 yes
164 os2 O_S2_Post_Cx_seizure_subclinical Complications after surgery/interventions: Subclinical seizures boolean 0 = no, 1 = yes 2020 3000 yes
165 os2 O_S2_Post_Cx_lco Complications after surgery/interventions: Low cardiac output syndrome boolean 0 = no, 1 = yes 2020 3000 yes
166 os2 O_S2_Post_Cx_unknown Unknown complications post surgery boolean 0 = no, 1 = yes 2020 3000 yes
167 os2 O_S2_Post_Cx_other Complications after surgery/interventions: Other boolean 0 = no, 1 = yes 2020 3000 yes
168 os2 O_S2_Post_Cx_other_specifiy Complications after surgery/interventions: other specify text 2020 3000 yes
169 os2 O_S2_Post_Death_30_days Death within 30 days post OP boolean 0 = no, 1 = yes 2020 3000 yes
170 os2 O_S2_Dis_Date Date of discharge (if informed consent available) date 9 2020 3000 yes
171 os2 O_S2_Dis_Day Day of life at discharge (in days) integer oDisDay 2020 3000 yes
172 os2 O_S2_Dis_Icu_Days Duration of ICU stay until discharge (in days) integer 0 365 999 2020 3000 yes
173 os2 O_S2_Dis_To Where was the patitent discharged to? ordinal 0 = home, 1 = other hospital, 2 = died 2020 3000 yes
174 os2 O_S2_Dis_Medication_None Medication at discharge: none boolean 0 = no, 1 = yes 2020 3000 yes
175 os2 O_S2_Dis_Medication_Ace Medication at discharge: ACE Inhibitor boolean 0 = no, 1 = yes 2020 3000 yes
176 os2 O_S2_Dis_Medication_Diuretics Medication at discharge: Diuretics boolean 0 = no, 1 = yes 2020 3000 yes
177 os2 O_S2_Dis_Medication_Bblock Medication at discharge: Beta-blocker boolean 0 = no, 1 = yes 2020 3000 yes
178 os2 O_S2_Dis_Medication_Asa Medication at discharge: Aspirin boolean 0 = no, 1 = yes 2020 3000 yes
179 os2 O_S2_Dis_Medication_Digoxin Medications post-operative: Digoxin boolean 0 = no, 1 = yes 2020 3000 yes
180 os2 O_S2_Dis_Medication_Sildenafil Medication at discharge: Sildenafil boolean 0 = no, 1 = yes 2020 3000 yes
181 os2 O_S2_Dis_Medication_Enoxaparin Medication at discharge: Enoxaparin-Natrium boolean 0 = no, 1 = yes 2020 3000 yes
182 os2 O_S2_Dis_Medication_Unknown Medication at discharge: Unknown boolean 0 = no, 1 = yes 2020 3000 yes
183 os2 O_S2_Dis_Medication_Other Medication at discharge: Other boolean 0 = no, 1 = yes 2020 3000 yes
184 os2 O_S2_Dis_Medication_OtherSpecific Other medication at discharge text 2020 3000 yes
185 os2 O_S2_Dis_Any_tube_feed Tube feeding at discharge ordinal 0 = none, 1 = partial, 2 = full 2020 3000 yes
186 os2 O_S2_Dis_Weight Weight at discharge (kg) decimal 1 30 99 2020 3000 yes
187 os2 O_S2_Dis_Height Length at discharge (cm) decimal 1 100 99 2020 3000 yes
188 os2 O_S2_Dis_Head_circ Head circumference at discharge (cm) decimal 1 50 99 2020 3000 yes
189 os2 O_S2_Dis_TcSO2 tcO2 at discharge (%) decimal 30 100 999 2020 3000 yes
190 os2 O_S2_Pre_None_feed No Feeding boolean 0 = no, 1 = yes 2020 3000 yes
191 os2 O_S2_Surg_Cicu_discharge_date CICU discharge date date 9 2020 3000 yes
192 os2 O_S2_Errors integer 2020 3000 yes
193 os2 O_S2_Error_report text 2020 3000 yes