Raw Data Sources
| ID | Logo | Name | Description | Inclusion criteria | Start | End | Last Edit | N | |
|---|---|---|---|---|---|---|---|---|---|
| 1 |
|
MNDS | Minimal Neonatal DataSet | 22-31 weeks GA or 300 - 1500 BW (national) |
2000 | 20.04.2020 | 21791 | Items | |
| 2 |
|
B34 | B34 DataSet | 32-33 weeks GA and above 1500 BW (national) |
2019 | 20.04.2020 | 2624 | Items | |
| 3 |
|
ASP | Asphyxia Registry | >=35 weeks GA and <= 6 hours of age (national) |
2011 | 20.06.2020 | 1614 | Items | |
| 5 |
|
FU1 | Follow-up at 9 - 12 months corrected | selected children (multi-center) |
2000 | 2153 | Items | ||
| 6 |
|
FU2 | Follow-up at 18 - 24 months corrected | selected children (national) |
2000 | 8740 | Items | ||
| 8 |
|
FU5 | Follow-up at 5.5 - 6 years | selected children (national) |
2000 | 23.02.2022 | 4792 | Items | |
| 9 |
|
SDQ | Strength and Difficulties Questionnaire | selected children (multi-center) |
2000 | 589 | Items | ||
| 10 |
|
FUp | Parental questionnaire | for children not receiving FU5 |
2000 | 60 | Items | ||
| 11 |
|
OS1 | Orchid Stage 1 | ORCHID Stage 1 (national) |
2019 | 279 | Items | ||
| 12 |
|
OS2 | Orchid Stage 2 | ORCHID Stage 2 (national) |
2019 | 85 | Items | ||
| 13 |
|
OS3 | Orchid Stage 3 | ORCHID Stage 3 (national) |
2019 | 17 | Items | ||
| 17 |
|
Patient Data | Patient data is the common base of all other datasets. All other datasets are linked to this base dataset which contains the patients information. | None |
2000 | 14.12.2023 | 26361 | Items | |
| 18 |
|
Parent Data | Parent data is the common base of all Parent Questionnaires datasets, which are linked to this base dataset containing the parents information. | None |
2024 | 26361 | Items |