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Nr. Dataset Item Description Type Min Max Unknown Start End Export
1 patient __P_kp_PatientID DB primary key integer 1 0 2000 3000 yes
2 mndsb34 SNNFU_Import Import marker text 2007 3000 no
3 patient P_SNNID SNN-ID (leave empty if new dataset!) text 2000 3000 yes
4 patient P_MNDS_type MNDS type ordinal 1 4 2000 2016 no
5 patient P_Informed_consent Informed consent given ordinal 1 5 2015 3000 yes
6 patient P_Date_of_birth Date of birth date 0 0 2000 3000 yes
7 patient P_Month_of_birth Month of birth integer 1 12 2000 3000 yes
8 patient P_Hospital_ID Preset hospital ID text 2000 3000 yes
9 patient P_Center_Nr Preset center nr text 2000 3000 yes
10 patient P_Register Register ordinal 1 = mnds, 2 = asp, 3 = orchid 2000 3000 yes
11 patient P_Study RCT study coding ordinal 1 = epo, 2 = albino, 3 = copca, 4 = music 2000 3000 yes
12 patient P_Center_Nr_anonym Encrypted center number integer 1 15 2000 3000 yes
13 patient P_Outcome_study Study group selector ordinal 0 1 2000 3000 yes
14 patient P_Year_of_birth Year of birth integer 2000 2030 2000 3000 yes
15 patient P_MNDS_exclude Exclude from overnight evaluation boolean 0 = no, 1 = yes 2000 3000 yes
16 patient P_Asp_Exclude Exclude from evaluation boolean 0 = no, 1 = yes 2011 3000 yes
17 patient P_Patient_no Patient number text 2000 3000 yes
18 patient P_Sex Sex ordinal 1 2 9 2000 3000 yes
19 patient P_Place_of_birth Place of birth text 2000 3000 yes
20 patient P_Day_of_admission Day of admission integer 1 365 999 2000 3000 yes
21 patient P_Birth_location Birth location ordinal 1 = inborn, 2 = outborn 2001 3000 yes
22 patient P_GA_weeks Weeks of gestation integer 22 42 2000 3000 yes
23 patient P_GA_days Days after weeks integer 0 6 2000 3000 yes
24 patient P_Birth_weight Birth weight in g integer 100 8000 2000 3000 yes
25 patient P_Number_of_infants Number of infants in this birth integer 1 6 2000 3000 yes
26 patient P_Rank Order of births text 2000 3000 yes
27 patient P_Dataset Dataset ordinal 1 = mnds, 2 = asp, 3 = fu, 4 = orchid 2018 3000 no
28 patient P_Neo_Dataset Describes registry ("mnds", "asp", etc.) text 2000 3000 no
29 patient P_Identifier_mother ID text/number for mother dataset (not in use) text 2020 3000 no
30 patient P_FU1_location Location of follow-up 1 text 2000 3000 yes
31 patient P_FU2_location Location of follow-up 2 text 2000 3000 yes
32 patient P_FU5_location Location of follow-up 5 text 2000 3000 yes
33 patient P_FU1_performed Follow-up 1 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
34 patient P_FU2_performed Follow-up 2 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
35 patient P_FU5_performed Follow-up 5 has taken place boolean 0 = no, 1 = yes 2000 3000 yes
36 patient P_SDQ_performed SDQ has taken place boolean 0 = no, 1 = yes 2000 3000 no
37 patient P_FUp_performed Parental form filled in boolean 0 = no, 1 = yes 2000 3000 no
38 patient F_FU1_status Recruitment status text 2000 3000 yes
39 patient F_FU2_status Recruitment status text 2000 3000 yes
40 patient F_FU5_status Recruitment status text 2000 3000 yes
41 patient P_Bw_Zscore Birth weight z-score (Voigt 2006) decimal -6 6 2000 3000 yes
42 patient P_SGA Birth weight < 10th percentile (Voigt 2006) boolean 0 = no, 1 = yes 2000 3000 yes
43 mndsb34 SES_Education_mother Highest education mother text unknown 2000 3000 no
44 patient P_Died Child died at any time boolean 0 = no, 1 = yes 2000 3000 yes
45 mnds SES_Occupation_mother Current occupation mother text unknown 2000 3000 no
46 mndsb34 SES_Score_mother SES Score of mother integer 1 6 9 2000 3000 no
47 mnds SES_Education_father Training basis for current occupation father text unknown 2000 3000 no
48 mndsb34 SES_Occupation_father Current occupation father text unknown 2000 3000 no
49 mndsb34 SES_Score_father SES Score of father integer 1 6 9 2000 3000 no
50 patient SES_Score_total Total of all available SES scores integer 2 12 2000 3000 yes
51 mnds SES_Language Language at home text 2000 3000 yes
52 mnds SES_Nationality Nationality text 2000 3000 yes
53 mndsb34 M_Chorioamnionitis Chorioamnionitis ordinal 0 3 9 2012 3000 yes
54 mndsb34 M_MHypertension Maternal hypertension ordinal 0 2 9 2012 3000 yes
55 mndsb34 M_Prenatal_steroids Prenatal steroids ordinal 0 3 1 2000 3000 yes
56 mnds M_MgS Magnesium sulfate for neuroprotection ordinal 0 2 9 2017 3000 yes
57 mnds M_UA_pH Umbilical artery pH integer 6 8 99 2000 3000 yes
58 mnds M_Apgar1 Apgar 1 min integer 0 10 99 2000 3000 yes
59 mnds M_Apgar5 Apgar 5 min integer 0 10 99 2000 3000 yes
60 mnds M_Apgar10 Apgar 10 min integer 0 10 99 2000 3000 yes
61 mnds M_Del_ox Delivery room oxygen boolean 0 = no, 1 = yes 2007 3000 yes
62 mnds M_Del_mask Delivery room bag/mask boolean 0 = no, 1 = yes 2007 3000 yes
63 mnds M_Del_CPAP Delivery room CPAP boolean 0 = no, 1 = yes 2012 3000 yes
64 mnds M_Del_intubation Del. room endotracheal intub. boolean 0 = no, 1 = yes 2007 3000 yes
65 mnds M_Del_epinephrine Del. room epinephrine/adrenaline boolean 0 = no, 1 = yes 2007 3000 yes
66 mnds M_Del_ccomp Del. room cardiac compression boolean 0 = no, 1 = yes 2007 3000 yes
67 mnds M_Mode_of_delivery Mode of delivery ordinal 1 5 2000 2011 no
68 mndsb34 M_Sectio Caesarean section boolean 0 = no, 1 = yes 2000 3000 yes
69 mndsb34 M_Cov_mother Sars-CoV-2 infection of mother ordinal 0 = not tested, 1 = negative, 2 = positive 2020 3000 yes
70 mndsb34 M_Cov_mother_assay Assay used for Sars-CoV-2 diagnosis of mother ordinal 1 = PCR, 2 = serum, 3 = antigen 2020 3000 yes
71 mndsb34 M_Cov_child Sars-CoV-2 infection of child ordinal 0 = not tested, 1 = negative, 2 = positive 2020 3000 yes
72 mndsb34 M_Cov_child_assay Assay used for Sars-CoV-2 diagnosis of child ordinal 1 = PCR, 2 = serum, 3 = antigen 2020 3000 yes
73 mndsb34 M_Head_circ Head circumference in cm decimal 10 50 99 2000 3000 yes
74 mndsb34 M_Length Length at birth decimal 15 70 99 2017 3000 yes
75 mndsb34 M_Temp_admission Body temperature at admission decimal 30 42 99 2017 3000 yes
76 mndsb34 M_Bdefect Congenital malformation ordinal 1 = none or minor, 2 = major 2000 3000 yes
77 mnds M_Bdefect_corrected Congenital malformation (validated) boolean 0 = no, 1 = yes 2000 3000 yes
78 mndsb34 M_Bdefect_specific Specifiy congenital malformation text 2000 3000 yes
79 mndsb34 M_Died_in_del Has child died in delivery room boolean 1 = yes, 2 = no 2000 3000 yes
80 mnds M_Respiratory_distress Respiratory distress ordinal 1 5 2000 3000 yes
81 mndsb34 M_Pneumothorax Pneumothorax boolean 1 = absent, 2 = present 2007 3000 yes
82 mnds M_PDA Patent ductus arteriosus boolean 1 = absent, 2 = present 2000 3000 yes
83 mnds M_Medication_PDA Medication for PDA ordinal 0 3 9 2012 2016 yes
84 mnds M_PPH Persistant pulmonary hypertension boolean 1 = absent, 2 = present 2000 2019 yes
85 mnds M_INO Inhaled nitric oxyde boolean 0 = no, 1 = yes 2012 3000 yes
86 mnds M_Probiotics Probiotics given boolean 0 = no, 1 = yes 2017 3000 yes
87 mnds M_Probiotics_product Product of probiotics given ordinal 1 8 9 2000 3000 yes
88 mnds M_Probiotics_product_other Specify other probiotics given text 2020 3000 yes
89 mnds M_NEC Necrotising enterocolitis ordinal 1 = no, 2 = suspected, 3 = yes 2004 3000 yes
90 mnds M_NEC_treatment Treatment for NEC ordinal 0 = none, 1 = medical only, 2 = surgery 2017 3000 yes
91 mnds M_NEC_onset Day when proven NEC (Bell's stage 2) diagnosed integer 1 365 999 2020 3000 yes
92 mnds M_Focal_gastroint_perf Focal gastrointestinal perforation boolean 1 = absent, 2 = present 2006 3000 yes
93 mndsb34 M_Sepsis Sepsis (incl. Meningitis) ordinal 1 = absent, 2 = culture-negative, 3 = proven 2000 3000 yes
94 mndsb34 M_AB_first24h Antibiotica in first 24h boolean 0 = no, 1 = yes 2020 3000 yes
95 mndsb34 M_Sepsis_day_1 Day of onset Episode 1 integer 1 730 999 2000 3000 yes
96 mndsb34 M_Sepsis_culture_result_1 Culture result Episode 1 text unknown 2000 3000 yes
97 mnds M_Sepsis_day_2 Day of onset Episode 2 integer 1 730 999 2000 3000 yes
98 mnds M_Sepsis_culture_result_2 Culture result Episode 2 text unknown 2000 3000 yes
99 mnds M_Sepsis_day_3 Day of onset Episode 3 integer 1 730 999 2000 3000 yes
100 mnds M_Sepsis_culture_result_3 Culture result Episode 3 text unknown 2000 3000 yes
101 mnds M_ROP_max Maximum ROP stage during hospital. integer 0 5 99 2006 3000 yes
102 mnds M_ROP_ap Aggressive posterior ROP boolean 0 = no, 1 = yes 2020 3000 yes
103 mnds M_ROP_eye_exam Eye examination not required boolean 1 = not in ROP screening 2007 3000 yes
104 mnds M_ROP_intervention ROP intervention ordinal 0 2 9 2007 3000 yes
105 mndsb34 M_Surfactant Surfactant treatment boolean 1 = not given, 2 = given 2000 3000 yes
106 mnds M_Surf_h Hours after birth of 1st surfactant dose integer 0 500 999 2007 3000 yes
107 mnds M_Surf_min Minutes after hour of 1st surfactant dose integer 0 59 99 2007 3000 yes
108 mnds M_Surf_doses Number of surfactant doses integer 1 3 9 2007 3000 yes
109 mndsb34 M_Oxy_days Days of O2 integer 0 365 999 2009 3000 yes
110 mndsb34 M_Vent_days Days of mechanical ventilation integer 0 365 999 2000 3000 yes
111 mnds M_Vent_hifq High frequency ventilation boolean 0 = no, 1 = yes 2007 3000 yes
112 mndsb34 M_CPAP_days Days of CPAP integer 0 365 999 2000 3000 yes
113 mnds M_CPAP_vent Non aggressive ventilation w/o tube (NIPPV) boolean 0 = no, 1 = yes 2007 3000 yes
114 mndsb34 M_HighFlow_days Days of High-flow integer 0 365 999 2017 3000 yes
115 mnds M_Oxy_36 Supplemental oxygen at 36 weeks GA boolean 0 = no, 1 = yes 2006 3000 yes
116 mnds M_FiO2_36 Average FiO2 at 36 weeks GA ordinal 0 = mod, 1 = sev 2006 3000 yes
117 mnds M_CPAP_36 CPAP at 36 weeks GA boolean 0 = no, 1 = yes, indication: 2006 3000 yes
118 mnds M_CPAP_36_indic Indication for CPAP at 36 weeks GA ordinal 1 3 2006 3000 yes
119 mnds M_Discharge_open Discharge data currently not available. ordinal 1 3 2000 3000 no
120 mnds M_CPAP_36_indic_other Other indication for CPAP at 36 weeks GA text 2006 3000 yes
121 mnds M_vent_36 Mech. Vent. at 36 weeks GA boolean 0 = no, 1 = yes, indication: 2006 3000 yes
122 mnds M_vent_36_indic Indication for mech. Vent. at 36 weeks GA ordinal 1 3 2006 3000 yes
123 mnds M_vent_36_indic_other Other indication for mech. Vent. at 36 weeks GA text 2006 3000 yes
124 mnds M_Steroids_BPD Steroids for BPD boolean 0 = no, 1 = yes 2012 3000 yes
125 mnds M_Other_steroids Other steroids boolean 0 = no, 1 = yes 2012 3000 yes
126 mnds M_Feeding_full First day of life full feed reached integer 0 365 999 2020 3000 yes
127 mnds M_Surgery Has child had any major surgery? boolean 0 = none/minor, 1 = yes 2020 3000 yes
128 mnds M_Surgery_1_DoL Day of life at 1st surgery integer -300 730 999 2020 3000 yes
129 mnds M_Surgery_1 Description 1st surgery (min. 10 characters) text 2020 3000 yes
130 mnds M_Surgery_2_DoL Day of life at 2nd surgery integer -300 730 999 2020 3000 yes
131 mnds M_Surgery_2 Description 2nd surgery (min. 10 characters) text 2020 3000 yes
132 mnds M_Surgery_3_DoL Day of life at 3rd surgery integer -300 730 999 2020 3000 yes
133 mnds M_Surgery_3 Description 3rd surgery (min. 10 characters) text 2020 3000 yes
134 mnds M_Surgery_4_DoL Day of life at 4th surgery integer -300 730 999 2020 3000 yes
135 mnds M_Surgery_4 Description 4th surgery (min. 10 characters) text 2020 3000 yes
136 mnds M_Surgery_5_DoL Day of life at 5th surgery integer -300 730 999 2020 3000 yes
137 mnds M_Surgery_5 Description 5th surgery (min. 10 characters) text 2020 3000 yes
138 mnds M_Surgery_PDA_ligation Surgical PDA ligation boolean 0 = no, 1 = yes 2012 3000 yes
139 mnds M_Surgery_PDA_ligation_DoL Day of surgical PDA ligation integer 0 = no, 1 = yes 2012 3000 yes
140 mnds M_Surgery_NEC Surgical NEC boolean 0 = no, 1 = yes 2012 3000 yes
141 mnds M_Surgery_NEC_DoL Day of surgical NEC integer 0 = no, 1 = yes 2012 3000 yes
142 mnds M_Surgery_SIP Surgical for SIP boolean 0 = no, 1 = yes 2012 3000 yes
143 mnds M_Surgery_SIP_DoL Day of SIP surgery integer 0 = no, 1 = yes 2012 3000 yes
144 mnds M_Surgery_VP_shunt Surgeries in relation to VP shunt boolean 0 = no, 1 = yes 2012 3000 yes
145 mnds M_Surgery_VP_shunt_DoL Day of VP-shunt type surgeries integer 0 = no, 1 = yes 2012 3000 yes
146 mnds M_Surgery_Major_nonPDA Non-PDA major surgery boolean 0 = no, 1 = yes 2012 3000 yes
147 mnds M_Surgery_Major_nonPDA_DoL Day of non-PDA major surgery integer 0 = no, 1 = yes 2012 3000 yes
148 mnds M_Surgery_cardiac Cardiac surgery boolean 0 = none/minor, 1 = yes 2000 2019 yes
149 mnds M_Surgery_cardiac_specific Specify cardiac surgery text 2000 2019 yes
150 mnds M_Surgery_other Other surgery boolean 0 = none/minor, 1 = yes 2000 2019 yes
151 mnds M_Surgery_other_specific Specify other surgery text 2000 2019 yes
152 mndsb34 M_Final_diagnosis_US Final diagnosis cerebral US ordinal 1 = normal, 2 = abnormal, 3 = not done 2000 3000 yes
153 mndsb34 M_Haemorrhage Brain haemorrhage ordinal 0 4 2000 3000 yes
154 mnds M_Ventricular_dilatation Ventricular dilatation ordinal 0 2 2000 3000 yes
155 mndsb34 M_Leucomalacia Leucomalacia ordinal 0 = none, 1 = echogenic, 2 = cystic 2000 3000 yes
156 mndsb34 M_US_other Other US abnormality boolean 0 = no, 1 = yes 2008 3000 yes
157 mnds M_US_other_specific Specify other US abnormality text 2008 3000 yes
158 mndsb34 M_Day_of_death Day of death integer 0 730 999 2000 3000 yes
159 mnds M_Hour_of_death Hours after birth (if within 24h) integer 0 48 99 2000 3000 yes
160 mnds M_Stop_intensive_care Decision to stop intensive care ordinal 1 3 2005 3000 yes
161 mnds M_Autopsy If autopsy was performed integer 1 2 2007 2012 no
162 mndsb34 M_Day_of_discharge Day of discharge integer 1 730 999 2000 3000 yes
163 mndsb34 M_Discharge_to Discharged home or other hospital ordinal 1 = home, 2 = other hospital, 3 = died 2000 3000 yes
164 mndsb34 M_Discharge_specific Specify hospital if necessary text 2000 3000 yes
165 mnds M_Discharge_weight Weight at discharge in g integer 300 9000 9999 2006 3000 yes
166 mnds M_Discharge_head Head circumference in cm decimal 10 50 99 2006 3000 yes
167 mnds M_Discharge_length Length at discharge decimal 15 70 99 2017 3000 yes
168 mnds M_Discharge_feeding Enteral feeding at discharge ordinal 1 4 9 2006 2019 yes
169 mnds M_Discharge_nutrition Predominant feeding at discharge ordinal 1 7 9 2020 3000 yes
170 mnds M_Day_of_readmission Day of readmission integer 1 730 999 2012 3000 yes
171 mnds M_Readmission_reason Reason for readmission ordinal 1 4 9 2012 3000 yes
172 mndsb34 M_Home_discharge_day Day of discharge home (if different from above) integer 1 730 999 2000 3000 yes
173 mndsb34 M_Home_weight Weight at final discharge in g integer 1000 9000 9999 2006 3000 yes
174 mndsb34 M_Home_head_circ Head circumference in cm decimal 10 50 99 2006 3000 yes
175 mndsb34 M_Home_length Length at discharge home decimal 15 70 99 2017 3000 yes
176 mndsb34 M_Home_feeding Enteral feeding at discharge home ordinal 1 4 9 2000 2019 yes
177 mndsb34 M_Home_nutrition Predominant feeding at discharge home ordinal 1 7 9 2020 3000 yes
178 mnds M_Home_monitor Home monitor boolean 0 = no, 1 = yes 2000 3000 yes
179 mnds M_Home_O2 Home O2 boolean 0 = no, 1 = yes 2000 3000 yes
180 mndsb34 M_Comments Comment text 2000 3000 yes
181 mnds P_DS_duplicate Original kP integer 2000 3000 yes
182 mndsb34 M_OA_code_sg SG OA (ONLY UNIT 33 ST. GALLEN) text 2006 3000 no
183 mnds M_Disch_w_perc_fenton Weight percentile at primary discharge according to fenton decimal 0 1 2000 3000 yes
184 mnds M_Home_w_perc_fenton Weight percentile at discharge home according to fenton decimal 0 1 2000 3000 yes