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Nr. Dataset Item Description Type Min Max Unknown Start End Export
1 patient __P_kp_PatientID DB primary key integer 1 0 2000 3000 yes
2 patient P_SNNID SNN-ID (leave empty if new dataset!) text 2000 3000 yes
3 patient P_MNDS_type MNDS type ordinal 1 4 2000 2016 no
4 patient P_Informed_consent Informed consent given ordinal 1 6 2015 3000 yes
5 patient P_Date_of_birth Date of birth date 0 0 2000 3000 yes
6 patient P_Month_of_birth Month of birth integer 1 12 2000 3000 yes
7 patient P_Hospital_ID Preset hospital ID text 2000 3000 yes
8 patient P_Center_Nr Preset center nr text 2000 3000 yes
9 patient P_Register Register ordinal 1 = mnds, 2 = asp, 3 = mndsb34, 4 = orchid 2000 3000 yes
10 patient P_Study RCT study coding ordinal 1 = epo, 2 = albino, 3 = copca, 4 = music 2000 3000 yes
11 patient P_Center_Nr_anonym Encrypted center number integer 1 15 2000 3000 yes
12 patient P_Outcome_study Study group selector ordinal 0 1 2000 3000 yes
13 patient P_Year_of_birth Year of birth integer 2000 2030 2000 3000 yes
14 patient P_MNDS_exclude Exclude from overnight evaluation boolean 0 = no, 1 = yes 2000 3000 yes
15 patient P_Asp_Exclude Exclude from evaluation boolean 0 = no, 1 = yes 2011 3000 yes
16 patient P_Patient_no Patient number text 2000 3000 yes
17 patient P_Sex Sex ordinal 1 2 9 2000 3000 yes
18 patient P_Place_of_birth Place of birth text 2000 3000 yes
19 patient P_Day_of_admission Day of admission integer 1 365 999 2000 3000 yes
20 patient P_Birth_location Birth location ordinal 1 = inborn, 2 = outborn 2001 3000 yes
21 patient P_GA_weeks Weeks of gestation integer 22 42 2000 3000 yes
22 patient P_GA_days Days after weeks integer 0 6 2000 3000 yes
23 patient P_Birth_weight Birth weight in g integer 100 8000 2000 3000 yes
24 patient P_Number_of_infants Number of infants in this birth integer 1 6 2000 3000 yes
25 patient P_Rank Order of births text 2000 3000 yes
26 patient P_Dataset Dataset ordinal 1 = mnds, 2 = asp, 3 = fu, 4 = orchid 2018 3000 no
27 patient P_Neo_Dataset Describes registry ("mnds", "asp", etc.) text 2000 3000 no
28 patient P_Identifier_mother ID text/number for mother dataset (not in use) text 2020 3000 no
29 patient P_FU1_location Location of follow-up 1 text 2000 3000 yes
30 patient P_FU2_location Location of follow-up 2 text 2000 3000 yes
31 patient P_FU5_location Location of follow-up 5 text 2000 3000 yes
32 patient P_FU1_performed Follow-up 1 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
33 patient P_FU2_performed Follow-up 2 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
34 patient P_FU5_performed Follow-up 5 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
35 patient P_SDQ_performed SDQ has taken place boolean 0 = no, 1 = yes 2000 3000 no
36 patient P_FUp_performed Parental form filled in boolean 0 = no, 1 = yes 2000 3000 no
37 patient F_FU1_status Recruitment status text 2000 3000 yes
38 patient F_FU2_status Recruitment status text 2000 3000 yes
39 patient F_FU5_status Recruitment status text 2000 3000 yes
40 patient P_Bw_Zscore Birth weight z-score (Voigt 2006) decimal -6 6 2000 3000 yes
41 patient P_SGA Birth weight < 10th percentile (Voigt 2006) boolean 0 = no, 1 = yes 2000 3000 yes
42 patient P_Died Child died at any time boolean 0 = no, 1 = yes 2000 3000 yes
43 fu2 SES_Education_mother2 Highest education mother text unknown 2000 3000 no
44 fu2 SES_Occupation_mother2 Current occupation mother text unknown 2000 3000 no
45 fu2 SES_Score_mother2 SES Score of mother integer 1 6 9 2000 3000 no
46 fu2 SES_Education_father2 Training basis for current occupation father text unknown 2000 3000 no
47 fu2 SES_Occupation_father2 Current occupation father text unknown 2000 3000 no
48 fu2 SES_Score_father2 SES Score of father text 9 2000 3000 no
49 patient SES_Score_total Total of all available SES scores integer 2 12 2000 3000 yes
50 fu2 FU2_Age_calc Corrected age at FU decimal 0 48 3000 yes
51 fu2 FU2_Examiner1 Examiner: Physician boolean 0 = no, 1 = yes 3000 yes
52 fu2 FU2_Examiner2 Examiner: Psychologist boolean 0 = no, 1 = yes 3000 yes
53 fu2 FU2_Examiner3 Examiner: Physiotherapist boolean 0 = no, 1 = yes 3000 yes
54 fu2 FU2_Examiner4 Examiner: Pediatrician in private practice boolean 0 = no, 1 = yes 3000 yes
55 fu2 FU2_Examiner5 Examiner: Other boolean 0 = no, 1 = yes 3000 yes
56 fu2 FU2_Examiner5_specific Examiner: Specifics of other text 3000 yes
57 fu2 FU2_Examiner_name Name of examiner text 3000 yes
58 fu2 FU2_Weight Weight decimal 4 25 99 3000 yes
59 fu2 FU2_Weight_zscore Weight z-score Braegger et al. 2011 decimal -10 10 3000 yes
60 fu2 FU2_Length Length decimal 50 110 999 3000 yes
61 fu2 FU2_Length_zscore length z-score Braegger et al. 2011 decimal -10 10 3000 yes
62 fu2 FU2_Head_circ Head circumference decimal 40 60 99 3000 yes
63 fu2 FU2_Head_circ_zscore head circumference z-score Braegger et al. 2011 decimal -10 10 3000 yes
64 fu2 FU2_Dev_test Development test ordinal 0 4 3000 yes
65 fu2 FU2_Dev_test_date Development test date date 0 0 3000 yes
66 fu2 FU2_Dev_test_age Age at developmental test decimal 0 48 3000 yes
67 fu2 FU2_Dev_test_age_text text 3000 no
68 fu2 FU2_Dev_test_comments Comments text 3000 yes
69 fu2 FU2_poorComp Poor complience boolean 0 = no, 1 = yes 3000 yes
70 fu2 FU2_MDI_raw BSID II MDI raw integer 0 200 999 3000 yes
71 fu2 FU2_MDI_index BSID II MDI index integer 49 151 999 3000 no
72 fu2 FU2_MDI_index_ref BSID II MDI index integer 49 151 999 3000 yes
73 fu2 FU2_MDI_diff_calc text 3000 no
74 fu2 FU2_PDI_raw BSID II PDI raw integer 0 200 999 3000 yes
75 fu2 FU2_PDI_index BSID II PDI index integer 49 151 999 3000 no
76 fu2 FU2_PDI_index_ref BSID II PDI index integer 49 151 999 3000 yes
77 fu2 FU2_PDI_diff_calc text 3000 no
78 fu2 FU2_B3_cog_raw Bayley III Cog. raw integer 1 91 999 2010 3000 yes
79 fu2 FU2_B3_cog_scaled Bayley III Cog scaled score integer 0 0 2010 3000 no
80 fu2 FU2_B3_cog_comp Bayley III Cog composit score integer 0 0 2010 3000 no
81 fu2 FU2_B3_rc_raw Bayley III RC raw integer 1 91 999 2010 3000 yes
82 fu2 FU2_B3_rc_scaled Bayley III RC scaled integer 0 0 2010 3000 no
83 fu2 FU2_B3_ec_raw Bayley III EC raw integer 1 91 999 2010 3000 yes
84 fu2 FU2_B3_ec_scaled Bayley III EC scaled integer 0 0 2010 3000 no
85 fu2 FU2_B3_lang_comp Bayley III Lang composite score integer 0 0 2010 3000 no
86 fu2 FU2_B3_fm_raw Bayley III FM raw integer 1 91 999 2010 3000 yes
87 fu2 FU2_B3_fm_scaled Bayley III FM scaled integer 0 0 2010 3000 no
88 fu2 FU2_B3_gm_raw Bayley III GM raw integer 1 91 999 2010 3000 yes
89 fu2 FU2_B3_gm_scaled Bayley III GM scaled integer 0 0 2010 3000 no
90 fu2 FU2_B3_mot_comp Bayley III Mot composite score integer 0 0 2010 3000 no
91 fu2 FU2_B3_cog_scaled_ref Bayley III cognitive scaled score integer 1 38 2010 3000 yes
92 fu2 FU2_B3_rc_scaled_ref Bayley III RC scaled decimal 1 38 2010 3000 yes
93 fu2 FU2_B3_ec_scaled_ref Bayley III EC scaled integer 1 38 2010 3000 yes
94 fu2 FU2_B3_fm_scaled_ref Bayley III FM scaled integer 1 38 2010 3000 yes
95 fu2 FU2_B3_gm_scaled_ref Bayley III GM scaled integer 1 38 2010 3000 yes
96 fu2 FU2_B3_lang_scaled Bayley III Lang composite score integer 0 0 2010 3000 no
97 fu2 FU2_B3_mot_scaled Bayley III motor scaled decimal 0 0 2010 3000 no
98 fu2 FU2_B3_cog_comp_ref Bayley III cognitive composite decimal 40 155 2010 3000 yes
99 fu2 FU2_B3_lang_comp_ref Bayley III language composite decimal 40 155 2010 3000 yes
100 fu2 FU2_B3_mot_comp_ref Bayley III motor composite decimal 40 155 2010 3000 yes
101 fu2 FU2_Griffith_motor_raw Griffiths raw: motor decimal 0 200 999 3000 yes
102 fu2 FU2_Griffith_motor_index Griffiths index: motor decimal 0 200 999 3000 yes
103 fu2 FU2_Griffith_social_raw Griffiths raw: social decimal 0 200 999 3000 yes
104 fu2 FU2_Griffith_social_index Griffiths index: social decimal 0 200 999 3000 yes
105 fu2 FU2_Griffith_hearing_raw Griffiths raw: hearing decimal 0 200 999 3000 yes
106 fu2 FU2_Griffith_hearing_index Griffiths index: hearing decimal 0 200 999 3000 yes
107 fu2 FU2_Griffith_eye_raw Griffiths raw: eye decimal 0 200 999 3000 yes
108 fu2 FU2_Griffith_eye_index Griffiths index: eye decimal 0 200 999 3000 yes
109 fu2 FU2_Griffith_cognition_raw Griffiths raw: cognition decimal 0 200 999 3000 yes
110 fu2 FU2_Griffith_cognition_index Griffiths index: cognition decimal 0 200 999 3000 yes
111 fu2 FU2_GQ_tot Griffiths quotient decimal 5 151 999 3000 yes
112 fu2 FU2_GQ_nomotor_calc Griffiths quotient w/o motor component decimal 5 151 3000 yes
113 fu2 FU2_SM_findings Sensory motor findings ordinal 0 3 3000 yes
114 fu2 FU2_Spastic_CP Spastic CP ordinal 1 6 2013 yes
115 fu2 FU2_Spastic_CP_2020 Spastic CP (as of 2020) ordinal 0 = Unilateral, 1 = Bilateral 2014 3000 yes
116 fu2 FU2_Dyskinetic_CP Dyskinetic CP ordinal 1 3 3000 yes
117 fu2 FU2_Ataxic_CP Ataxic CP ordinal 1 = Ataxia, 2 = Hemitaxia 2013 yes
118 fu2 FU2_Monoplegia_LR Monoplegia left or right integer 1 2 2013 yes
119 fu2 FU2_CP_Spastic_Unilateral_LR Unilateral Spastic CP left or right integer 1 = L, 2 = R 2014 3000 yes
120 fu2 FU2_Hemiplegia_LR Hemiplegia left or right integer 1 2 2013 yes
121 fu2 FU2_CP_Degree Palisano score integer 1 5 9 3000 yes
122 fu2 FU2_CP_suspect CP suspect boolean 0 = no, 1 = yes 3000 yes
123 fu2 FU2_Neurodev Other neurodev. abnormalities boolean 0 = no, 1 = yes 3000 yes
124 fu2 FU2_Kindof_CP Type of CP integer 0 4 3000 yes
125 fu2 FU2_Neurodev_specific Specifics of other text 3000 yes
126 fu2 FU2_Non_CP_abn1 Non-CP abnormality: tone or reflexes boolean 0 = no, 1 = yes 3000 yes
127 fu2 FU2_Non_CP_abn2 Non-CP abnormality: tone and reflexes, but not CP boolean 0 = no, 1 = yes 3000 yes
128 fu2 FU2_Non_CP_abn3 Non-CP abnormality: Clumsy fine motor performance boolean 0 = no, 1 = yes 3000 yes
129 fu2 FU2_Non_CP_abn4 Non-CP abnormality: Clumsy gross motor performance boolean 0 = no, 1 = yes 3000 yes
130 fu2 FU2_Therapy Therapy boolean 0 = no, 1 = yes 3000 yes
131 fu2 FU2_Therapy1 Physical therapy boolean 0 = no, 1 = yes 3000 yes
132 fu2 FU2_Therapy2 Early intervention boolean 0 = no, 1 = yes 3000 yes
133 fu2 FU2_Therapy3 Occupational therapy boolean 0 = no, 1 = yes 3000 yes
134 fu2 FU2_Therapy6 Child psychiatry therapy boolean 0 = no, 1 = yes 3000 yes
135 fu2 FU2_Therapy7 Other therapy boolean 0 = no, 1 = yes 3000 yes
136 fu2 FU2_Therapy7_specific Specifics of other therapy text 3000 yes
137 fu2 FU2_Therapy1_age Physical therapy-age integer 0 36 999 3000 yes
138 fu2 FU2_Therapy2_age Early intervention-age integer 0 36 999 3000 yes
139 fu2 FU2_Therapy3_age Occupational therapy-age integer 0 36 999 3000 yes
140 fu2 FU2_Therapy6_age Child psychiatry therapy-age integer 0 36 999 3000 yes
141 fu2 FU2_Therapy7_age Other therapy-age integer 0 36 999 3000 yes
142 fu2 FU2_Therapy1_duration Physical therapy-Duration integer 0 24 999 3000 yes
143 fu2 FU2_Therapy2_duration Early intervention-Duration integer 0 24 999 3000 yes
144 fu2 FU2_Therapy3_duration Occupational therapy-Duration integer 0 24 999 3000 yes
145 fu2 FU2_Therapy6_duration Child psychiatry therapy-Duration integer 0 24 999 3000 yes
146 fu2 FU2_Therapy7_duration Other therapy-Duration integer 0 24 999 3000 yes
147 fu2 FU2_Therapy1_ongoing Physical therapy ongoing boolean 0 = no, 1 = yes 3000 yes
148 fu2 FU2_Therapy2_ongoing Early intervention ongoing boolean 0 = no, 1 = yes 3000 yes
149 fu2 FU2_Therapy3_ongoing Occupational therapy ongoing boolean 0 = no, 1 = yes 3000 yes
150 fu2 FU2_Therapy6_ongoing Child psychiatry therapy ongoing boolean 0 = no, 1 = yes 3000 yes
151 fu2 FU2_Therapy7_ongoing Other therapy ongoing boolean 0 = no, 1 = yes 3000 yes
152 fu2 FU2_Visual_problems Visual problems ordinal 0 = none, 1 = moderate, 2 = severe 3000 yes
153 fu2 FU2_Hearing_problems Hearing problems ordinal 0 = none, 1 = moderate, 2 = severe 3000 yes
154 fu2 FU2_Visual_problems_glasses Visual problems integer 0 0 3000 no
155 fu2 FU2_Visus_E_Haken_R E-Haken: right decimal 0 0 3000 no
156 fu2 FU2_Visus_E_Haken_L E-Haken: left decimal 0 0 3000 no
157 fu2 FU2_Visus_Stycar_R Stycar: right decimal 0 0 3000 no
158 fu2 FU2_Visus_Stycar_L Stycar: left decimal 0 0 3000 no
159 fu2 FU2_Ropsurg Surgery for ROP boolean 0 = no, 1 = yes 3000 yes
160 fu2 FU2_Audiometry lang test integer 0 0 3000 yes
161 fu2 FU2_Audiometry_specific hearing problems integer 0 0 3000 yes
162 fu2 FU2_Lang_test Lang test ordinal 0 2 9 3000 yes
163 fu2 FU2_ENT_txt result of specialist exam text 3000 yes
164 fu2 FU2_ENT_date date of specialist exam date 0 0 3000 no
165 fu2 FU2_VPshunt VP shunt boolean 0 = no, 1 = yes 3000 yes
166 fu2 FU2_Rehosp Rehospitalization ordinal 0 = never, 1 = once, 2 = several times 3000 yes
167 fu2 FU2_Rehosp_specific Specifics to rehospitalization text 3000 yes
168 fu2 FU2_Comment Comments fu2Comment 0 0 3000 yes
169 fu2 FU2_NDI Neurodevelopmental impairment score ordinal 0 = no, 1 = moderate, 2 = severe 3000 yes
170 fu2 FU2_NDI_manual Neurodevelopmental impairment ordinal 0 2 9 3000 no
171 fu2 FU2_NDI_comment Comment to neurodevelopmental impairment classification text unknown 3000 no
172 fu2 FU2_Email E-mail of examiner text 3000 no
173 fu2 FU2_Last_change date 0 0 3000 no
174 fu2 FU2_DS_status integer 0 0 3000 no
175 fu2 FU2_DS_lockdate date 0 0 3000 no
176 fu2 FU2_Error_report fu2ErrorReport 0 0 3000 no
177 fu2 FU2_Errors integer 0 0 3000 no
178 fu2 FU2_Errorlist_ignore integer 0 0 3000 no
179 fu2 FU2_Check integer 0 2 9 3000 no
180 fu2 FU2_Date date 2000 3000 no
181 fu2 FU2_Repeat_surgery Surgery for ROP boolean 0 = no, 1 = yes 2019 3000 no
182 fu2 FU2_Catheter_intervention Catheter Intervention boolean 0 = no, 1 = yes 2019 3000 no
183 fu2 FU2_Treat_cardio_name Name of Treating cardiologist text 2019 3000 no
184 fu2 FU2_Treat_cardio_email E-mail of cardiologist text 2019 3000 no
185 fu2 FU2_Cardiac_medication_diuretics Cardiac Medication: Diuretics boolean 0 = no, 1 = yes 3000 no
186 fu2 FU2_Cardiac_medication_none Cardiac Medication: None boolean 0 = no, 1 = yes 3000 no
187 fu2 FU2_Cardiac_medication_sildenafil Cardiac Medication: Sildenafil boolean 0 = no, 1 = yes 3000 no
188 fu2 FU2_Cardiac_medication_ace_inhibitor Cardiac Medication: ACE Inhibitor boolean 0 = no, 1 = yes 3000 no
189 fu2 FU2_Cardiac_medication_digoxin Cardiac Medication: Digoxin boolean 0 = no, 1 = yes 3000 no
190 fu2 FU2_Cardiac_medication_beta_blocker Cardiac Medication: Beta-Blocker boolean 0 = no, 1 = yes 3000 no
191 fu2 FU2_Cardiac_medication_other Cardiac Medication: Other boolean 0 = no, 1 = yes 3000 no
192 fu2 FU2_Cardiac_medication_other_specific Cardiac Medication: Specifics of other text 3000 no
193 fu2 FU2_Gi_tube_feeding Gastrointestinal tube feeding boolean 0 = no, 1 = yes 2019 3000 no
194 fu2 FU2_Files Test upload text unknown 3000 no